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Mapping the insomnia patient journey in Europe and Canada

INTRODUCTION: Insomnia affects daily functioning and overall health, and is thus associated with significant individual, societal, and economic burden. The experience of patients living with insomnia, their perception of the condition, and its impact on their quality of life is not well documented....

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Autores principales: O’Regan, David, Garcia-Borreguero, Diego, Gloggner, Fenna, Wild, Imane, Leontiou, Chrysoula, Ferini-Strambi, Luigi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10497771/
https://www.ncbi.nlm.nih.gov/pubmed/37711247
http://dx.doi.org/10.3389/fpubh.2023.1233201
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author O’Regan, David
Garcia-Borreguero, Diego
Gloggner, Fenna
Wild, Imane
Leontiou, Chrysoula
Ferini-Strambi, Luigi
author_facet O’Regan, David
Garcia-Borreguero, Diego
Gloggner, Fenna
Wild, Imane
Leontiou, Chrysoula
Ferini-Strambi, Luigi
author_sort O’Regan, David
collection PubMed
description INTRODUCTION: Insomnia affects daily functioning and overall health, and is thus associated with significant individual, societal, and economic burden. The experience of patients living with insomnia, their perception of the condition, and its impact on their quality of life is not well documented. The objective of this study was to map the patient journey in insomnia and identify unmet needs. METHODS: Participants were individuals with insomnia, and healthcare professionals (HCPs) who treat insomnia, in the United Kingdom, France, Germany, Italy, and Canada. Qualitative interviews (50 patients, 70 HCPs) and a quantitative survey (700 patients, 723 HCPs) were conducted to inform the patient-journey mapping and obtain information on the emotions, perceptions, and experiences of patients and HCPs. RESULTS: The patient journey comprises seven phases. The first defines the onset of insomnia symptoms. Phase 2 represents self-initiated behavior change to improve sleep (e.g., sleep hygiene, reducing caffeine, exercise). The next phase is characterized by use of over-the-counter (OTC) treatments, which generally fail to provide lasting relief. Phase 4 describes the first HCP consultation (occurring several months to several years after onset) and typically occurs at a crisis point for the patient; patients may be looking for an immediate solution (e.g., medication), which may not align with their HCP’s recommendation. The following stage comprises sleep hygiene/behavioral changes (±OTC treatment) under HCP guidance for many patients, although offering prescription treatments without a sleep hygiene stage under supervision is more common in some countries. Phase 6 describes prescription medication initiation, where patients fluctuate between relief/hopefulness and a sense of failure, while HCPs try to balance the need to provide relief for the patient while maintaining best medical practice and minimizing adverse effects. The final phase (living with long-term insomnia) represents an indefinite period during which sleep issues remain unresolved for many patients, with most of them continuing to use prescription treatments for longer than indicated and creating their own variable, self-managed regimens combining multiple modalities. CONCLUSION: This patient journey analysis for insomnia revealed seven distinct phases, highlighting different touchpoints where insomnia management could be optimized.
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spelling pubmed-104977712023-09-14 Mapping the insomnia patient journey in Europe and Canada O’Regan, David Garcia-Borreguero, Diego Gloggner, Fenna Wild, Imane Leontiou, Chrysoula Ferini-Strambi, Luigi Front Public Health Public Health INTRODUCTION: Insomnia affects daily functioning and overall health, and is thus associated with significant individual, societal, and economic burden. The experience of patients living with insomnia, their perception of the condition, and its impact on their quality of life is not well documented. The objective of this study was to map the patient journey in insomnia and identify unmet needs. METHODS: Participants were individuals with insomnia, and healthcare professionals (HCPs) who treat insomnia, in the United Kingdom, France, Germany, Italy, and Canada. Qualitative interviews (50 patients, 70 HCPs) and a quantitative survey (700 patients, 723 HCPs) were conducted to inform the patient-journey mapping and obtain information on the emotions, perceptions, and experiences of patients and HCPs. RESULTS: The patient journey comprises seven phases. The first defines the onset of insomnia symptoms. Phase 2 represents self-initiated behavior change to improve sleep (e.g., sleep hygiene, reducing caffeine, exercise). The next phase is characterized by use of over-the-counter (OTC) treatments, which generally fail to provide lasting relief. Phase 4 describes the first HCP consultation (occurring several months to several years after onset) and typically occurs at a crisis point for the patient; patients may be looking for an immediate solution (e.g., medication), which may not align with their HCP’s recommendation. The following stage comprises sleep hygiene/behavioral changes (±OTC treatment) under HCP guidance for many patients, although offering prescription treatments without a sleep hygiene stage under supervision is more common in some countries. Phase 6 describes prescription medication initiation, where patients fluctuate between relief/hopefulness and a sense of failure, while HCPs try to balance the need to provide relief for the patient while maintaining best medical practice and minimizing adverse effects. The final phase (living with long-term insomnia) represents an indefinite period during which sleep issues remain unresolved for many patients, with most of them continuing to use prescription treatments for longer than indicated and creating their own variable, self-managed regimens combining multiple modalities. CONCLUSION: This patient journey analysis for insomnia revealed seven distinct phases, highlighting different touchpoints where insomnia management could be optimized. Frontiers Media S.A. 2023-08-29 /pmc/articles/PMC10497771/ /pubmed/37711247 http://dx.doi.org/10.3389/fpubh.2023.1233201 Text en Copyright © 2023 O’Regan, Garcia-Borreguero, Gloggner, Wild, Leontiou and Ferini-Strambi. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Public Health
O’Regan, David
Garcia-Borreguero, Diego
Gloggner, Fenna
Wild, Imane
Leontiou, Chrysoula
Ferini-Strambi, Luigi
Mapping the insomnia patient journey in Europe and Canada
title Mapping the insomnia patient journey in Europe and Canada
title_full Mapping the insomnia patient journey in Europe and Canada
title_fullStr Mapping the insomnia patient journey in Europe and Canada
title_full_unstemmed Mapping the insomnia patient journey in Europe and Canada
title_short Mapping the insomnia patient journey in Europe and Canada
title_sort mapping the insomnia patient journey in europe and canada
topic Public Health
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10497771/
https://www.ncbi.nlm.nih.gov/pubmed/37711247
http://dx.doi.org/10.3389/fpubh.2023.1233201
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