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Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda
Introduction: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health...
Autores principales: | , , , , , , , , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Cureus
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10541233/ https://www.ncbi.nlm.nih.gov/pubmed/37779815 http://dx.doi.org/10.7759/cureus.44388 |
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author | Hotez, Emily Haley, Madeline Martinez-Agosto, Julian A Anderson, Jeffrey Brown, Heather Choi, Kristen Croen, Lisa A Dwyer, Patrick Fernandes, Priyanka Gassner, Dena Giwa Onaiwu, Morénike Gragnani, Candace M Graham Holmes, Laura Kapp, Steven Kim, Dana Massolo, Maria Montgomery, Brianna Natri, Heini M Rava, Julianna A Rosenau, Kashia A Roth, Jeffrey Rudolph, Dawn Ryan, Jackie G Shattuck, Paul Shea, Lindsay Williams, Zachary J Wilson, Rujuta B Kuo, Alice |
author_facet | Hotez, Emily Haley, Madeline Martinez-Agosto, Julian A Anderson, Jeffrey Brown, Heather Choi, Kristen Croen, Lisa A Dwyer, Patrick Fernandes, Priyanka Gassner, Dena Giwa Onaiwu, Morénike Gragnani, Candace M Graham Holmes, Laura Kapp, Steven Kim, Dana Massolo, Maria Montgomery, Brianna Natri, Heini M Rava, Julianna A Rosenau, Kashia A Roth, Jeffrey Rudolph, Dawn Ryan, Jackie G Shattuck, Paul Shea, Lindsay Williams, Zachary J Wilson, Rujuta B Kuo, Alice |
author_sort | Hotez, Emily |
collection | PubMed |
description | Introduction: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multi-center Research Network that aims to increase the health, well-being, and quality of life of autistic individuals. The current paper builds on the initial AIR-P Research Agenda (proposed in Year 1) and provides an updated vision for the Network. Methods: Updates to the Research Agenda were made via the administration of a Qualtrics survey, and disseminated widely to all AIR-P entities, including the Research Node Leaders, Steering Committee, Autistic Researcher Review Board, and collaborating academic and non-academic entities. Network members were tasked with evaluating the Year 1 Research Agenda and proposing additional priorities. Results: Within each Research Node, all Year 1 priorities were endorsed as continued priorities for research on autism and physical health. Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected. Conclusion: The updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. This updated agenda builds on efforts to catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health promotion. |
format | Online Article Text |
id | pubmed-10541233 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Cureus |
record_format | MEDLINE/PubMed |
spelling | pubmed-105412332023-10-01 Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda Hotez, Emily Haley, Madeline Martinez-Agosto, Julian A Anderson, Jeffrey Brown, Heather Choi, Kristen Croen, Lisa A Dwyer, Patrick Fernandes, Priyanka Gassner, Dena Giwa Onaiwu, Morénike Gragnani, Candace M Graham Holmes, Laura Kapp, Steven Kim, Dana Massolo, Maria Montgomery, Brianna Natri, Heini M Rava, Julianna A Rosenau, Kashia A Roth, Jeffrey Rudolph, Dawn Ryan, Jackie G Shattuck, Paul Shea, Lindsay Williams, Zachary J Wilson, Rujuta B Kuo, Alice Cureus Internal Medicine Introduction: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multi-center Research Network that aims to increase the health, well-being, and quality of life of autistic individuals. The current paper builds on the initial AIR-P Research Agenda (proposed in Year 1) and provides an updated vision for the Network. Methods: Updates to the Research Agenda were made via the administration of a Qualtrics survey, and disseminated widely to all AIR-P entities, including the Research Node Leaders, Steering Committee, Autistic Researcher Review Board, and collaborating academic and non-academic entities. Network members were tasked with evaluating the Year 1 Research Agenda and proposing additional priorities. Results: Within each Research Node, all Year 1 priorities were endorsed as continued priorities for research on autism and physical health. Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected. Conclusion: The updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. This updated agenda builds on efforts to catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health promotion. Cureus 2023-08-30 /pmc/articles/PMC10541233/ /pubmed/37779815 http://dx.doi.org/10.7759/cureus.44388 Text en Copyright © 2023, Hotez et al. https://creativecommons.org/licenses/by/3.0/This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. |
spellingShingle | Internal Medicine Hotez, Emily Haley, Madeline Martinez-Agosto, Julian A Anderson, Jeffrey Brown, Heather Choi, Kristen Croen, Lisa A Dwyer, Patrick Fernandes, Priyanka Gassner, Dena Giwa Onaiwu, Morénike Gragnani, Candace M Graham Holmes, Laura Kapp, Steven Kim, Dana Massolo, Maria Montgomery, Brianna Natri, Heini M Rava, Julianna A Rosenau, Kashia A Roth, Jeffrey Rudolph, Dawn Ryan, Jackie G Shattuck, Paul Shea, Lindsay Williams, Zachary J Wilson, Rujuta B Kuo, Alice Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda |
title | Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda |
title_full | Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda |
title_fullStr | Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda |
title_full_unstemmed | Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda |
title_short | Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda |
title_sort | updates to the autism intervention research network on physical health (air-p) research agenda |
topic | Internal Medicine |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10541233/ https://www.ncbi.nlm.nih.gov/pubmed/37779815 http://dx.doi.org/10.7759/cureus.44388 |
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