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Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda

Introduction: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health...

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Autores principales: Hotez, Emily, Haley, Madeline, Martinez-Agosto, Julian A, Anderson, Jeffrey, Brown, Heather, Choi, Kristen, Croen, Lisa A, Dwyer, Patrick, Fernandes, Priyanka, Gassner, Dena, Giwa Onaiwu, Morénike, Gragnani, Candace M, Graham Holmes, Laura, Kapp, Steven, Kim, Dana, Massolo, Maria, Montgomery, Brianna, Natri, Heini M, Rava, Julianna A, Rosenau, Kashia A, Roth, Jeffrey, Rudolph, Dawn, Ryan, Jackie G, Shattuck, Paul, Shea, Lindsay, Williams, Zachary J, Wilson, Rujuta B, Kuo, Alice
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cureus 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10541233/
https://www.ncbi.nlm.nih.gov/pubmed/37779815
http://dx.doi.org/10.7759/cureus.44388
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author Hotez, Emily
Haley, Madeline
Martinez-Agosto, Julian A
Anderson, Jeffrey
Brown, Heather
Choi, Kristen
Croen, Lisa A
Dwyer, Patrick
Fernandes, Priyanka
Gassner, Dena
Giwa Onaiwu, Morénike
Gragnani, Candace M
Graham Holmes, Laura
Kapp, Steven
Kim, Dana
Massolo, Maria
Montgomery, Brianna
Natri, Heini M
Rava, Julianna A
Rosenau, Kashia A
Roth, Jeffrey
Rudolph, Dawn
Ryan, Jackie G
Shattuck, Paul
Shea, Lindsay
Williams, Zachary J
Wilson, Rujuta B
Kuo, Alice
author_facet Hotez, Emily
Haley, Madeline
Martinez-Agosto, Julian A
Anderson, Jeffrey
Brown, Heather
Choi, Kristen
Croen, Lisa A
Dwyer, Patrick
Fernandes, Priyanka
Gassner, Dena
Giwa Onaiwu, Morénike
Gragnani, Candace M
Graham Holmes, Laura
Kapp, Steven
Kim, Dana
Massolo, Maria
Montgomery, Brianna
Natri, Heini M
Rava, Julianna A
Rosenau, Kashia A
Roth, Jeffrey
Rudolph, Dawn
Ryan, Jackie G
Shattuck, Paul
Shea, Lindsay
Williams, Zachary J
Wilson, Rujuta B
Kuo, Alice
author_sort Hotez, Emily
collection PubMed
description Introduction: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multi-center Research Network that aims to increase the health, well-being, and quality of life of autistic individuals. The current paper builds on the initial AIR-P Research Agenda (proposed in Year 1) and provides an updated vision for the Network. Methods: Updates to the Research Agenda were made via the administration of a Qualtrics survey, and disseminated widely to all AIR-P entities, including the Research Node Leaders, Steering Committee, Autistic Researcher Review Board, and collaborating academic and non-academic entities. Network members were tasked with evaluating the Year 1 Research Agenda and proposing additional priorities. Results: Within each Research Node, all Year 1 priorities were endorsed as continued priorities for research on autism and physical health. Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected. Conclusion: The updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. This updated agenda builds on efforts to catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health promotion.
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spelling pubmed-105412332023-10-01 Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda Hotez, Emily Haley, Madeline Martinez-Agosto, Julian A Anderson, Jeffrey Brown, Heather Choi, Kristen Croen, Lisa A Dwyer, Patrick Fernandes, Priyanka Gassner, Dena Giwa Onaiwu, Morénike Gragnani, Candace M Graham Holmes, Laura Kapp, Steven Kim, Dana Massolo, Maria Montgomery, Brianna Natri, Heini M Rava, Julianna A Rosenau, Kashia A Roth, Jeffrey Rudolph, Dawn Ryan, Jackie G Shattuck, Paul Shea, Lindsay Williams, Zachary J Wilson, Rujuta B Kuo, Alice Cureus Internal Medicine Introduction: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multi-center Research Network that aims to increase the health, well-being, and quality of life of autistic individuals. The current paper builds on the initial AIR-P Research Agenda (proposed in Year 1) and provides an updated vision for the Network. Methods: Updates to the Research Agenda were made via the administration of a Qualtrics survey, and disseminated widely to all AIR-P entities, including the Research Node Leaders, Steering Committee, Autistic Researcher Review Board, and collaborating academic and non-academic entities. Network members were tasked with evaluating the Year 1 Research Agenda and proposing additional priorities. Results: Within each Research Node, all Year 1 priorities were endorsed as continued priorities for research on autism and physical health. Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected. Conclusion: The updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. This updated agenda builds on efforts to catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health promotion. Cureus 2023-08-30 /pmc/articles/PMC10541233/ /pubmed/37779815 http://dx.doi.org/10.7759/cureus.44388 Text en Copyright © 2023, Hotez et al. https://creativecommons.org/licenses/by/3.0/This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Internal Medicine
Hotez, Emily
Haley, Madeline
Martinez-Agosto, Julian A
Anderson, Jeffrey
Brown, Heather
Choi, Kristen
Croen, Lisa A
Dwyer, Patrick
Fernandes, Priyanka
Gassner, Dena
Giwa Onaiwu, Morénike
Gragnani, Candace M
Graham Holmes, Laura
Kapp, Steven
Kim, Dana
Massolo, Maria
Montgomery, Brianna
Natri, Heini M
Rava, Julianna A
Rosenau, Kashia A
Roth, Jeffrey
Rudolph, Dawn
Ryan, Jackie G
Shattuck, Paul
Shea, Lindsay
Williams, Zachary J
Wilson, Rujuta B
Kuo, Alice
Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda
title Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda
title_full Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda
title_fullStr Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda
title_full_unstemmed Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda
title_short Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda
title_sort updates to the autism intervention research network on physical health (air-p) research agenda
topic Internal Medicine
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10541233/
https://www.ncbi.nlm.nih.gov/pubmed/37779815
http://dx.doi.org/10.7759/cureus.44388
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