Cargando…

Young adults’ experiences of living with paediatric acute-onset neuropsychiatric syndrome. An interview study

AIM: This article explores experiential knowledge of living with paediatric acute-onset neuropsychiatric syndrome (PANS), and the factors that are associated with perceived good care. METHODS: Ten people with lived experience of PANS participated, five women and five men aged 19–34. Semi-structured...

Descripción completa

Detalles Bibliográficos
Autor principal:	Schön, Ulla-Karin
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Taylor & Francis 2023
Materias:	Empirical Studies
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10566402/ https://www.ncbi.nlm.nih.gov/pubmed/37816175 http://dx.doi.org/10.1080/17482631.2023.2267268

Ejemplares similares

Understanding parental stress among parents of children with Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) in Sweden
por: Ringer, Noam, et al.
Publicado: (2022)

How do users with comorbidity perceive participation in social services? A qualitative interview study
por: Jones, Amanda, et al.
Publicado: (2021)

Co-creating a process of user involvement and shared decision-making in coordinated care planning with users and caregivers in social services
por: Knutsson, Ola, et al.
Publicado: (2020)

“To be, or not to be”: experiencing deterioration among people with young-onset dementia living alone
por: Johannessen, Aud, et al.
Publicado: (2018)

Held to ransom: Parents of self-harming adults describe their lived experience of professional care and caregivers
por: Lindgren, Britt-Marie, et al.
Publicado: (2010)

Seniors' experiences of living in special housing accommodation
por: Hellberg, Ingela, et al.
Publicado: (2011)

Psychiatric service staff perceptions of implementing a shared decision-making tool: a process evaluation study
por: Schön, Ulla-Karin, et al.
Publicado: (2018)

Communication and engagement as potentiality in everyday life between persons with young onset dementia living in a nursing home and caregivers
por: Fallahpour, Mandana, et al.
Publicado: (2022)

“Sometimes it feels like thinking in syrup” – the experience of losing sense of self in those with young onset dementia
por: Busted, Laila Mohrsen, et al.
Publicado: (2020)

Patients’ experiences of the BetterBack model of care for low back pain in primary care – a qualitative interview study
por: Enthoven, Paul, et al.
Publicado: (2021)

The lived experiences of work and health of people living with deaf-blindness due to Usher syndrome type 2
por: Ehn, Mattias, et al.
Publicado: (2020)

Elderly women's experiences of support when living with congestive heart failure
por: Sundin, Karin, et al.
Publicado: (2010)

The patient’s experience of participation when admitted for elective surgical procedures: an interview study
por: Unbeck, Maria, et al.
Publicado: (2023)

‘Everything’s from the inside out with PCOS’: Exploring women’s experiences of living with polycystic ovary syndrome and co-morbidities through Skype™ interviews
por: Williams, Sophie, et al.
Publicado: (2015)

Dietary strategies and food practices of pediatric patients, and their parents, living with inflammatory bowel disease: a qualitative interview study
por: Chuong, Kim H., et al.
Publicado: (2019)

Living with obesity — existential experiences
por: Ueland, Venke, et al.
Publicado: (2019)

‘They don't understand…you cut yourself in order to live.’ Interpretative repertoires jointly constructing interactions between adult women who self-harm and professional caregivers.
por: Lindgren, Britt-Marie, et al.
Publicado: (2011)

Factors related to suicide’s unpredictability: a qualitative study of adults with lived experience of suicide attempts
por: Krychiw, Jacqueline K., et al.
Publicado: (2019)

Manoeuvring between anxiety and control: Patients’ experience of learning to live with diabetes: A lifeworld phenomenological study
por: Johansson, Karin, et al.
Publicado: (2015)

Experiences with physical activity, health and well-being among young adults with serious mental illness
por: Hovland, Jan Freddy, et al.
Publicado: (2023)

Perceptions and meanings of living with Parkinson’s disease: an account of caregivers lived experiences
por: Bhasin, Supreet Kaur, et al.
Publicado: (2021)

Patients’ experiences of support for learning to live with diabetes to promote health and well-being: A lifeworld phenomenological study
por: Johansson, Karin, et al.
Publicado: (2016)

Online interviewing with interpreters in humanitarian contexts
por: Chiumento, Anna, et al.
Publicado: (2018)

‘Nobody comes to help us’: lived experiences and needs of older adults who lost their only child in China
por: Ning, Ni, et al.
Publicado: (2022)

The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease
por: Savarese, Livia, et al.
Publicado: (2020)

Appetite and falls: Old age and lived experiences
por: Mahler, Marianne, et al.
Publicado: (2012)

Parents’ lived experience of living with and caring for their burn-injured child in a home setting
por: Lernevall, Lina Sophie Toft, et al.
Publicado: (2023)

Development of salutogenic coping skills: experiences with daily challenges among young adults suffering from serious mental illness
por: Hovland, Jan-Freddy, et al.
Publicado: (2021)

Awareness of demands and unfairness and the importance of connectedness and security: Teenage girls’ lived experiences of their everyday lives
por: Einberg, Eva-Lena, et al.
Publicado: (2015)

The Lived Experience of Critically-Ill Muslim Patients in Isolation
por: Eqylan, Sondos B., et al.
Publicado: (2022)

A shifting sense of being: A secondary analysis and comparison of two qualitative studies on young-onset dementia
por: Johannessen, Aud, et al.
Publicado: (2014)

Holding space and transitional space: stroke survivors’ lived experience of being on an acute stroke unit. A hermeneutic phenomenological study
por: Suddick, Kitty M., et al.
Publicado: (2020)

The lived experiences of resilience in Iranian adolescents living in residential care facilities: A hermeneutic phenomenological study
por: Nourian, Manijeh, et al.
Publicado: (2016)

Issues experienced while administering care to patients with dementia in acute care hospitals: A study based on focus group interviews
por: Fukuda, Risa, et al.
Publicado: (2015)

Feeling existentially touched – A phenomenological notion of the well-being of elderly living in special housing accommodation from the perspective of care professionals
por: Lundin, Anette, et al.
Publicado: (2013)

Living with clipped wings—Patients’ experience of losing a leg
por: Norlyk, Annelise, et al.
Publicado: (2013)

The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica
por: Forrester, Andrea Brown, et al.
Publicado: (2015)

The lived experience of well-being in retirement: A phenomenological study
por: Bauger, Lars, et al.
Publicado: (2016)

Lived experience of infertility among Hong Kong Chinese women
por: Tiu, Mimi MH, et al.
Publicado: (2018)

Living with Parkinson’s disease: disease and medication experiences of patients and caregivers
por: Chen, Yi-Wen, et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_sei58gp0gsma6lkgs54l8mnkol