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Persistent suffering: Living experiences of patients with rare disease: An interpretative phenomenological study

BACKGROUND: The low prevalence of rare diseases has caused the need for studies in this field to be neglected. Regardless of the prevalence of rare diseases, many people around the world have to live with the medical, psychological, and social consequences of their condition. Individuals with rare d...

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Detalles Bibliográficos
Autores principales: Rezaei, Fatemeh, Sanagoo, Akram, Peyrovi, Hamid, Jouybari, Leila
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10506786/
https://www.ncbi.nlm.nih.gov/pubmed/37727410
http://dx.doi.org/10.4103/jehp.jehp_1010_22