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Avenues for Strengthening PCORnet’s Capacity to Advance Patient-Centered Economic Outcomes in Patient-Centered Outcomes Research (PCOR)
PCORnet, the National Patient-Centered Clinical Research Network, provides the ability to conduct prospective and observational pragmatic research by leveraging standardized, curated electronic health records data together with patient and stakeholder engagement. PCORnet is funded by the Patient-Cen...
Autores principales: | , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Lippincott Williams & Wilkins
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10635342/ https://www.ncbi.nlm.nih.gov/pubmed/37963035 http://dx.doi.org/10.1097/MLR.0000000000001929 |
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author | Waitman, Lemuel R. Bailey, Leonard Charles Becich, Michael J. Chung-Bridges, Katherine Dusetzina, Stacie B. Espino, Jessi U. Hogan, William R. Kaushal, Rainu McClay, James C. Merritt, James Greg Rothman, Russell L. Shenkman, Elizabeth A. Song, Xing Nauman, Elizabeth |
author_facet | Waitman, Lemuel R. Bailey, Leonard Charles Becich, Michael J. Chung-Bridges, Katherine Dusetzina, Stacie B. Espino, Jessi U. Hogan, William R. Kaushal, Rainu McClay, James C. Merritt, James Greg Rothman, Russell L. Shenkman, Elizabeth A. Song, Xing Nauman, Elizabeth |
author_sort | Waitman, Lemuel R. |
collection | PubMed |
description | PCORnet, the National Patient-Centered Clinical Research Network, provides the ability to conduct prospective and observational pragmatic research by leveraging standardized, curated electronic health records data together with patient and stakeholder engagement. PCORnet is funded by the Patient-Centered Outcomes Research Institute (PCORI) and is composed of 8 Clinical Research Networks that incorporate at total of 79 health system “sites.” As the network developed, linkage to commercial health plans, federal insurance claims, disease registries, and other data resources demonstrated the value in extending the networks infrastructure to provide a more complete representation of patient’s health and lived experiences. Initially, PCORnet studies avoided direct economic comparative effectiveness as a topic. However, PCORI’s authorizing law was amended in 2019 to allow studies to incorporate patient-centered economic outcomes in primary research aims. With PCORI’s expanded scope and PCORnet’s phase 3 beginning in January 2022, there are opportunities to strengthen the network’s ability to support economic patient-centered outcomes research. This commentary will discuss approaches that have been incorporated to date by the network and point to opportunities for the network to incorporate economic variables for analysis, informed by patient and stakeholder perspectives. Topics addressed include: (1) data linkage infrastructure; (2) commercial health plan partnerships; (3) Medicare and Medicaid linkage; (4) health system billing-based benchmarking; (5) area-level measures; (6) individual-level measures; (7) pharmacy benefits and retail pharmacy data; and (8) the importance of transparency and engagement while addressing the biases inherent in linking real-world data sources. |
format | Online Article Text |
id | pubmed-10635342 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Lippincott Williams & Wilkins |
record_format | MEDLINE/PubMed |
spelling | pubmed-106353422023-11-15 Avenues for Strengthening PCORnet’s Capacity to Advance Patient-Centered Economic Outcomes in Patient-Centered Outcomes Research (PCOR) Waitman, Lemuel R. Bailey, Leonard Charles Becich, Michael J. Chung-Bridges, Katherine Dusetzina, Stacie B. Espino, Jessi U. Hogan, William R. Kaushal, Rainu McClay, James C. Merritt, James Greg Rothman, Russell L. Shenkman, Elizabeth A. Song, Xing Nauman, Elizabeth Med Care Data Linkage PCORnet, the National Patient-Centered Clinical Research Network, provides the ability to conduct prospective and observational pragmatic research by leveraging standardized, curated electronic health records data together with patient and stakeholder engagement. PCORnet is funded by the Patient-Centered Outcomes Research Institute (PCORI) and is composed of 8 Clinical Research Networks that incorporate at total of 79 health system “sites.” As the network developed, linkage to commercial health plans, federal insurance claims, disease registries, and other data resources demonstrated the value in extending the networks infrastructure to provide a more complete representation of patient’s health and lived experiences. Initially, PCORnet studies avoided direct economic comparative effectiveness as a topic. However, PCORI’s authorizing law was amended in 2019 to allow studies to incorporate patient-centered economic outcomes in primary research aims. With PCORI’s expanded scope and PCORnet’s phase 3 beginning in January 2022, there are opportunities to strengthen the network’s ability to support economic patient-centered outcomes research. This commentary will discuss approaches that have been incorporated to date by the network and point to opportunities for the network to incorporate economic variables for analysis, informed by patient and stakeholder perspectives. Topics addressed include: (1) data linkage infrastructure; (2) commercial health plan partnerships; (3) Medicare and Medicaid linkage; (4) health system billing-based benchmarking; (5) area-level measures; (6) individual-level measures; (7) pharmacy benefits and retail pharmacy data; and (8) the importance of transparency and engagement while addressing the biases inherent in linking real-world data sources. Lippincott Williams & Wilkins 2023-12 2023-11-09 /pmc/articles/PMC10635342/ /pubmed/37963035 http://dx.doi.org/10.1097/MLR.0000000000001929 Text en Copyright © 2023 The Author(s). Published by Wolters Kluwer Health, Inc. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (https://creativecommons.org/licenses/by-nc-nd/4.0/) (CCBY-NC-ND), where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal. http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) |
spellingShingle | Data Linkage Waitman, Lemuel R. Bailey, Leonard Charles Becich, Michael J. Chung-Bridges, Katherine Dusetzina, Stacie B. Espino, Jessi U. Hogan, William R. Kaushal, Rainu McClay, James C. Merritt, James Greg Rothman, Russell L. Shenkman, Elizabeth A. Song, Xing Nauman, Elizabeth Avenues for Strengthening PCORnet’s Capacity to Advance Patient-Centered Economic Outcomes in Patient-Centered Outcomes Research (PCOR) |
title | Avenues for Strengthening PCORnet’s Capacity to Advance Patient-Centered Economic Outcomes in Patient-Centered Outcomes Research (PCOR) |
title_full | Avenues for Strengthening PCORnet’s Capacity to Advance Patient-Centered Economic Outcomes in Patient-Centered Outcomes Research (PCOR) |
title_fullStr | Avenues for Strengthening PCORnet’s Capacity to Advance Patient-Centered Economic Outcomes in Patient-Centered Outcomes Research (PCOR) |
title_full_unstemmed | Avenues for Strengthening PCORnet’s Capacity to Advance Patient-Centered Economic Outcomes in Patient-Centered Outcomes Research (PCOR) |
title_short | Avenues for Strengthening PCORnet’s Capacity to Advance Patient-Centered Economic Outcomes in Patient-Centered Outcomes Research (PCOR) |
title_sort | avenues for strengthening pcornet’s capacity to advance patient-centered economic outcomes in patient-centered outcomes research (pcor) |
topic | Data Linkage |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10635342/ https://www.ncbi.nlm.nih.gov/pubmed/37963035 http://dx.doi.org/10.1097/MLR.0000000000001929 |
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