Cargando…

THU005 Patient And Public Involvement In Virtual Simulation-based Education Informs And Enhances Clinicians’ Knowledge In Managing Polycystic Ovary Syndrome And Adrenal Conditions

Disclosure: C.S. Pan: None. E. Melson: None. T. Ogiliev: None. D. Zhou: None. S.Y. Ng: None. F. Rezai: None. Z. Olateju: None. E. Radcliffe: None. P. Balendran: None. A. Radcliffe: None. G.M. Lau: None. J. Sheikh: None. H. Kaur: None. C. Cooper: None. F. Abdelhameed: None. F. Pang: None. S. Bhatt: N...

Descripción completa

Detalles Bibliográficos
Autores principales: Pan, Carina S C, Melson, Eka, Ogiliev, Tamzin, Zhou, Dengyi, Ng, Sung Y, Rezai, Fatema, Olateju, Zahra, Radcliffe, Eloise, Balendran, Prashanthan, Radcliffe, Abby, Lau, Gar M, Sheikh, Jameela, Kaur, Harjeet, Cooper, Catherine, Abdelhameed, Farah, Pang, Francesca, Bhatt, Shreya, Shabbir, Dania, Davitadze, Meri, Prete, Alessandro, Ronchi, Cristina L, Bancos, Irina, Chortis, Vasileios, Newell-Price, John D C, Simpson, Helen L, Gleeson, Helena, Manolopoulos, Konstantinos, Chu, Justin, O'Reilly, Michael William, Arlt, Wiebke, Gillett, Caroline, Kempegowda, Punith
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10554653/
http://dx.doi.org/10.1210/jendso/bvad114.1527
_version_ 1785116463499051008
author Pan, Carina S C
Melson, Eka
Ogiliev, Tamzin
Zhou, Dengyi
Ng, Sung Y
Rezai, Fatema
Olateju, Zahra
Radcliffe, Eloise
Balendran, Prashanthan
Radcliffe, Abby
Lau, Gar M
Sheikh, Jameela
Kaur, Harjeet
Cooper, Catherine
Abdelhameed, Farah
Pang, Francesca
Bhatt, Shreya
Shabbir, Dania
Davitadze, Meri
Prete, Alessandro
Ronchi, Cristina L
Bancos, Irina
Chortis, Vasileios
Newell-Price, John D C
Simpson, Helen L
Gleeson, Helena
Manolopoulos, Konstantinos
Chu, Justin
O'Reilly, Michael William
Arlt, Wiebke
Gillett, Caroline
Kempegowda, Punith
author_facet Pan, Carina S C
Melson, Eka
Ogiliev, Tamzin
Zhou, Dengyi
Ng, Sung Y
Rezai, Fatema
Olateju, Zahra
Radcliffe, Eloise
Balendran, Prashanthan
Radcliffe, Abby
Lau, Gar M
Sheikh, Jameela
Kaur, Harjeet
Cooper, Catherine
Abdelhameed, Farah
Pang, Francesca
Bhatt, Shreya
Shabbir, Dania
Davitadze, Meri
Prete, Alessandro
Ronchi, Cristina L
Bancos, Irina
Chortis, Vasileios
Newell-Price, John D C
Simpson, Helen L
Gleeson, Helena
Manolopoulos, Konstantinos
Chu, Justin
O'Reilly, Michael William
Arlt, Wiebke
Gillett, Caroline
Kempegowda, Punith
author_sort Pan, Carina S C
collection PubMed
description Disclosure: C.S. Pan: None. E. Melson: None. T. Ogiliev: None. D. Zhou: None. S.Y. Ng: None. F. Rezai: None. Z. Olateju: None. E. Radcliffe: None. P. Balendran: None. A. Radcliffe: None. G.M. Lau: None. J. Sheikh: None. H. Kaur: None. C. Cooper: None. F. Abdelhameed: None. F. Pang: None. S. Bhatt: None. D. Shabbir: None. M. Davitadze: None. A. Prete: None. C.L. Ronchi: None. I. Bancos: None. V. Chortis: None. J.D. Newell-Price: None. H.L. Simpson: None. H. Gleeson: None. K. Manolopoulos: None. J. Chu: None. M.W. O'Reilly: None. W. Arlt: None. C. Gillett: None. P. Kempegowda: None. O. SIMBA team: None. Introduction: Simulation via Instant Messaging - Birmingham Advance (SIMBA) is an effective educational platform in increasing clinicians’ confidence in managing various endocrine conditions (Melson, 2020). However, it has lacked input from the patients living with these conditions. We hypothesize that engaging patients and members of the public can inform clinicians to better tailor management to suit the concerns and expectations of patients. Methods: Two virtual simulation sessions covering topics related to Polycystic Ovary Syndrome (PPI-PCOS) and Adrenal conditions (PPI-Adrenal) were organized for clinicians. Nine cases were simulated using anonymized real-life patient data. Members of the general public living with PCOS or Adrenal conditions were recruited from several support groups to undergo a workshop-style discussion to provide their opinions on how representative the cases were and how the management of the condition could be improved. At the end of the simulations, all clinicians and patients were invited to a panel discussion led by expert consultants over Zoom incorporating the summaries from the workshops. Pre- and post-simulation surveys were distributed to measure the change in clinicians’ confidence using Wilcoxon signed-rank test. Thematic analysis was used to identify gaps in knowledge and expectations between clinicians and patients with PCOS or Adrenal conditions. Results: Self-reported confidence by clinicians in the management of PCOS (n=25) and Adrenal conditions (n=23) increased post-simulation (PPI-PCOS simulated:+41.0%, p<0.001; non-simulated:+40.0%, p<0.001. PPI-Adrenal simulated:+22.5% (p=0.0001); non-simulated:+24.0% (p=0.0005)). 90% and 100% of patients agreed PPI-PCOS benefits patients to understand their condition better, and helps clinicians and patients understand each other’s perspectives respectively, whereas this is true for 80% of patients from PPI-Adrenal regarding both aspects. Recurring themes identified through thematic analysis included approach to handling complexities resulting in delayed diagnosis or management, the need for personalized care, lack of information provided to patients with regards to the progression of symptoms, complications or treatment received. Conclusion: PPI-PCOS and PPI-Adrenal were effective in increasing the knowledge and understanding of PCOS and Adrenal conditions for both members of the general public and healthcare professionals. They also helped narrow the gap in knowledge and expectations by exchanging perspectives through a common dialogue. Presentation: Thursday, June 15, 2023
format Online
Article
Text
id pubmed-10554653
institution National Center for Biotechnology Information
language English
publishDate 2023
publisher Oxford University Press
record_format MEDLINE/PubMed
spelling pubmed-105546532023-10-06 THU005 Patient And Public Involvement In Virtual Simulation-based Education Informs And Enhances Clinicians’ Knowledge In Managing Polycystic Ovary Syndrome And Adrenal Conditions Pan, Carina S C Melson, Eka Ogiliev, Tamzin Zhou, Dengyi Ng, Sung Y Rezai, Fatema Olateju, Zahra Radcliffe, Eloise Balendran, Prashanthan Radcliffe, Abby Lau, Gar M Sheikh, Jameela Kaur, Harjeet Cooper, Catherine Abdelhameed, Farah Pang, Francesca Bhatt, Shreya Shabbir, Dania Davitadze, Meri Prete, Alessandro Ronchi, Cristina L Bancos, Irina Chortis, Vasileios Newell-Price, John D C Simpson, Helen L Gleeson, Helena Manolopoulos, Konstantinos Chu, Justin O'Reilly, Michael William Arlt, Wiebke Gillett, Caroline Kempegowda, Punith J Endocr Soc Reproductive Endocrinology Disclosure: C.S. Pan: None. E. Melson: None. T. Ogiliev: None. D. Zhou: None. S.Y. Ng: None. F. Rezai: None. Z. Olateju: None. E. Radcliffe: None. P. Balendran: None. A. Radcliffe: None. G.M. Lau: None. J. Sheikh: None. H. Kaur: None. C. Cooper: None. F. Abdelhameed: None. F. Pang: None. S. Bhatt: None. D. Shabbir: None. M. Davitadze: None. A. Prete: None. C.L. Ronchi: None. I. Bancos: None. V. Chortis: None. J.D. Newell-Price: None. H.L. Simpson: None. H. Gleeson: None. K. Manolopoulos: None. J. Chu: None. M.W. O'Reilly: None. W. Arlt: None. C. Gillett: None. P. Kempegowda: None. O. SIMBA team: None. Introduction: Simulation via Instant Messaging - Birmingham Advance (SIMBA) is an effective educational platform in increasing clinicians’ confidence in managing various endocrine conditions (Melson, 2020). However, it has lacked input from the patients living with these conditions. We hypothesize that engaging patients and members of the public can inform clinicians to better tailor management to suit the concerns and expectations of patients. Methods: Two virtual simulation sessions covering topics related to Polycystic Ovary Syndrome (PPI-PCOS) and Adrenal conditions (PPI-Adrenal) were organized for clinicians. Nine cases were simulated using anonymized real-life patient data. Members of the general public living with PCOS or Adrenal conditions were recruited from several support groups to undergo a workshop-style discussion to provide their opinions on how representative the cases were and how the management of the condition could be improved. At the end of the simulations, all clinicians and patients were invited to a panel discussion led by expert consultants over Zoom incorporating the summaries from the workshops. Pre- and post-simulation surveys were distributed to measure the change in clinicians’ confidence using Wilcoxon signed-rank test. Thematic analysis was used to identify gaps in knowledge and expectations between clinicians and patients with PCOS or Adrenal conditions. Results: Self-reported confidence by clinicians in the management of PCOS (n=25) and Adrenal conditions (n=23) increased post-simulation (PPI-PCOS simulated:+41.0%, p<0.001; non-simulated:+40.0%, p<0.001. PPI-Adrenal simulated:+22.5% (p=0.0001); non-simulated:+24.0% (p=0.0005)). 90% and 100% of patients agreed PPI-PCOS benefits patients to understand their condition better, and helps clinicians and patients understand each other’s perspectives respectively, whereas this is true for 80% of patients from PPI-Adrenal regarding both aspects. Recurring themes identified through thematic analysis included approach to handling complexities resulting in delayed diagnosis or management, the need for personalized care, lack of information provided to patients with regards to the progression of symptoms, complications or treatment received. Conclusion: PPI-PCOS and PPI-Adrenal were effective in increasing the knowledge and understanding of PCOS and Adrenal conditions for both members of the general public and healthcare professionals. They also helped narrow the gap in knowledge and expectations by exchanging perspectives through a common dialogue. Presentation: Thursday, June 15, 2023 Oxford University Press 2023-10-05 /pmc/articles/PMC10554653/ http://dx.doi.org/10.1210/jendso/bvad114.1527 Text en © The Author(s) 2023. Published by Oxford University Press on behalf of the Endocrine Society. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs licence (https://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial reproduction and distribution of the work, in any medium, provided the original work is not altered or transformed in any way, and that the work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
spellingShingle Reproductive Endocrinology
Pan, Carina S C
Melson, Eka
Ogiliev, Tamzin
Zhou, Dengyi
Ng, Sung Y
Rezai, Fatema
Olateju, Zahra
Radcliffe, Eloise
Balendran, Prashanthan
Radcliffe, Abby
Lau, Gar M
Sheikh, Jameela
Kaur, Harjeet
Cooper, Catherine
Abdelhameed, Farah
Pang, Francesca
Bhatt, Shreya
Shabbir, Dania
Davitadze, Meri
Prete, Alessandro
Ronchi, Cristina L
Bancos, Irina
Chortis, Vasileios
Newell-Price, John D C
Simpson, Helen L
Gleeson, Helena
Manolopoulos, Konstantinos
Chu, Justin
O'Reilly, Michael William
Arlt, Wiebke
Gillett, Caroline
Kempegowda, Punith
THU005 Patient And Public Involvement In Virtual Simulation-based Education Informs And Enhances Clinicians’ Knowledge In Managing Polycystic Ovary Syndrome And Adrenal Conditions
title THU005 Patient And Public Involvement In Virtual Simulation-based Education Informs And Enhances Clinicians’ Knowledge In Managing Polycystic Ovary Syndrome And Adrenal Conditions
title_full THU005 Patient And Public Involvement In Virtual Simulation-based Education Informs And Enhances Clinicians’ Knowledge In Managing Polycystic Ovary Syndrome And Adrenal Conditions
title_fullStr THU005 Patient And Public Involvement In Virtual Simulation-based Education Informs And Enhances Clinicians’ Knowledge In Managing Polycystic Ovary Syndrome And Adrenal Conditions
title_full_unstemmed THU005 Patient And Public Involvement In Virtual Simulation-based Education Informs And Enhances Clinicians’ Knowledge In Managing Polycystic Ovary Syndrome And Adrenal Conditions
title_short THU005 Patient And Public Involvement In Virtual Simulation-based Education Informs And Enhances Clinicians’ Knowledge In Managing Polycystic Ovary Syndrome And Adrenal Conditions
title_sort thu005 patient and public involvement in virtual simulation-based education informs and enhances clinicians’ knowledge in managing polycystic ovary syndrome and adrenal conditions
topic Reproductive Endocrinology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10554653/
http://dx.doi.org/10.1210/jendso/bvad114.1527
work_keys_str_mv AT pancarinasc thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT melsoneka thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT ogilievtamzin thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT zhoudengyi thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT ngsungy thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT rezaifatema thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT olatejuzahra thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT radcliffeeloise thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT balendranprashanthan thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT radcliffeabby thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT laugarm thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT sheikhjameela thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT kaurharjeet thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT coopercatherine thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT abdelhameedfarah thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT pangfrancesca thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT bhattshreya thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT shabbirdania thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT davitadzemeri thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT pretealessandro thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT ronchicristinal thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT bancosirina thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT chortisvasileios thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT newellpricejohndc thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT simpsonhelenl thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT gleesonhelena thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT manolopouloskonstantinos thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT chujustin thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT oreillymichaelwilliam thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT arltwiebke thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT gillettcaroline thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT kempegowdapunith thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions
AT thu005patientandpublicinvolvementinvirtualsimulationbasededucationinformsandenhancescliniciansknowledgeinmanagingpolycysticovarysyndromeandadrenalconditions