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Virtual Dementia-Friendly Communities (Verily Connect) Stepped-Wedge Cluster-Randomised Controlled Trial: Improving Dementia Caregiver Wellbeing in Rural Australia

Caring for people living with dementia often leads to social isolation and decreased support for caregivers. This study investigated the effect of a Virtual Dementia-Friendly Rural Communities (Verily Connect) model on social support and demand for caregivers of people living with dementia. The co-d...

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Autores principales: Blackberry, Irene, Rasekaba, Tshepo, Morgan, Debra, Royals, Kayla, Greenhill, Jennene, Perkins, David, O’Connell, Megan, Hamiduzzaman, Mohammad, Winbolt, Margaret, Robinson, Ainsley, Davis, Hilary, Wilding, Clare
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10514836/
https://www.ncbi.nlm.nih.gov/pubmed/37736885
http://dx.doi.org/10.3390/geriatrics8050085
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author Blackberry, Irene
Rasekaba, Tshepo
Morgan, Debra
Royals, Kayla
Greenhill, Jennene
Perkins, David
O’Connell, Megan
Hamiduzzaman, Mohammad
Winbolt, Margaret
Robinson, Ainsley
Davis, Hilary
Wilding, Clare
author_facet Blackberry, Irene
Rasekaba, Tshepo
Morgan, Debra
Royals, Kayla
Greenhill, Jennene
Perkins, David
O’Connell, Megan
Hamiduzzaman, Mohammad
Winbolt, Margaret
Robinson, Ainsley
Davis, Hilary
Wilding, Clare
author_sort Blackberry, Irene
collection PubMed
description Caring for people living with dementia often leads to social isolation and decreased support for caregivers. This study investigated the effect of a Virtual Dementia-Friendly Rural Communities (Verily Connect) model on social support and demand for caregivers of people living with dementia. The co-designed intervention entailed an integrated website and mobile application, peer-support videoconference, and technology learning hubs. This mixed-methods, stepped-wedge, cluster-randomised controlled trial was conducted with 113 participants from 12 rural communities in Australia. Caregiver data were collected using MOS-SSS and ZBI between 2018 and 2020. The relationship between post-intervention social support with age, years of caring, years since diagnosis, and duration of intervention were explored through correlation analysis and thin plate regression. Google Analytics were analysed for levels of engagement, and cost analysis was performed for implementation. Results showed that caregivers’ perception of social support (MOS-SSS) increased over 32 weeks (p = 0.003) and there was a marginal trend of less care demand (ZBI) among caregivers. Better social support was observed with increasing caregiver age until 55 years. Younger caregivers (aged <55 years) experienced the greatest post-intervention improvement. The greatest engagement occurred early in the trial, declining sharply thereafter. The Verily Connect model improved caregivers’ social support and appeared to ease caregiver demand.
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spelling pubmed-105148362023-09-23 Virtual Dementia-Friendly Communities (Verily Connect) Stepped-Wedge Cluster-Randomised Controlled Trial: Improving Dementia Caregiver Wellbeing in Rural Australia Blackberry, Irene Rasekaba, Tshepo Morgan, Debra Royals, Kayla Greenhill, Jennene Perkins, David O’Connell, Megan Hamiduzzaman, Mohammad Winbolt, Margaret Robinson, Ainsley Davis, Hilary Wilding, Clare Geriatrics (Basel) Article Caring for people living with dementia often leads to social isolation and decreased support for caregivers. This study investigated the effect of a Virtual Dementia-Friendly Rural Communities (Verily Connect) model on social support and demand for caregivers of people living with dementia. The co-designed intervention entailed an integrated website and mobile application, peer-support videoconference, and technology learning hubs. This mixed-methods, stepped-wedge, cluster-randomised controlled trial was conducted with 113 participants from 12 rural communities in Australia. Caregiver data were collected using MOS-SSS and ZBI between 2018 and 2020. The relationship between post-intervention social support with age, years of caring, years since diagnosis, and duration of intervention were explored through correlation analysis and thin plate regression. Google Analytics were analysed for levels of engagement, and cost analysis was performed for implementation. Results showed that caregivers’ perception of social support (MOS-SSS) increased over 32 weeks (p = 0.003) and there was a marginal trend of less care demand (ZBI) among caregivers. Better social support was observed with increasing caregiver age until 55 years. Younger caregivers (aged <55 years) experienced the greatest post-intervention improvement. The greatest engagement occurred early in the trial, declining sharply thereafter. The Verily Connect model improved caregivers’ social support and appeared to ease caregiver demand. MDPI 2023-08-25 /pmc/articles/PMC10514836/ /pubmed/37736885 http://dx.doi.org/10.3390/geriatrics8050085 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Blackberry, Irene
Rasekaba, Tshepo
Morgan, Debra
Royals, Kayla
Greenhill, Jennene
Perkins, David
O’Connell, Megan
Hamiduzzaman, Mohammad
Winbolt, Margaret
Robinson, Ainsley
Davis, Hilary
Wilding, Clare
Virtual Dementia-Friendly Communities (Verily Connect) Stepped-Wedge Cluster-Randomised Controlled Trial: Improving Dementia Caregiver Wellbeing in Rural Australia
title Virtual Dementia-Friendly Communities (Verily Connect) Stepped-Wedge Cluster-Randomised Controlled Trial: Improving Dementia Caregiver Wellbeing in Rural Australia
title_full Virtual Dementia-Friendly Communities (Verily Connect) Stepped-Wedge Cluster-Randomised Controlled Trial: Improving Dementia Caregiver Wellbeing in Rural Australia
title_fullStr Virtual Dementia-Friendly Communities (Verily Connect) Stepped-Wedge Cluster-Randomised Controlled Trial: Improving Dementia Caregiver Wellbeing in Rural Australia
title_full_unstemmed Virtual Dementia-Friendly Communities (Verily Connect) Stepped-Wedge Cluster-Randomised Controlled Trial: Improving Dementia Caregiver Wellbeing in Rural Australia
title_short Virtual Dementia-Friendly Communities (Verily Connect) Stepped-Wedge Cluster-Randomised Controlled Trial: Improving Dementia Caregiver Wellbeing in Rural Australia
title_sort virtual dementia-friendly communities (verily connect) stepped-wedge cluster-randomised controlled trial: improving dementia caregiver wellbeing in rural australia
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10514836/
https://www.ncbi.nlm.nih.gov/pubmed/37736885
http://dx.doi.org/10.3390/geriatrics8050085
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