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Involving patients in healthcare research is well documented but can it work in lab-based research?

Public and Patient Involvement in research is becoming a requirement on most research funding applications; this includes both healthcare and lab-based research. Whilst case studies and practical guides have been developed and are well documented for PPI in healthcare research, there is very little...

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Autores principales: Connor, Adele E., Hughes, Claire, Schäfer, Lea, McNally, Lorraine, Raw, Deirdre O’, Bahramian, Katayoun, Carr, Bridget, Dunne, Ingrid Halligan, Lysaght, Joanne, Toole, Sharon A. O’, Simpson, Jeremy C., Perry, Antoinette S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10568930/
https://www.ncbi.nlm.nih.gov/pubmed/37821914
http://dx.doi.org/10.1186/s40900-023-00500-y
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author Connor, Adele E.
Hughes, Claire
Schäfer, Lea
McNally, Lorraine
Raw, Deirdre O’
Bahramian, Katayoun
Carr, Bridget
Dunne, Ingrid Halligan
Lysaght, Joanne
Toole, Sharon A. O’
Simpson, Jeremy C.
Perry, Antoinette S.
author_facet Connor, Adele E.
Hughes, Claire
Schäfer, Lea
McNally, Lorraine
Raw, Deirdre O’
Bahramian, Katayoun
Carr, Bridget
Dunne, Ingrid Halligan
Lysaght, Joanne
Toole, Sharon A. O’
Simpson, Jeremy C.
Perry, Antoinette S.
author_sort Connor, Adele E.
collection PubMed
description Public and Patient Involvement in research is becoming a requirement on most research funding applications; this includes both healthcare and lab-based research. Whilst case studies and practical guides have been developed and are well documented for PPI in healthcare research, there is very little guidance available for PPI in lab-based research. In this piece we discuss our experience of how we have successfully involved patients in our translational cancer research, which is focused on developing personalised treatment for high-grade serous ovarian cancer. We discuss the benefits it has made to both our research and to us as researchers. The patients involved write about their experience, what they enjoyed, and the benefits they felt. Although PPI is quite topical and is being widely discussed, there is hesitancy among researchers, especially those in lab-based research about getting started because of a lack of practical guidance about how to implement it. Here, we have shared our experience, hopefully providing a practical example of how PPI can be incorporated into a lab-based research project.
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spelling pubmed-105689302023-10-13 Involving patients in healthcare research is well documented but can it work in lab-based research? Connor, Adele E. Hughes, Claire Schäfer, Lea McNally, Lorraine Raw, Deirdre O’ Bahramian, Katayoun Carr, Bridget Dunne, Ingrid Halligan Lysaght, Joanne Toole, Sharon A. O’ Simpson, Jeremy C. Perry, Antoinette S. Res Involv Engagem Comment Public and Patient Involvement in research is becoming a requirement on most research funding applications; this includes both healthcare and lab-based research. Whilst case studies and practical guides have been developed and are well documented for PPI in healthcare research, there is very little guidance available for PPI in lab-based research. In this piece we discuss our experience of how we have successfully involved patients in our translational cancer research, which is focused on developing personalised treatment for high-grade serous ovarian cancer. We discuss the benefits it has made to both our research and to us as researchers. The patients involved write about their experience, what they enjoyed, and the benefits they felt. Although PPI is quite topical and is being widely discussed, there is hesitancy among researchers, especially those in lab-based research about getting started because of a lack of practical guidance about how to implement it. Here, we have shared our experience, hopefully providing a practical example of how PPI can be incorporated into a lab-based research project. BioMed Central 2023-10-12 /pmc/articles/PMC10568930/ /pubmed/37821914 http://dx.doi.org/10.1186/s40900-023-00500-y Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Comment
Connor, Adele E.
Hughes, Claire
Schäfer, Lea
McNally, Lorraine
Raw, Deirdre O’
Bahramian, Katayoun
Carr, Bridget
Dunne, Ingrid Halligan
Lysaght, Joanne
Toole, Sharon A. O’
Simpson, Jeremy C.
Perry, Antoinette S.
Involving patients in healthcare research is well documented but can it work in lab-based research?
title Involving patients in healthcare research is well documented but can it work in lab-based research?
title_full Involving patients in healthcare research is well documented but can it work in lab-based research?
title_fullStr Involving patients in healthcare research is well documented but can it work in lab-based research?
title_full_unstemmed Involving patients in healthcare research is well documented but can it work in lab-based research?
title_short Involving patients in healthcare research is well documented but can it work in lab-based research?
title_sort involving patients in healthcare research is well documented but can it work in lab-based research?
topic Comment
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10568930/
https://www.ncbi.nlm.nih.gov/pubmed/37821914
http://dx.doi.org/10.1186/s40900-023-00500-y
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