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Florida-California Cancer Health Equity Center (CaRE(2)) Community Scientist Research Advocacy Program

The Community Scientist Program (CSP), a model connecting researchers with community members, is effective to inform and involve the general population in health-related clinical research. Given the existing cancer disparities among Black/African American and Hispanic/Latino/a populations, more mode...

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Autores principales: Hensel, B., Askins, N., Ibarra, E., Aristizabal, C., Guzman, I., Barahona, R., Hazelton-Glenn, B., Lee, J., Zhang, Z., Odedina, F., Wilkie, D. J., Stern, M. C., Baezconde-Garbanati, L., Suther, S., Webb, F.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10509126/
https://www.ncbi.nlm.nih.gov/pubmed/37642919
http://dx.doi.org/10.1007/s13187-023-02351-3
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author Hensel, B.
Askins, N.
Ibarra, E.
Aristizabal, C.
Guzman, I.
Barahona, R.
Hazelton-Glenn, B.
Lee, J.
Zhang, Z.
Odedina, F.
Wilkie, D. J.
Stern, M. C.
Baezconde-Garbanati, L.
Suther, S.
Webb, F.
author_facet Hensel, B.
Askins, N.
Ibarra, E.
Aristizabal, C.
Guzman, I.
Barahona, R.
Hazelton-Glenn, B.
Lee, J.
Zhang, Z.
Odedina, F.
Wilkie, D. J.
Stern, M. C.
Baezconde-Garbanati, L.
Suther, S.
Webb, F.
author_sort Hensel, B.
collection PubMed
description The Community Scientist Program (CSP), a model connecting researchers with community members, is effective to inform and involve the general population in health-related clinical research. Given the existing cancer disparities among Black/African American and Hispanic/Latino/a populations, more models describing how cancer-related CSPs are designed, implemented, and evaluated are needed. The Florida-California Cancer Research, Education and Engagement (CaRE(2)) Health Equity Center is a tri-institutional, bicoastal center created to eliminate cancer health disparities among Black/African American and Hispanic/Latino/a populations living in California and in Florida. The CaRE(2) Center created a Community Scientist Research Advocacy (CSRA) training program for community members to become cancer research advocates. The CSRA program is currently a 13-week program conducted 100% virtually with all materials provided in English and Spanish for participants to learn more about prostate, lung, and pancreas cancers, ongoing research at CaRE(2), and ways to share cancer research throughout their communities. Participants attend didactic lectures on cancer research during weeks 1–5. In week 4, participants join CSRA self-selected groups based on cancer-related topics of interest. Each group presents their cancer-related advocacy project developed during weeks 5–12 at the final session. In this paper, we describe the CaRE(2) Health Equity Center’s CSRA program, share results, and discuss opportunities for improvement in future program evaluation as well as replication of this model in other communities. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s13187-023-02351-3.
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spelling pubmed-105091262023-09-21 Florida-California Cancer Health Equity Center (CaRE(2)) Community Scientist Research Advocacy Program Hensel, B. Askins, N. Ibarra, E. Aristizabal, C. Guzman, I. Barahona, R. Hazelton-Glenn, B. Lee, J. Zhang, Z. Odedina, F. Wilkie, D. J. Stern, M. C. Baezconde-Garbanati, L. Suther, S. Webb, F. J Cancer Educ Article The Community Scientist Program (CSP), a model connecting researchers with community members, is effective to inform and involve the general population in health-related clinical research. Given the existing cancer disparities among Black/African American and Hispanic/Latino/a populations, more models describing how cancer-related CSPs are designed, implemented, and evaluated are needed. The Florida-California Cancer Research, Education and Engagement (CaRE(2)) Health Equity Center is a tri-institutional, bicoastal center created to eliminate cancer health disparities among Black/African American and Hispanic/Latino/a populations living in California and in Florida. The CaRE(2) Center created a Community Scientist Research Advocacy (CSRA) training program for community members to become cancer research advocates. The CSRA program is currently a 13-week program conducted 100% virtually with all materials provided in English and Spanish for participants to learn more about prostate, lung, and pancreas cancers, ongoing research at CaRE(2), and ways to share cancer research throughout their communities. Participants attend didactic lectures on cancer research during weeks 1–5. In week 4, participants join CSRA self-selected groups based on cancer-related topics of interest. Each group presents their cancer-related advocacy project developed during weeks 5–12 at the final session. In this paper, we describe the CaRE(2) Health Equity Center’s CSRA program, share results, and discuss opportunities for improvement in future program evaluation as well as replication of this model in other communities. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s13187-023-02351-3. Springer US 2023-08-29 2023 /pmc/articles/PMC10509126/ /pubmed/37642919 http://dx.doi.org/10.1007/s13187-023-02351-3 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Article
Hensel, B.
Askins, N.
Ibarra, E.
Aristizabal, C.
Guzman, I.
Barahona, R.
Hazelton-Glenn, B.
Lee, J.
Zhang, Z.
Odedina, F.
Wilkie, D. J.
Stern, M. C.
Baezconde-Garbanati, L.
Suther, S.
Webb, F.
Florida-California Cancer Health Equity Center (CaRE(2)) Community Scientist Research Advocacy Program
title Florida-California Cancer Health Equity Center (CaRE(2)) Community Scientist Research Advocacy Program
title_full Florida-California Cancer Health Equity Center (CaRE(2)) Community Scientist Research Advocacy Program
title_fullStr Florida-California Cancer Health Equity Center (CaRE(2)) Community Scientist Research Advocacy Program
title_full_unstemmed Florida-California Cancer Health Equity Center (CaRE(2)) Community Scientist Research Advocacy Program
title_short Florida-California Cancer Health Equity Center (CaRE(2)) Community Scientist Research Advocacy Program
title_sort florida-california cancer health equity center (care(2)) community scientist research advocacy program
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10509126/
https://www.ncbi.nlm.nih.gov/pubmed/37642919
http://dx.doi.org/10.1007/s13187-023-02351-3
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