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OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY
INTRODUCTION: Brain tumors constitute significant morbidity and mortality in sub-Saharan Africa (SSA). Improvements in neuro-oncology practice and research have seen increased diagnosis of brain tumors. However, to our knowledge, there have been no previous projects on brain tumor genetics in SSA. T...
Autores principales: | , , , , , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10616577/ http://dx.doi.org/10.1093/noajnl/vdad121.025 |
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author | Odukoya, Lateef Kamson, David Eckel-Passow, Jeanette Ghomsi, Nathalie Jenkins, Robert Balogun, James Lachance, Daniel Karekezi, Claire Ekhator, Chukwuyem Osei-Tutu, Lawrence Ngaiza, Advera Tiamiyu, Liadi Mwakimonga, Angela Huse, Jason Nyalundja, Arsene Totimeh, Teddy Badmos, Kabir Bankole, Olufemi Kitange, Gaspar Brown, Desmond Anunobi, Charles Schroeder, Kristin Fonkem, Ekokobe Cheserem, Beverly Zerd, Francis |
author_facet | Odukoya, Lateef Kamson, David Eckel-Passow, Jeanette Ghomsi, Nathalie Jenkins, Robert Balogun, James Lachance, Daniel Karekezi, Claire Ekhator, Chukwuyem Osei-Tutu, Lawrence Ngaiza, Advera Tiamiyu, Liadi Mwakimonga, Angela Huse, Jason Nyalundja, Arsene Totimeh, Teddy Badmos, Kabir Bankole, Olufemi Kitange, Gaspar Brown, Desmond Anunobi, Charles Schroeder, Kristin Fonkem, Ekokobe Cheserem, Beverly Zerd, Francis |
author_sort | Odukoya, Lateef |
collection | PubMed |
description | INTRODUCTION: Brain tumors constitute significant morbidity and mortality in sub-Saharan Africa (SSA). Improvements in neuro-oncology practice and research have seen increased diagnosis of brain tumors. However, to our knowledge, there have been no previous projects on brain tumor genetics in SSA. To understand the feasibility of developing brain tumor biobanking and registries, this project aims to start by mapping out the current neuro-oncology capacity in terms of workforce and available services. METHODOLOGY: We will conduct a descriptive questionnaire-based online survey among a cross section of neuro-oncology practitioners spread across SSA countries. The dissemination of the survey questionnaire will be facilitated by the Society for Neuro-oncology in SSA (SNOSSA). The Google designed questionnaire will capture information on the distribution, and number of available neuro-oncology care practitioners, capacity for brain tumor diagnosis and management, cancer registration, tumor biobanking, and research. CLINICAL IMPACT AND CONCLUSION: This study will generate robust data from SSA, which can be used to improve future research and promote advocacy towards brain tumor diagnosis and management. This work will also serve as a pilot study for subsequent research that will focus on the development of brain tumor-specific registries and biorepositories in SSA. |
format | Online Article Text |
id | pubmed-10616577 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-106165772023-11-01 OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY Odukoya, Lateef Kamson, David Eckel-Passow, Jeanette Ghomsi, Nathalie Jenkins, Robert Balogun, James Lachance, Daniel Karekezi, Claire Ekhator, Chukwuyem Osei-Tutu, Lawrence Ngaiza, Advera Tiamiyu, Liadi Mwakimonga, Angela Huse, Jason Nyalundja, Arsene Totimeh, Teddy Badmos, Kabir Bankole, Olufemi Kitange, Gaspar Brown, Desmond Anunobi, Charles Schroeder, Kristin Fonkem, Ekokobe Cheserem, Beverly Zerd, Francis Neurooncol Adv Final Category: Other INTRODUCTION: Brain tumors constitute significant morbidity and mortality in sub-Saharan Africa (SSA). Improvements in neuro-oncology practice and research have seen increased diagnosis of brain tumors. However, to our knowledge, there have been no previous projects on brain tumor genetics in SSA. To understand the feasibility of developing brain tumor biobanking and registries, this project aims to start by mapping out the current neuro-oncology capacity in terms of workforce and available services. METHODOLOGY: We will conduct a descriptive questionnaire-based online survey among a cross section of neuro-oncology practitioners spread across SSA countries. The dissemination of the survey questionnaire will be facilitated by the Society for Neuro-oncology in SSA (SNOSSA). The Google designed questionnaire will capture information on the distribution, and number of available neuro-oncology care practitioners, capacity for brain tumor diagnosis and management, cancer registration, tumor biobanking, and research. CLINICAL IMPACT AND CONCLUSION: This study will generate robust data from SSA, which can be used to improve future research and promote advocacy towards brain tumor diagnosis and management. This work will also serve as a pilot study for subsequent research that will focus on the development of brain tumor-specific registries and biorepositories in SSA. Oxford University Press 2023-10-31 /pmc/articles/PMC10616577/ http://dx.doi.org/10.1093/noajnl/vdad121.025 Text en © The Author(s) 2023. Published by Oxford University Press, the Society for Neuro-Oncology and the European Association of Neuro-Oncology. https://creativecommons.org/licenses/by-nc/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com |
spellingShingle | Final Category: Other Odukoya, Lateef Kamson, David Eckel-Passow, Jeanette Ghomsi, Nathalie Jenkins, Robert Balogun, James Lachance, Daniel Karekezi, Claire Ekhator, Chukwuyem Osei-Tutu, Lawrence Ngaiza, Advera Tiamiyu, Liadi Mwakimonga, Angela Huse, Jason Nyalundja, Arsene Totimeh, Teddy Badmos, Kabir Bankole, Olufemi Kitange, Gaspar Brown, Desmond Anunobi, Charles Schroeder, Kristin Fonkem, Ekokobe Cheserem, Beverly Zerd, Francis OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY |
title | OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY |
title_full | OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY |
title_fullStr | OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY |
title_full_unstemmed | OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY |
title_short | OTHER-04 FEASIBILITY STUDY ON BRAIN TUMOR BIOBANKING AND REGISTRY IN SUB-SAHARAN AFRICAN COUNTRIES: A QUESTIONNAIRE-BASED SURVEY |
title_sort | other-04 feasibility study on brain tumor biobanking and registry in sub-saharan african countries: a questionnaire-based survey |
topic | Final Category: Other |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10616577/ http://dx.doi.org/10.1093/noajnl/vdad121.025 |
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