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Bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review

BACKGROUND: Diversity among editorial boards and in the peer review process maximizes the likelihood that the dissemination of reported results is both relevant and respectful to readers and end users. Past studies have examined diversity among editorial board members and reviewers for factors such...

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Autores principales: Nuechterlein, Anna, Barretto, Tanya, Yehia, Alaa, Illes, Judy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10512589/
https://www.ncbi.nlm.nih.gov/pubmed/37730666
http://dx.doi.org/10.1186/s41073-023-00138-0
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author Nuechterlein, Anna
Barretto, Tanya
Yehia, Alaa
Illes, Judy
author_facet Nuechterlein, Anna
Barretto, Tanya
Yehia, Alaa
Illes, Judy
author_sort Nuechterlein, Anna
collection PubMed
description BACKGROUND: Diversity among editorial boards and in the peer review process maximizes the likelihood that the dissemination of reported results is both relevant and respectful to readers and end users. Past studies have examined diversity among editorial board members and reviewers for factors such as gender, geographic location, and race, but limited research has explored the representation of people with disabilities. Here, we sought to understand the landscape of inclusivity of people with lived experience of spinal cord injury specifically in journals publishing papers (2012–2022) on their quality of life. METHODS: An open and closed 12-question adaptive survey was disseminated to 31 journal editors over a one-month period beginning December 2022. RESULTS: We received 10 fully completed and 5 partially completed survey responses (response rate 48%). Notwithstanding the small sample, over 50% (8/15) of respondents indicated that their journal review practices involve people with lived experience of spinal cord injury, signaling positive even if incomplete inclusivity practices. The most notable reported barriers to achieving this goal related to identifying and recruiting people with lived experience to serve in the review and editorial process. CONCLUSIONS: In this study we found positive but incomplete trends toward inclusivity in journal practices involving people with lived experience of spinal cord injury. We recommend, therefore, that explicit and genuine efforts are directed toward recruitment through community-based channels. To improve representation even further, we suggest that editors and reviewers be offered the opportunity to self-identify as living with a disability without discrimination or bias.
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spelling pubmed-105125892023-09-22 Bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review Nuechterlein, Anna Barretto, Tanya Yehia, Alaa Illes, Judy Res Integr Peer Rev Research BACKGROUND: Diversity among editorial boards and in the peer review process maximizes the likelihood that the dissemination of reported results is both relevant and respectful to readers and end users. Past studies have examined diversity among editorial board members and reviewers for factors such as gender, geographic location, and race, but limited research has explored the representation of people with disabilities. Here, we sought to understand the landscape of inclusivity of people with lived experience of spinal cord injury specifically in journals publishing papers (2012–2022) on their quality of life. METHODS: An open and closed 12-question adaptive survey was disseminated to 31 journal editors over a one-month period beginning December 2022. RESULTS: We received 10 fully completed and 5 partially completed survey responses (response rate 48%). Notwithstanding the small sample, over 50% (8/15) of respondents indicated that their journal review practices involve people with lived experience of spinal cord injury, signaling positive even if incomplete inclusivity practices. The most notable reported barriers to achieving this goal related to identifying and recruiting people with lived experience to serve in the review and editorial process. CONCLUSIONS: In this study we found positive but incomplete trends toward inclusivity in journal practices involving people with lived experience of spinal cord injury. We recommend, therefore, that explicit and genuine efforts are directed toward recruitment through community-based channels. To improve representation even further, we suggest that editors and reviewers be offered the opportunity to self-identify as living with a disability without discrimination or bias. BioMed Central 2023-09-21 /pmc/articles/PMC10512589/ /pubmed/37730666 http://dx.doi.org/10.1186/s41073-023-00138-0 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Nuechterlein, Anna
Barretto, Tanya
Yehia, Alaa
Illes, Judy
Bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review
title Bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review
title_full Bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review
title_fullStr Bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review
title_full_unstemmed Bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review
title_short Bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review
title_sort bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10512589/
https://www.ncbi.nlm.nih.gov/pubmed/37730666
http://dx.doi.org/10.1186/s41073-023-00138-0
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