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Proceedings of the Eleventh International Meeting on Neuroacanthocytosis Syndromes
The 11(th) International Meeting on Neuroacanthocytosis Syndromes was held on September 15(th)–17(th), 2023 at the University Hospital Campus in Homburg/Saar, Germany. The meeting followed the previous ten international symposia, the last of which was held online due to restrictions due to COVID19,...
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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Ubiquity Press
2023
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10624129/ https://www.ncbi.nlm.nih.gov/pubmed/37928888 http://dx.doi.org/10.5334/tohm.826 |
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author | Kaestner, Lars |
author_facet | Kaestner, Lars |
author_sort | Kaestner, Lars |
collection | PubMed |
description | The 11(th) International Meeting on Neuroacanthocytosis Syndromes was held on September 15(th)–17(th), 2023 at the University Hospital Campus in Homburg/Saar, Germany. The meeting followed the previous ten international symposia, the last of which was held online due to restrictions due to COVID19, in March 2021. The setting of the meeting encouraged interactions, exchange of ideas, and networking opportunities among the participants from around the globe, including basic and clinical scientists, clinicians, and especially patients, their relatives and caregivers. A total of about 20 oral communications were presented in five scientific sessions accompanied by a keynote lecture, a “Poster-Blitz” session, the “Glenn Irvine Prize” lecture and a panel discussion about “Patient registries, international cooperation & future perspectives”. In summary, attendees discussed recent advances and set the basis for the next steps, action points, and future studies in close collaboration with the patient associations, which were actively involved in the whole process. |
format | Online Article Text |
id | pubmed-10624129 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Ubiquity Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-106241292023-11-04 Proceedings of the Eleventh International Meeting on Neuroacanthocytosis Syndromes Kaestner, Lars Tremor Other Hyperkinet Mov (N Y) Conference Proceedings The 11(th) International Meeting on Neuroacanthocytosis Syndromes was held on September 15(th)–17(th), 2023 at the University Hospital Campus in Homburg/Saar, Germany. The meeting followed the previous ten international symposia, the last of which was held online due to restrictions due to COVID19, in March 2021. The setting of the meeting encouraged interactions, exchange of ideas, and networking opportunities among the participants from around the globe, including basic and clinical scientists, clinicians, and especially patients, their relatives and caregivers. A total of about 20 oral communications were presented in five scientific sessions accompanied by a keynote lecture, a “Poster-Blitz” session, the “Glenn Irvine Prize” lecture and a panel discussion about “Patient registries, international cooperation & future perspectives”. In summary, attendees discussed recent advances and set the basis for the next steps, action points, and future studies in close collaboration with the patient associations, which were actively involved in the whole process. Ubiquity Press 2023-11-03 /pmc/articles/PMC10624129/ /pubmed/37928888 http://dx.doi.org/10.5334/tohm.826 Text en Copyright: © 2023 The Author(s) https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. See http://creativecommons.org/licenses/by/4.0/. |
spellingShingle | Conference Proceedings Kaestner, Lars Proceedings of the Eleventh International Meeting on Neuroacanthocytosis Syndromes |
title | Proceedings of the Eleventh International Meeting on Neuroacanthocytosis Syndromes |
title_full | Proceedings of the Eleventh International Meeting on Neuroacanthocytosis Syndromes |
title_fullStr | Proceedings of the Eleventh International Meeting on Neuroacanthocytosis Syndromes |
title_full_unstemmed | Proceedings of the Eleventh International Meeting on Neuroacanthocytosis Syndromes |
title_short | Proceedings of the Eleventh International Meeting on Neuroacanthocytosis Syndromes |
title_sort | proceedings of the eleventh international meeting on neuroacanthocytosis syndromes |
topic | Conference Proceedings |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10624129/ https://www.ncbi.nlm.nih.gov/pubmed/37928888 http://dx.doi.org/10.5334/tohm.826 |
work_keys_str_mv | AT kaestnerlars proceedingsoftheeleventhinternationalmeetingonneuroacanthocytosissyndromes |