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Parental Intervention Program for Preschool children with Rare Diseases – a mixed methods evaluation of parents’ experiences and utility

BACKGROUND: The purpose of this study was twofold: (i) To assess the parents’ experiences and perception of participating in a “Parental Intervention Program for Preschool children with Rare Diseases” (PIPP-RDs). (ii) To evaluate which elements of the PIPP-RDs that the parents emphasized as importan...

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Detalles Bibliográficos
Autores principales:	Velvin, Gry, Johnsen, Vigdis, Lidal, Ingeborg Beate, Berg, Ellen
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2023
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10583464/ https://www.ncbi.nlm.nih.gov/pubmed/37848938 http://dx.doi.org/10.1186/s13023-023-02935-8

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