Unmet needs in countries participating in the undiagnosed diseases network international: an international survey considering national health care and economic indicators

BACKGROUND: Patients, families, the healthcare system, and society as a whole are all significantly impacted by rare diseases (RDs). According to various classifications, there are currently up to 9,000 different rare diseases that have been recognized, and new diseases are discovered every month. A...

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Detalles Bibliográficos
Autores principales: Sciascia, Savino, Roccatello, Dario, Salvatore, Marco, Carta, Claudio, Cellai, Laura L., Ferrari, Gianluca, Lumaka, Aimè, Groft, Stephen, Alanay, Yasemin, Azam, Maleeha, Baynam, Gareth, Cederroth, Helene, Cutiongco-de la Paz, Eva Maria, Dissanayake, Vajira Harshadeva Weerabaddana, Giugliani, Roberto, Gonzaga-Jauregui, Claudia, Hettiarachchi, Dineshani, Kvlividze, Oleg, Landoure, Guida, Makay, Prince, Melegh, Béla, Ozbek, Ugur, Puri, Ratna Dua, Romero, Vanessa I., Scaria, Vinod, Jamuar, Saumya S., Shotelersuk, Vorasuk, Gahl, William A., Wiafe, Samuel A., Bodamer, Olaf, Posada, Manuel, Taruscio, Domenica
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Public Health
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10562568/
https://www.ncbi.nlm.nih.gov/pubmed/37822540
http://dx.doi.org/10.3389/fpubh.2023.1248260

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