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Involving patients in healthcare research is well documented but can it work in lab-based research?
Public and Patient Involvement in research is becoming a requirement on most research funding applications; this includes both healthcare and lab-based research. Whilst case studies and practical guides have been developed and are well documented for PPI in healthcare research, there is very little...
Autores principales: | , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10568930/ https://www.ncbi.nlm.nih.gov/pubmed/37821914 http://dx.doi.org/10.1186/s40900-023-00500-y |
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author | Connor, Adele E. Hughes, Claire Schäfer, Lea McNally, Lorraine Raw, Deirdre O’ Bahramian, Katayoun Carr, Bridget Dunne, Ingrid Halligan Lysaght, Joanne Toole, Sharon A. O’ Simpson, Jeremy C. Perry, Antoinette S. |
author_facet | Connor, Adele E. Hughes, Claire Schäfer, Lea McNally, Lorraine Raw, Deirdre O’ Bahramian, Katayoun Carr, Bridget Dunne, Ingrid Halligan Lysaght, Joanne Toole, Sharon A. O’ Simpson, Jeremy C. Perry, Antoinette S. |
author_sort | Connor, Adele E. |
collection | PubMed |
description | Public and Patient Involvement in research is becoming a requirement on most research funding applications; this includes both healthcare and lab-based research. Whilst case studies and practical guides have been developed and are well documented for PPI in healthcare research, there is very little guidance available for PPI in lab-based research. In this piece we discuss our experience of how we have successfully involved patients in our translational cancer research, which is focused on developing personalised treatment for high-grade serous ovarian cancer. We discuss the benefits it has made to both our research and to us as researchers. The patients involved write about their experience, what they enjoyed, and the benefits they felt. Although PPI is quite topical and is being widely discussed, there is hesitancy among researchers, especially those in lab-based research about getting started because of a lack of practical guidance about how to implement it. Here, we have shared our experience, hopefully providing a practical example of how PPI can be incorporated into a lab-based research project. |
format | Online Article Text |
id | pubmed-10568930 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-105689302023-10-13 Involving patients in healthcare research is well documented but can it work in lab-based research? Connor, Adele E. Hughes, Claire Schäfer, Lea McNally, Lorraine Raw, Deirdre O’ Bahramian, Katayoun Carr, Bridget Dunne, Ingrid Halligan Lysaght, Joanne Toole, Sharon A. O’ Simpson, Jeremy C. Perry, Antoinette S. Res Involv Engagem Comment Public and Patient Involvement in research is becoming a requirement on most research funding applications; this includes both healthcare and lab-based research. Whilst case studies and practical guides have been developed and are well documented for PPI in healthcare research, there is very little guidance available for PPI in lab-based research. In this piece we discuss our experience of how we have successfully involved patients in our translational cancer research, which is focused on developing personalised treatment for high-grade serous ovarian cancer. We discuss the benefits it has made to both our research and to us as researchers. The patients involved write about their experience, what they enjoyed, and the benefits they felt. Although PPI is quite topical and is being widely discussed, there is hesitancy among researchers, especially those in lab-based research about getting started because of a lack of practical guidance about how to implement it. Here, we have shared our experience, hopefully providing a practical example of how PPI can be incorporated into a lab-based research project. BioMed Central 2023-10-12 /pmc/articles/PMC10568930/ /pubmed/37821914 http://dx.doi.org/10.1186/s40900-023-00500-y Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Comment Connor, Adele E. Hughes, Claire Schäfer, Lea McNally, Lorraine Raw, Deirdre O’ Bahramian, Katayoun Carr, Bridget Dunne, Ingrid Halligan Lysaght, Joanne Toole, Sharon A. O’ Simpson, Jeremy C. Perry, Antoinette S. Involving patients in healthcare research is well documented but can it work in lab-based research? |
title | Involving patients in healthcare research is well documented but can it work in lab-based research? |
title_full | Involving patients in healthcare research is well documented but can it work in lab-based research? |
title_fullStr | Involving patients in healthcare research is well documented but can it work in lab-based research? |
title_full_unstemmed | Involving patients in healthcare research is well documented but can it work in lab-based research? |
title_short | Involving patients in healthcare research is well documented but can it work in lab-based research? |
title_sort | involving patients in healthcare research is well documented but can it work in lab-based research? |
topic | Comment |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10568930/ https://www.ncbi.nlm.nih.gov/pubmed/37821914 http://dx.doi.org/10.1186/s40900-023-00500-y |
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