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Barriers and facilitators to recruitment of underrepresented research participants: Perspectives of clinical research coordinators

BACKGROUND: Insufficient recruitment of groups underrepresented in medical research threatens the generalizability of research findings and compounds inequity in research and medicine. In the present study, we examined barriers and facilitators to recruitment of underrepresented research participant...

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Autores principales: Heffernan, Marie E., Barrera, Leo, Guzman, Zecilly R., Golbeck, Emily, Jedraszko, Aneta M., Hays, P. Toddie, Herzog, Keith A., D’Aquila, Richard T., Ison, Michael G., McColley, Susanna A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10514687/
https://www.ncbi.nlm.nih.gov/pubmed/37745931
http://dx.doi.org/10.1017/cts.2023.611
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author Heffernan, Marie E.
Barrera, Leo
Guzman, Zecilly R.
Golbeck, Emily
Jedraszko, Aneta M.
Hays, P. Toddie
Herzog, Keith A.
D’Aquila, Richard T.
Ison, Michael G.
McColley, Susanna A.
author_facet Heffernan, Marie E.
Barrera, Leo
Guzman, Zecilly R.
Golbeck, Emily
Jedraszko, Aneta M.
Hays, P. Toddie
Herzog, Keith A.
D’Aquila, Richard T.
Ison, Michael G.
McColley, Susanna A.
author_sort Heffernan, Marie E.
collection PubMed
description BACKGROUND: Insufficient recruitment of groups underrepresented in medical research threatens the generalizability of research findings and compounds inequity in research and medicine. In the present study, we examined barriers and facilitators to recruitment of underrepresented research participants from the perspective of clinical research coordinators (CRCs). METHODS: CRCs from one adult and one pediatric academic medical centers completed an online survey in April-May 2022. Survey topics included: participant language and translations, cultural competency training, incentives for research participation, study location, and participant research literacy. CRCs also reported their success in recruiting individuals from various backgrounds and completed an implicit bias measure. RESULTS: Surveys were completed by 220 CRCs. CRCs indicated that recruitment is improved by having translated study materials, providing incentives to compensate participants, and reducing the number of in-person study visits. Most CRCs had completed some form of cultural competency training, but most also felt that the training either had no effect or made them feel less confident in approaching prospective participants from backgrounds different than their own. In general, CRCs reported having greater success in recruiting prospective participants from groups that are not underrepresented in research. Results of the implicit bias measure did not indicate that bias was associated with intentions to approach a prospective participant. CONCLUSIONS: CRCs identified several strategies to improve recruitment of underrepresented research participants, and CRC insights aligned with insights from research participants in previous work. Further research is needed to understand the impact of cultural competency training on recruitment of underrepresented research participants.
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spelling pubmed-105146872023-09-23 Barriers and facilitators to recruitment of underrepresented research participants: Perspectives of clinical research coordinators Heffernan, Marie E. Barrera, Leo Guzman, Zecilly R. Golbeck, Emily Jedraszko, Aneta M. Hays, P. Toddie Herzog, Keith A. D’Aquila, Richard T. Ison, Michael G. McColley, Susanna A. J Clin Transl Sci Research Article BACKGROUND: Insufficient recruitment of groups underrepresented in medical research threatens the generalizability of research findings and compounds inequity in research and medicine. In the present study, we examined barriers and facilitators to recruitment of underrepresented research participants from the perspective of clinical research coordinators (CRCs). METHODS: CRCs from one adult and one pediatric academic medical centers completed an online survey in April-May 2022. Survey topics included: participant language and translations, cultural competency training, incentives for research participation, study location, and participant research literacy. CRCs also reported their success in recruiting individuals from various backgrounds and completed an implicit bias measure. RESULTS: Surveys were completed by 220 CRCs. CRCs indicated that recruitment is improved by having translated study materials, providing incentives to compensate participants, and reducing the number of in-person study visits. Most CRCs had completed some form of cultural competency training, but most also felt that the training either had no effect or made them feel less confident in approaching prospective participants from backgrounds different than their own. In general, CRCs reported having greater success in recruiting prospective participants from groups that are not underrepresented in research. Results of the implicit bias measure did not indicate that bias was associated with intentions to approach a prospective participant. CONCLUSIONS: CRCs identified several strategies to improve recruitment of underrepresented research participants, and CRC insights aligned with insights from research participants in previous work. Further research is needed to understand the impact of cultural competency training on recruitment of underrepresented research participants. Cambridge University Press 2023-08-18 /pmc/articles/PMC10514687/ /pubmed/37745931 http://dx.doi.org/10.1017/cts.2023.611 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.
spellingShingle Research Article
Heffernan, Marie E.
Barrera, Leo
Guzman, Zecilly R.
Golbeck, Emily
Jedraszko, Aneta M.
Hays, P. Toddie
Herzog, Keith A.
D’Aquila, Richard T.
Ison, Michael G.
McColley, Susanna A.
Barriers and facilitators to recruitment of underrepresented research participants: Perspectives of clinical research coordinators
title Barriers and facilitators to recruitment of underrepresented research participants: Perspectives of clinical research coordinators
title_full Barriers and facilitators to recruitment of underrepresented research participants: Perspectives of clinical research coordinators
title_fullStr Barriers and facilitators to recruitment of underrepresented research participants: Perspectives of clinical research coordinators
title_full_unstemmed Barriers and facilitators to recruitment of underrepresented research participants: Perspectives of clinical research coordinators
title_short Barriers and facilitators to recruitment of underrepresented research participants: Perspectives of clinical research coordinators
title_sort barriers and facilitators to recruitment of underrepresented research participants: perspectives of clinical research coordinators
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10514687/
https://www.ncbi.nlm.nih.gov/pubmed/37745931
http://dx.doi.org/10.1017/cts.2023.611
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