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Sickle cell disease: embedding patient participation into an international conference can transform the role of lived experience

BACKGROUND: Sickle cell disease (SCD) is an inherited chronic life-threatening disorder with increasing prevalence in Europe. People living with SCD in Europe mainly belong to vulnerable minorities, have a lower level of health education and suffer from isolation compared to those living with other...

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Detalles Bibliográficos
Autores principales:	Pellegrini, Mariangela, Chakravorty, Subarna, del Mar Manu Pereira, Maria, Gulbis, Beatrice, Gilmour-Hamilton, Catriona, Hayes, Sandy, de Montalembert, Mariane, Inusa, Baba Psalm Duniya, Colombatti, Raffaella, Roy, Noémi BA
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2023
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10619309/ https://www.ncbi.nlm.nih.gov/pubmed/37908000 http://dx.doi.org/10.1186/s13023-023-02951-8

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