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Persistent suffering: Living experiences of patients with rare disease: An interpretative phenomenological study
BACKGROUND: The low prevalence of rare diseases has caused the need for studies in this field to be neglected. Regardless of the prevalence of rare diseases, many people around the world have to live with the medical, psychological, and social consequences of their condition. Individuals with rare d...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Wolters Kluwer - Medknow
2023
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10506786/ https://www.ncbi.nlm.nih.gov/pubmed/37727410 http://dx.doi.org/10.4103/jehp.jehp_1010_22 |