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Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study

This study described the challenges, personal goals, and interventions of patients with lymphoma in various domains of life that emerged from an aftercare consultation based on shared decision-making principles with a nurse practitioner. A cross-sectional exploratory design was used with a sample of...

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Autores principales: Friesen-Storms, Jolanda HHM, Quadvlieg-Delnoy, Danny JL, van Kampen, Roel JW, van der Weijden, Trudy, Beekman, Emmylou, Bours, Gerrie JJW, Jie, Kon-Siong G
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10557409/
https://www.ncbi.nlm.nih.gov/pubmed/37811537
http://dx.doi.org/10.1177/23743735231204470
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author Friesen-Storms, Jolanda HHM
Quadvlieg-Delnoy, Danny JL
van Kampen, Roel JW
van der Weijden, Trudy
Beekman, Emmylou
Bours, Gerrie JJW
Jie, Kon-Siong G
author_facet Friesen-Storms, Jolanda HHM
Quadvlieg-Delnoy, Danny JL
van Kampen, Roel JW
van der Weijden, Trudy
Beekman, Emmylou
Bours, Gerrie JJW
Jie, Kon-Siong G
author_sort Friesen-Storms, Jolanda HHM
collection PubMed
description This study described the challenges, personal goals, and interventions of patients with lymphoma in various domains of life that emerged from an aftercare consultation based on shared decision-making principles with a nurse practitioner. A cross-sectional exploratory design was used with a sample of 49 patients. Challenges, goals, and interventions were measured based on 4 domains of life: “my health,” “my activities,” “my environment” and “my own way.” Most challenges were experienced in the domain of “my health,” which included a loss of physical condition, reduced muscle strength, and fatigue. Patients set personal goals related to the experienced challenges, such as restoring physical condition to prediagnosis levels. Accordingly, 45 patients (84%) chose an intervention to improve physical condition and muscle strength and 33 patients (67%) chose to be referred to specialized care.
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spelling pubmed-105574092023-10-07 Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study Friesen-Storms, Jolanda HHM Quadvlieg-Delnoy, Danny JL van Kampen, Roel JW van der Weijden, Trudy Beekman, Emmylou Bours, Gerrie JJW Jie, Kon-Siong G J Patient Exp Research Brief This study described the challenges, personal goals, and interventions of patients with lymphoma in various domains of life that emerged from an aftercare consultation based on shared decision-making principles with a nurse practitioner. A cross-sectional exploratory design was used with a sample of 49 patients. Challenges, goals, and interventions were measured based on 4 domains of life: “my health,” “my activities,” “my environment” and “my own way.” Most challenges were experienced in the domain of “my health,” which included a loss of physical condition, reduced muscle strength, and fatigue. Patients set personal goals related to the experienced challenges, such as restoring physical condition to prediagnosis levels. Accordingly, 45 patients (84%) chose an intervention to improve physical condition and muscle strength and 33 patients (67%) chose to be referred to specialized care. SAGE Publications 2023-10-05 /pmc/articles/PMC10557409/ /pubmed/37811537 http://dx.doi.org/10.1177/23743735231204470 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Research Brief
Friesen-Storms, Jolanda HHM
Quadvlieg-Delnoy, Danny JL
van Kampen, Roel JW
van der Weijden, Trudy
Beekman, Emmylou
Bours, Gerrie JJW
Jie, Kon-Siong G
Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study
title Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study
title_full Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study
title_fullStr Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study
title_full_unstemmed Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study
title_short Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study
title_sort survey of challenges, goals, and interventions for patients with lymphoma during aftercare consultation: an exploratory cross-sectional study
topic Research Brief
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10557409/
https://www.ncbi.nlm.nih.gov/pubmed/37811537
http://dx.doi.org/10.1177/23743735231204470
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