Patient-relevant health outcomes for von Willebrand disease, platelet function disorders, and rare bleeding disorders: a Delphi study

BACKGROUND: To assess patient value, it is essential to regularly measure health outcomes that matter to patients. It is currently unknown which health outcomes are important for patients with autosomal inherited bleeding disorders. OBJECTIVES: This study aimed to assess which health outcomes are im...

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Detalles Bibliográficos
Autores principales: van Hoorn, Evelien S., Lingsma, Hester F., Cnossen, Marjon H., Gouw, Samantha C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2023
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10579528/
https://www.ncbi.nlm.nih.gov/pubmed/37854454
http://dx.doi.org/10.1016/j.rpth.2023.102201

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