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Assessment of the Needs of Nephrology Divisions to Implement Return of Clinically Significant Research Genetic Results: A Survey of Nephrotic Syndrome Study Network (NEPTUNE) Investigators
INTRODUCTION: There is an increasing need to return genetic testing results to patients with kidney disease who were first genotyped on a research basis. Operationalizing this process in nephrology clinics is challenged by a limited number of genetic providers with whom to partner and a general lack...
Autores principales: | Fishbein, Jennifer E., Dass, Loryn Wilson, Lienczewski, Chrysta, Kretzler, Matthias, Gbadegesin, Rasheed A., Roberts, J. Scott, Sampson, Matthew G., Uhlmann, Wendy R. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
S. Karger AG
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10601953/ https://www.ncbi.nlm.nih.gov/pubmed/37901694 http://dx.doi.org/10.1159/000533501 |
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