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OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY

INTRODUCTION: Brain tumors constitute significant morbidity and mortality in sub-Saharan Africa (SSA). Improvements in neuro-oncology practice and research have seen increased diagnosis of brain tumors. However, to our knowledge, there have been no previous projects on brain tumor genetics in SSA. T...

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Autores principales: Odukoya, Lateef, Kamson, David, Eckel-Passow, Jeanette, Ghomsi, Nathalie, Jenkins, Robert, Balogun, James, Lachance, Daniel, Karekezi, Claire, Ekhator, Chukwuyem, Osei-Tutu, Lawrence, Ngaiza, Advera, Tiamiyu, Liadi, Mwakimonga, Angela, Huse, Jason, Nyalundja, Arsene, Totimeh, Teddy, Badmos, Kabir, Bankole, Olufemi, Kitange, Gaspar, Brown, Desmond, Anunobi, Charles, Schroeder, Kristin, Fonkem, Ekokobe, Cheserem, Beverly, Zerd, Francis
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10616577/
http://dx.doi.org/10.1093/noajnl/vdad121.025
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author Odukoya, Lateef
Kamson, David
Eckel-Passow, Jeanette
Ghomsi, Nathalie
Jenkins, Robert
Balogun, James
Lachance, Daniel
Karekezi, Claire
Ekhator, Chukwuyem
Osei-Tutu, Lawrence
Ngaiza, Advera
Tiamiyu, Liadi
Mwakimonga, Angela
Huse, Jason
Nyalundja, Arsene
Totimeh, Teddy
Badmos, Kabir
Bankole, Olufemi
Kitange, Gaspar
Brown, Desmond
Anunobi, Charles
Schroeder, Kristin
Fonkem, Ekokobe
Cheserem, Beverly
Zerd, Francis
author_facet Odukoya, Lateef
Kamson, David
Eckel-Passow, Jeanette
Ghomsi, Nathalie
Jenkins, Robert
Balogun, James
Lachance, Daniel
Karekezi, Claire
Ekhator, Chukwuyem
Osei-Tutu, Lawrence
Ngaiza, Advera
Tiamiyu, Liadi
Mwakimonga, Angela
Huse, Jason
Nyalundja, Arsene
Totimeh, Teddy
Badmos, Kabir
Bankole, Olufemi
Kitange, Gaspar
Brown, Desmond
Anunobi, Charles
Schroeder, Kristin
Fonkem, Ekokobe
Cheserem, Beverly
Zerd, Francis
author_sort Odukoya, Lateef
collection PubMed
description INTRODUCTION: Brain tumors constitute significant morbidity and mortality in sub-Saharan Africa (SSA). Improvements in neuro-oncology practice and research have seen increased diagnosis of brain tumors. However, to our knowledge, there have been no previous projects on brain tumor genetics in SSA. To understand the feasibility of developing brain tumor biobanking and registries, this project aims to start by mapping out the current neuro-oncology capacity in terms of workforce and available services. METHODOLOGY: We will conduct a descriptive questionnaire-based online survey among a cross section of neuro-oncology practitioners spread across SSA countries. The dissemination of the survey questionnaire will be facilitated by the Society for Neuro-oncology in SSA (SNOSSA). The Google designed questionnaire will capture information on the distribution, and number of available neuro-oncology care practitioners, capacity for brain tumor diagnosis and management, cancer registration, tumor biobanking, and research. CLINICAL IMPACT AND CONCLUSION: This study will generate robust data from SSA, which can be used to improve future research and promote advocacy towards brain tumor diagnosis and management. This work will also serve as a pilot study for subsequent research that will focus on the development of brain tumor-specific registries and biorepositories in SSA.
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spelling pubmed-106165772023-11-01 OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY Odukoya, Lateef Kamson, David Eckel-Passow, Jeanette Ghomsi, Nathalie Jenkins, Robert Balogun, James Lachance, Daniel Karekezi, Claire Ekhator, Chukwuyem Osei-Tutu, Lawrence Ngaiza, Advera Tiamiyu, Liadi Mwakimonga, Angela Huse, Jason Nyalundja, Arsene Totimeh, Teddy Badmos, Kabir Bankole, Olufemi Kitange, Gaspar Brown, Desmond Anunobi, Charles Schroeder, Kristin Fonkem, Ekokobe Cheserem, Beverly Zerd, Francis Neurooncol Adv Final Category: Other INTRODUCTION: Brain tumors constitute significant morbidity and mortality in sub-Saharan Africa (SSA). Improvements in neuro-oncology practice and research have seen increased diagnosis of brain tumors. However, to our knowledge, there have been no previous projects on brain tumor genetics in SSA. To understand the feasibility of developing brain tumor biobanking and registries, this project aims to start by mapping out the current neuro-oncology capacity in terms of workforce and available services. METHODOLOGY: We will conduct a descriptive questionnaire-based online survey among a cross section of neuro-oncology practitioners spread across SSA countries. The dissemination of the survey questionnaire will be facilitated by the Society for Neuro-oncology in SSA (SNOSSA). The Google designed questionnaire will capture information on the distribution, and number of available neuro-oncology care practitioners, capacity for brain tumor diagnosis and management, cancer registration, tumor biobanking, and research. CLINICAL IMPACT AND CONCLUSION: This study will generate robust data from SSA, which can be used to improve future research and promote advocacy towards brain tumor diagnosis and management. This work will also serve as a pilot study for subsequent research that will focus on the development of brain tumor-specific registries and biorepositories in SSA. Oxford University Press 2023-10-31 /pmc/articles/PMC10616577/ http://dx.doi.org/10.1093/noajnl/vdad121.025 Text en © The Author(s) 2023. Published by Oxford University Press, the Society for Neuro-Oncology and the European Association of Neuro-Oncology. https://creativecommons.org/licenses/by-nc/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
spellingShingle Final Category: Other
Odukoya, Lateef
Kamson, David
Eckel-Passow, Jeanette
Ghomsi, Nathalie
Jenkins, Robert
Balogun, James
Lachance, Daniel
Karekezi, Claire
Ekhator, Chukwuyem
Osei-Tutu, Lawrence
Ngaiza, Advera
Tiamiyu, Liadi
Mwakimonga, Angela
Huse, Jason
Nyalundja, Arsene
Totimeh, Teddy
Badmos, Kabir
Bankole, Olufemi
Kitange, Gaspar
Brown, Desmond
Anunobi, Charles
Schroeder, Kristin
Fonkem, Ekokobe
Cheserem, Beverly
Zerd, Francis
OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY
title OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY
title_full OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY
title_fullStr OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY
title_full_unstemmed OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY
title_short OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY
title_sort other-04 feasibility study on brain tumor biobanking and registry in sub-saharan african countries: a questionnaire-based survey
topic Final Category: Other
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10616577/
http://dx.doi.org/10.1093/noajnl/vdad121.025
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