Cargando…

Ethical and coordinative challenges in setting up a national cohort study during the COVID-19 pandemic in Germany

With the outbreak of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), global researchers were confronted with major challenges. The German National Pandemic Cohort Network (NAPKON) was launched in fall 2020 to effectively leverage resources and bundle research activities in the fight ag...

Descripción completa

Detalles Bibliográficos
Autores principales:	Tilch, Katharina, Hopff, Sina M., Appel, Katharina, Kraus, Monika, Lorenz-Depiereux, Bettina, Pilgram, Lisa, Anton, Gabi, Berger, Sarah, Geisler, Ramsia, Haas, Kirsten, Illig, Thomas, Krefting, Dagmar, Lorbeer, Roberto, Mitrov, Lazar, Muenchhoff, Maximilian, Nauck, Matthias, Pley, Christina, Reese, Jens-Peter, Rieg, Siegbert, Scherer, Margarete, Stecher, Melanie, Stellbrink, Christoph, Valentin, Heike, Winter, Christof, Witzenrath, Martin, Vehreschild, J. Janne
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2023
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10583323/ https://www.ncbi.nlm.nih.gov/pubmed/37848886 http://dx.doi.org/10.1186/s12910-023-00959-0

Ejemplares similares

Consistency as a Data Quality Measure for German Corona Consensus Items Mapped from National Pandemic Cohort Network Data Collections
por: Yusuf, Khalid O., et al.
Publicado: (2023)

The German National Pandemic Cohort Network (NAPKON): rationale, study design and baseline characteristics
por: Schons, Maximilian, et al.
Publicado: (2022)

Specific Risk Factors for Fatal Outcome in Critically Ill COVID-19 Patients: Results from a European Multicenter Study
por: Meintrup, David, et al.
Publicado: (2021)

1886. External Validation of the 4C Mortality Score and the qSOFA for Different Variants of Concerns of SARS-CoV-2 Using Data of the NAPKON Cross-Sectoral Cohort Platform (SUEP)
por: Appel, Katharina S, et al.
Publicado: (2022)

Persistent symptoms and risk factors predicting prolonged time to symptom-free after SARS‑CoV‑2 infection: an analysis of the baseline examination of the German COVIDOM/NAPKON-POP cohort
por: Shi, Yanyan, et al.
Publicado: (2023)

Age and Comorbidity Burden of Patients Critically Ill with COVID-19 Affect Both Access to and Outcome of Ventilation Therapy in Intensive Care Units
por: de Hesselle, Marie Louise, et al.
Publicado: (2023)

Hospitalized patients dying with SARS-CoV-2 infection—An analysis of patient characteristics and management in ICU and general ward of the LEOSS registry
por: Raichle, Claudia, et al.
Publicado: (2022)

Prediction of COVID-19 deterioration in high-risk patients at diagnosis: an early warning score for advanced COVID-19 developed by machine learning
por: Jakob, Carolin E. M., et al.
Publicado: (2021)

The Biosurfactant β-Aescin: A Review on the Physico-Chemical Properties and Its Interaction with Lipid Model Membranes and Langmuir Monolayers
por: Geisler, Ramsia, et al.
Publicado: (2019)

Use and effectiveness of remdesivir for the treatment of patients with covid-19 using data from the Lean European Open Survey on SARS-CoV-2 infected patients (LEOSS): a multicentre cohort study
por: Pilgram, Lisa, et al.
Publicado: (2023)

Statistical biases due to anonymization evaluated in an open clinical dataset from COVID-19 patients
por: Koll, Carolin E. M., et al.
Publicado: (2022)

Antibiotic Stewardship (ABS) im Kontext schwerer Infektionen
por: Giesen, Roland, et al.
Publicado: (2022)

Clinical course and predictive risk factors for fatal outcome of SARS-CoV-2 infection in patients with chronic kidney disease
por: Pilgram, Lisa, et al.
Publicado: (2021)

Shape and Structure Formation of Mixed Nonionic–Anionic Surfactant Micelles
por: Ludwig, Michael, et al.
Publicado: (2021)

Covid-19 triage in the emergency department 2.0: how analytics and AI transform a human-made algorithm for the prediction of clinical pathways
por: Bartenschlager, Christina C., et al.
Publicado: (2023)

Response to Invited Commentary “Undoubtedly, kidney transplant recipients have a higher mortality due to COVID‐19 disease compared to the general population”
por: Hugo, Christian, et al.
Publicado: (2021)

Angiotensin II receptor blocker intake associates with reduced markers of inflammatory activation and decreased mortality in patients with cardiovascular comorbidities and COVID-19 disease
por: Cremer, Sebastian, et al.
Publicado: (2021)

Elevated markers of thrombo-inflammatory activation predict outcome in patients with cardiovascular comorbidities and COVID-19 disease: insights from the LEOSS registry
por: Cremer, Sebastian, et al.
Publicado: (2020)

Model Surfaces for Paper Fibers Prepared from Carboxymethyl Cellulose and Polycations
por: Lux, Cassia, et al.
Publicado: (2021)

Staphylococcus aureus bacteremia with iliac artery endarteritis in a patient receiving ustekinumab
por: Joost, Insa, et al.
Publicado: (2016)

Effects and feasibility of an Integrative Medicine program for geriatric patients–a cluster-randomized pilot study
por: Teut, Michael, et al.
Publicado: (2013)

Invasiveness of Ventilation Therapy Is Associated to Prevalence of Secondary Bacterial and Fungal Infections in Critically Ill COVID-19 Patients
por: de Hesselle, Marie Louise, et al.
Publicado: (2022)

Prevention of post-splenectomy sepsis in patients with asplenia - a study protocol of a controlled trial
por: Bayrhuber, Marianne, et al.
Publicado: (2020)

Already current practice? A snapshot survey on doxycycline use for prevention of sexually transmitted infections in parts of the German MSM community
por: Hornuss, Daniel, et al.
Publicado: (2023)

Corrigendum to “Machine Learning Based Prediction of COVID-19 Mortality Suggests Repositioning of Anticancer Drug for Treating Severe Cases”[Artificial Intelligence in Life Sciences] 1(2021), 100020
por: Linden, Thomas, et al.
Publicado: (2022)

Machine Learning Based Prediction of COVID-19 Mortality Suggests Repositioning of Anticancer Drug for Treating Severe Cases
por: Linden, Thomas, et al.
Publicado: (2021)

Extracorporeal membrane oxygenation in Pneumocystis jirovecii pneumonia: outcome in HIV and non-HIV patients
por: Rilinger, Jonathan, et al.
Publicado: (2019)

Patients’ with asplenia and doctors’ experiences in implementing preventative measures following a novel educational intervention: a qualitative analysis
por: Anka, Natascha, et al.
Publicado: (2022)

Effect of Clinically Uninfected Orthopedic Implants and Pacemakers/AICDs in Low-Risk Staphylococcus aureus Bloodstream Infection on Crude Mortality Rate: A Post Hoc Analysis of a Large Cohort Study
por: Kaasch, Achim J, et al.
Publicado: (2019)

Enterococcus faecalis bloodstream infection: does infectious disease specialist consultation make a difference?
por: Cattaneo, Chiara, et al.
Publicado: (2021)

Long-term follow-up after introduction of a systematic sexually transmitted infection screening program for men having sex with men living with HIV in a primary care setting: uptake, STI incidence, and risk factors for infection and reinfection
por: Mathé, Philipp J. G., et al.
Publicado: (2022)

COVID-19 in-hospital mortality and mode of death in a dynamic and non-restricted tertiary care model in Germany
por: Rieg, Siegbert, et al.
Publicado: (2020)

Stable DOPG/Glycyrrhizin Vesicles with a Wide Range of Mixing Ratios: Structure and Stability as Seen by Scattering Experiments and Cryo-TEM
por: Dargel, Carina, et al.
Publicado: (2021)

Tick-borne lymphadenopathy (TIBOLA) acquired in Southwestern Germany
por: Rieg, Siegbert, et al.
Publicado: (2011)

Differential activity of innate defense antimicrobial peptides against Nocardia species
por: Rieg, Siegbert, et al.
Publicado: (2010)

Intestinal decolonization of Enterobacteriaceae producing extended-spectrum β-lactamases (ESBL): a retrospective observational study in patients at risk for infection and a brief review of the literature
por: Rieg, Siegbert, et al.
Publicado: (2015)

Case Report and Genetic Sequence Analysis of Candidatus Borrelia kalaharica, Southern Africa
por: Stete, Katarina, et al.
Publicado: (2018)

Efficacy of a novel patient-focused intervention aimed at increasing adherence to guideline-based preventive measures in asplenic patients: the PrePSS trial
por: Camp, Johannes, et al.
Publicado: (2023)

Does Printing Orientation Matter? In-Vitro Fracture Strength of Temporary Fixed Dental Prostheses after a 1-Year Simulation in the Artificial Mouth
por: Nold, Julian, et al.
Publicado: (2021)

Antimicrobial Stewardship with and without Infectious Diseases Specialist Services to Improve Quality-of-Care in Secondary and Tertiary Care Hospitals in Germany: Study Protocol of the ID ROLL OUT Study
por: Zimmermann, Nicole, et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_taheqcpk86ei36iiudhsvg4g66