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Personalized Technological Support for Informal Caregivers of Older People with Dementia: A Co-Design Approach Involving Potential End Users and Healthcare Professionals in Three Focus Groups in Italy

Informal/family caregivers (ICs) of older people with dementia (PwD) can suffer from depression and burnout. However, digital solutions can potentially provide innovative ways to facilitate care provision. The aim of this study was to analyze the opinions of end users (EUs), i.e., PwD aged 65 years...

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Autores principales: Gris, Francesca, D’Amen, Barbara, Lamura, Giovanni, Paciaroni, Lucia, Socci, Marco, Melchiorre, Maria Gabriella
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10572801/
https://www.ncbi.nlm.nih.gov/pubmed/37830677
http://dx.doi.org/10.3390/healthcare11192640
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author Gris, Francesca
D’Amen, Barbara
Lamura, Giovanni
Paciaroni, Lucia
Socci, Marco
Melchiorre, Maria Gabriella
author_facet Gris, Francesca
D’Amen, Barbara
Lamura, Giovanni
Paciaroni, Lucia
Socci, Marco
Melchiorre, Maria Gabriella
author_sort Gris, Francesca
collection PubMed
description Informal/family caregivers (ICs) of older people with dementia (PwD) can suffer from depression and burnout. However, digital solutions can potentially provide innovative ways to facilitate care provision. The aim of this study was to analyze the opinions of end users (EUs), i.e., PwD aged 65 years and over and their ICs and healthcare professionals (HPs), on the use of digital technology to support care activities. Qualitative data were collected during the co-design phase of the European project “DemiCare—Personalized support for informal caregivers of people with dementia”. This study focused on the Italian context and included two PwD, three ICs, and seven HPs. Three focus groups were held in April–June 2022. Qualitative data were analyzed using MaxQDA 2020 software. Seven thematic areas were identified: daily activities, care tasks, information needs, support received, relationship with and expectations from technology, functionality of the DemiCare integrated system, and ethical issues. Smart devices seemed to be received positively by ICs and HPs, although older PwD seemed to have difficulty accepting the technology. Overall, despite the low number of participants, it seems important and potentially effective to consider the needs and preferences of PwD during exploratory co-design to allow social interactions with them. This study was not registered.
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spelling pubmed-105728012023-10-14 Personalized Technological Support for Informal Caregivers of Older People with Dementia: A Co-Design Approach Involving Potential End Users and Healthcare Professionals in Three Focus Groups in Italy Gris, Francesca D’Amen, Barbara Lamura, Giovanni Paciaroni, Lucia Socci, Marco Melchiorre, Maria Gabriella Healthcare (Basel) Article Informal/family caregivers (ICs) of older people with dementia (PwD) can suffer from depression and burnout. However, digital solutions can potentially provide innovative ways to facilitate care provision. The aim of this study was to analyze the opinions of end users (EUs), i.e., PwD aged 65 years and over and their ICs and healthcare professionals (HPs), on the use of digital technology to support care activities. Qualitative data were collected during the co-design phase of the European project “DemiCare—Personalized support for informal caregivers of people with dementia”. This study focused on the Italian context and included two PwD, three ICs, and seven HPs. Three focus groups were held in April–June 2022. Qualitative data were analyzed using MaxQDA 2020 software. Seven thematic areas were identified: daily activities, care tasks, information needs, support received, relationship with and expectations from technology, functionality of the DemiCare integrated system, and ethical issues. Smart devices seemed to be received positively by ICs and HPs, although older PwD seemed to have difficulty accepting the technology. Overall, despite the low number of participants, it seems important and potentially effective to consider the needs and preferences of PwD during exploratory co-design to allow social interactions with them. This study was not registered. MDPI 2023-09-28 /pmc/articles/PMC10572801/ /pubmed/37830677 http://dx.doi.org/10.3390/healthcare11192640 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Gris, Francesca
D’Amen, Barbara
Lamura, Giovanni
Paciaroni, Lucia
Socci, Marco
Melchiorre, Maria Gabriella
Personalized Technological Support for Informal Caregivers of Older People with Dementia: A Co-Design Approach Involving Potential End Users and Healthcare Professionals in Three Focus Groups in Italy
title Personalized Technological Support for Informal Caregivers of Older People with Dementia: A Co-Design Approach Involving Potential End Users and Healthcare Professionals in Three Focus Groups in Italy
title_full Personalized Technological Support for Informal Caregivers of Older People with Dementia: A Co-Design Approach Involving Potential End Users and Healthcare Professionals in Three Focus Groups in Italy
title_fullStr Personalized Technological Support for Informal Caregivers of Older People with Dementia: A Co-Design Approach Involving Potential End Users and Healthcare Professionals in Three Focus Groups in Italy
title_full_unstemmed Personalized Technological Support for Informal Caregivers of Older People with Dementia: A Co-Design Approach Involving Potential End Users and Healthcare Professionals in Three Focus Groups in Italy
title_short Personalized Technological Support for Informal Caregivers of Older People with Dementia: A Co-Design Approach Involving Potential End Users and Healthcare Professionals in Three Focus Groups in Italy
title_sort personalized technological support for informal caregivers of older people with dementia: a co-design approach involving potential end users and healthcare professionals in three focus groups in italy
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10572801/
https://www.ncbi.nlm.nih.gov/pubmed/37830677
http://dx.doi.org/10.3390/healthcare11192640
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