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functional outcome in late adolescence/early adulthood of patients with autism spectrum disorder and its relationships with parental burnout and depression: A preliminary multi-center, cross-sectional study

The aim of this study is to determine the functioning of adults with autism spectrum disorders (ASDs) diagnosed in childhood and depression and burnout levels among their parents. A total of 261 adults with ASDs and their parents were recruited for the study. Both parents completed the Beck Depressi...

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Autores principales: Kutuk, Meryem Ozlem, Tufan, Ali Evren, Kilicaslan, Fethiye, Vural, Pınar, Gokcen, Cem, Alsen Guney, Sevay, Kutuk, Bahtim, Ozyurt, Gonca, Inal, Neslihan, Mutluer, Tuba, Acikalin, Eren Yavuz, Ozer, Fadime Hande, Pamuk, Esma Nur, Yesilmese, Seyma Celikcan, Karadag, Mehmet, Hangul, Zehra, Bilginer, Cilem, Sahin, Nilfer, Bilac, Oznur, Kandemir, Hasan, Ercan, Eyup Sabri, Eseroglu Soylemez, Tugba, Acikel, Sadettin Burak, Guler Aksu, Gulen, Dag, Pelin, Toros, Fevziye, Mutlu, Caner, Kardas, Omer, Kardas, Burcu, Kizildag, Suleyman, Demirci, Esra, Ozmen, Sevgi, Sevicin, Leyla, Karagoz, Yuksel Sumeyra, Isik, Umit, Aktepe, Evrim, Altun, Hatice, Yektas, Çigdem, Polat Tuysuz, Berna, Buber, Ahmet, Cansiz, Mehmet Akif, Ogutlu, Hakan, Eray, Safak, Taner, Hande Ayraler, Altintas, Ebru, Kutuk, Ozgur
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10589842/
https://www.ncbi.nlm.nih.gov/pubmed/37867841
http://dx.doi.org/10.1016/j.heliyon.2023.e20766
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author Kutuk, Meryem Ozlem
Tufan, Ali Evren
Kilicaslan, Fethiye
Vural, Pınar
Gokcen, Cem
Alsen Guney, Sevay
Kutuk, Bahtim
Ozyurt, Gonca
Inal, Neslihan
Mutluer, Tuba
Acikalin, Eren Yavuz
Ozer, Fadime Hande
Pamuk, Esma Nur
Yesilmese, Seyma Celikcan
Karadag, Mehmet
Hangul, Zehra
Bilginer, Cilem
Sahin, Nilfer
Bilac, Oznur
Kandemir, Hasan
Ercan, Eyup Sabri
Eseroglu Soylemez, Tugba
Acikel, Sadettin Burak
Guler Aksu, Gulen
Dag, Pelin
Toros, Fevziye
Mutlu, Caner
Kardas, Omer
Kardas, Burcu
Kizildag, Suleyman
Demirci, Esra
Ozmen, Sevgi
Sevicin, Leyla
Karagoz, Yuksel Sumeyra
Isik, Umit
Aktepe, Evrim
Altun, Hatice
Yektas, Çigdem
Polat Tuysuz, Berna
Buber, Ahmet
Cansiz, Mehmet Akif
Ogutlu, Hakan
Eray, Safak
Taner, Hande Ayraler
Altintas, Ebru
Kutuk, Ozgur
author_facet Kutuk, Meryem Ozlem
Tufan, Ali Evren
Kilicaslan, Fethiye
Vural, Pınar
Gokcen, Cem
Alsen Guney, Sevay
Kutuk, Bahtim
Ozyurt, Gonca
Inal, Neslihan
Mutluer, Tuba
Acikalin, Eren Yavuz
Ozer, Fadime Hande
Pamuk, Esma Nur
Yesilmese, Seyma Celikcan
Karadag, Mehmet
Hangul, Zehra
Bilginer, Cilem
Sahin, Nilfer
Bilac, Oznur
Kandemir, Hasan
Ercan, Eyup Sabri
Eseroglu Soylemez, Tugba
Acikel, Sadettin Burak
Guler Aksu, Gulen
Dag, Pelin
Toros, Fevziye
Mutlu, Caner
Kardas, Omer
Kardas, Burcu
Kizildag, Suleyman
Demirci, Esra
Ozmen, Sevgi
Sevicin, Leyla
Karagoz, Yuksel Sumeyra
Isik, Umit
Aktepe, Evrim
Altun, Hatice
Yektas, Çigdem
Polat Tuysuz, Berna
Buber, Ahmet
Cansiz, Mehmet Akif
Ogutlu, Hakan
Eray, Safak
Taner, Hande Ayraler
Altintas, Ebru
Kutuk, Ozgur
author_sort Kutuk, Meryem Ozlem
collection PubMed
description The aim of this study is to determine the functioning of adults with autism spectrum disorders (ASDs) diagnosed in childhood and depression and burnout levels among their parents. A total of 261 adults with ASDs and their parents were recruited for the study. Both parents completed the Beck Depression and Maslach Burnout Inventories and reported the functioning of their adult offspring with ASDs. Only 5.4 % of our sample reported “good” or “very good” outcomes. The most common psychiatric comorbidities were intellectual disabilities and attention-deficit/hyperactivity disorder. Maternal burnout and depression scores were significantly elevated compared to those of fathers. There is an undeniable urgent need for more research to identify the needs of adults and families suffering from ASD. Modifications for those with 10.13039/100007726ASD may have to be made for support in workplaces, achieving driving licenses, using public transportation and attendance at tertiary education.
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spelling pubmed-105898422023-10-22 functional outcome in late adolescence/early adulthood of patients with autism spectrum disorder and its relationships with parental burnout and depression: A preliminary multi-center, cross-sectional study Kutuk, Meryem Ozlem Tufan, Ali Evren Kilicaslan, Fethiye Vural, Pınar Gokcen, Cem Alsen Guney, Sevay Kutuk, Bahtim Ozyurt, Gonca Inal, Neslihan Mutluer, Tuba Acikalin, Eren Yavuz Ozer, Fadime Hande Pamuk, Esma Nur Yesilmese, Seyma Celikcan Karadag, Mehmet Hangul, Zehra Bilginer, Cilem Sahin, Nilfer Bilac, Oznur Kandemir, Hasan Ercan, Eyup Sabri Eseroglu Soylemez, Tugba Acikel, Sadettin Burak Guler Aksu, Gulen Dag, Pelin Toros, Fevziye Mutlu, Caner Kardas, Omer Kardas, Burcu Kizildag, Suleyman Demirci, Esra Ozmen, Sevgi Sevicin, Leyla Karagoz, Yuksel Sumeyra Isik, Umit Aktepe, Evrim Altun, Hatice Yektas, Çigdem Polat Tuysuz, Berna Buber, Ahmet Cansiz, Mehmet Akif Ogutlu, Hakan Eray, Safak Taner, Hande Ayraler Altintas, Ebru Kutuk, Ozgur Heliyon Research Article The aim of this study is to determine the functioning of adults with autism spectrum disorders (ASDs) diagnosed in childhood and depression and burnout levels among their parents. A total of 261 adults with ASDs and their parents were recruited for the study. Both parents completed the Beck Depression and Maslach Burnout Inventories and reported the functioning of their adult offspring with ASDs. Only 5.4 % of our sample reported “good” or “very good” outcomes. The most common psychiatric comorbidities were intellectual disabilities and attention-deficit/hyperactivity disorder. Maternal burnout and depression scores were significantly elevated compared to those of fathers. There is an undeniable urgent need for more research to identify the needs of adults and families suffering from ASD. Modifications for those with 10.13039/100007726ASD may have to be made for support in workplaces, achieving driving licenses, using public transportation and attendance at tertiary education. Elsevier 2023-10-12 /pmc/articles/PMC10589842/ /pubmed/37867841 http://dx.doi.org/10.1016/j.heliyon.2023.e20766 Text en © 2023 The Authors https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
spellingShingle Research Article
Kutuk, Meryem Ozlem
Tufan, Ali Evren
Kilicaslan, Fethiye
Vural, Pınar
Gokcen, Cem
Alsen Guney, Sevay
Kutuk, Bahtim
Ozyurt, Gonca
Inal, Neslihan
Mutluer, Tuba
Acikalin, Eren Yavuz
Ozer, Fadime Hande
Pamuk, Esma Nur
Yesilmese, Seyma Celikcan
Karadag, Mehmet
Hangul, Zehra
Bilginer, Cilem
Sahin, Nilfer
Bilac, Oznur
Kandemir, Hasan
Ercan, Eyup Sabri
Eseroglu Soylemez, Tugba
Acikel, Sadettin Burak
Guler Aksu, Gulen
Dag, Pelin
Toros, Fevziye
Mutlu, Caner
Kardas, Omer
Kardas, Burcu
Kizildag, Suleyman
Demirci, Esra
Ozmen, Sevgi
Sevicin, Leyla
Karagoz, Yuksel Sumeyra
Isik, Umit
Aktepe, Evrim
Altun, Hatice
Yektas, Çigdem
Polat Tuysuz, Berna
Buber, Ahmet
Cansiz, Mehmet Akif
Ogutlu, Hakan
Eray, Safak
Taner, Hande Ayraler
Altintas, Ebru
Kutuk, Ozgur
functional outcome in late adolescence/early adulthood of patients with autism spectrum disorder and its relationships with parental burnout and depression: A preliminary multi-center, cross-sectional study
title functional outcome in late adolescence/early adulthood of patients with autism spectrum disorder and its relationships with parental burnout and depression: A preliminary multi-center, cross-sectional study
title_full functional outcome in late adolescence/early adulthood of patients with autism spectrum disorder and its relationships with parental burnout and depression: A preliminary multi-center, cross-sectional study
title_fullStr functional outcome in late adolescence/early adulthood of patients with autism spectrum disorder and its relationships with parental burnout and depression: A preliminary multi-center, cross-sectional study
title_full_unstemmed functional outcome in late adolescence/early adulthood of patients with autism spectrum disorder and its relationships with parental burnout and depression: A preliminary multi-center, cross-sectional study
title_short functional outcome in late adolescence/early adulthood of patients with autism spectrum disorder and its relationships with parental burnout and depression: A preliminary multi-center, cross-sectional study
title_sort functional outcome in late adolescence/early adulthood of patients with autism spectrum disorder and its relationships with parental burnout and depression: a preliminary multi-center, cross-sectional study
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10589842/
https://www.ncbi.nlm.nih.gov/pubmed/37867841
http://dx.doi.org/10.1016/j.heliyon.2023.e20766
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