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Flourishing with chronic illness(es) and everyday stress: Experiences from Soweto, South Africa

The pursuit of flourishing, or living a good life, is a common human endeavor with different meanings across individuals and contexts. What is needed is a further exploration of the relationship between flourishing and health, particularly chronic illness, which affects individuals across the life c...

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Autores principales: Schmidt-Sane, Megan, Cele, Lindile, Bosire, Edna N., Tsai, Alexander C., Mendenhall, Emily
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10597576/
https://www.ncbi.nlm.nih.gov/pubmed/37876611
http://dx.doi.org/10.1016/j.wss.2023.100144
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author Schmidt-Sane, Megan
Cele, Lindile
Bosire, Edna N.
Tsai, Alexander C.
Mendenhall, Emily
author_facet Schmidt-Sane, Megan
Cele, Lindile
Bosire, Edna N.
Tsai, Alexander C.
Mendenhall, Emily
author_sort Schmidt-Sane, Megan
collection PubMed
description The pursuit of flourishing, or living a good life, is a common human endeavor with different meanings across individuals and contexts. What is needed is a further exploration of the relationship between flourishing and health, particularly chronic illness, which affects individuals across the life course and is affected by experiences of stress derived from social and structural vulnerability. Drawing on data from the Soweto Syndemics study, including a locally derived stress scale and in-depth interviews, we explore the connections between flourishing and health for those living with multiple chronic illnesses in Soweto, South Africa within a syndemic of communicable and non-communicable disease. Rather than drawing on Western-centric notions of flourishing (which place emphasis on an individual’s capabilities or capacities to thrive), we draw on previous ethnographic work on flourishing in Soweto, South Africa, which described how ukuphumelela, or “becoming victorious,” as a social or communal affair. This conceptualization reflects local values and priorities for people’s lives and the ways in which their lives are deeply intertwined with each other. We contribute to a more robust understanding of flourishing in context, of how chronic illness is experienced, and of how the role of a patient is transcended in spaces where individuals are part of a social or faith community. As people living with chronic illness(es) actively pursue the good life, health care systems must consider these pursuits as valid parts of the human experience that also challenge narrow definitions of health.
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spelling pubmed-105975762023-10-24 Flourishing with chronic illness(es) and everyday stress: Experiences from Soweto, South Africa Schmidt-Sane, Megan Cele, Lindile Bosire, Edna N. Tsai, Alexander C. Mendenhall, Emily Wellbeing Space Soc Article The pursuit of flourishing, or living a good life, is a common human endeavor with different meanings across individuals and contexts. What is needed is a further exploration of the relationship between flourishing and health, particularly chronic illness, which affects individuals across the life course and is affected by experiences of stress derived from social and structural vulnerability. Drawing on data from the Soweto Syndemics study, including a locally derived stress scale and in-depth interviews, we explore the connections between flourishing and health for those living with multiple chronic illnesses in Soweto, South Africa within a syndemic of communicable and non-communicable disease. Rather than drawing on Western-centric notions of flourishing (which place emphasis on an individual’s capabilities or capacities to thrive), we draw on previous ethnographic work on flourishing in Soweto, South Africa, which described how ukuphumelela, or “becoming victorious,” as a social or communal affair. This conceptualization reflects local values and priorities for people’s lives and the ways in which their lives are deeply intertwined with each other. We contribute to a more robust understanding of flourishing in context, of how chronic illness is experienced, and of how the role of a patient is transcended in spaces where individuals are part of a social or faith community. As people living with chronic illness(es) actively pursue the good life, health care systems must consider these pursuits as valid parts of the human experience that also challenge narrow definitions of health. 2023 2023-04-18 /pmc/articles/PMC10597576/ /pubmed/37876611 http://dx.doi.org/10.1016/j.wss.2023.100144 Text en https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) ).
spellingShingle Article
Schmidt-Sane, Megan
Cele, Lindile
Bosire, Edna N.
Tsai, Alexander C.
Mendenhall, Emily
Flourishing with chronic illness(es) and everyday stress: Experiences from Soweto, South Africa
title Flourishing with chronic illness(es) and everyday stress: Experiences from Soweto, South Africa
title_full Flourishing with chronic illness(es) and everyday stress: Experiences from Soweto, South Africa
title_fullStr Flourishing with chronic illness(es) and everyday stress: Experiences from Soweto, South Africa
title_full_unstemmed Flourishing with chronic illness(es) and everyday stress: Experiences from Soweto, South Africa
title_short Flourishing with chronic illness(es) and everyday stress: Experiences from Soweto, South Africa
title_sort flourishing with chronic illness(es) and everyday stress: experiences from soweto, south africa
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10597576/
https://www.ncbi.nlm.nih.gov/pubmed/37876611
http://dx.doi.org/10.1016/j.wss.2023.100144
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