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The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS)

The core activity of population-based cancer registries (PBCRs) is to gather information from all new cancer cases in a defined geographic area, in order to measure the magnitude of cancer burden and to provide a basis for cancer research. The Joint Research Centre-European Network of Cancer Registr...

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Autores principales: Giusti, Francesco, Martos, Carmen, Adriani, Stefano, Flego, Manuela, Carvalho, Raquel Negrão, Bettio, Manola, Ben, Enrico
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10641391/
https://www.ncbi.nlm.nih.gov/pubmed/37965471
http://dx.doi.org/10.3389/fonc.2023.1250195
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author Giusti, Francesco
Martos, Carmen
Adriani, Stefano
Flego, Manuela
Carvalho, Raquel Negrão
Bettio, Manola
Ben, Enrico
author_facet Giusti, Francesco
Martos, Carmen
Adriani, Stefano
Flego, Manuela
Carvalho, Raquel Negrão
Bettio, Manola
Ben, Enrico
author_sort Giusti, Francesco
collection PubMed
description The core activity of population-based cancer registries (PBCRs) is to gather information from all new cancer cases in a defined geographic area, in order to measure the magnitude of cancer burden and to provide a basis for cancer research. The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS) is a Java standalone desktop application, under development since 2015, created to support PBCRs in the validation of the collected data. The JRC-ENCR QCS performs internal consistency checks on the cancer registry dataset, to detect impossible or unlikely codes or combination of codes, and is thereby an important tool to support the validation efforts by registries and improve data quality and European-wide harmonisation. The software package also includes the JRC CSV Data layout converter, a complementary tool for transforming PBCR incidence files into a format compatible with the JRC-ENCR QCS. This paper gives an overview of the JRC-ENCR QCS, describing the role of the software in processing data files submitted by PBCRs contributing to the European Cancer Information System (ECIS) as well as its functionalities. The development of the JRC-ENCR QCS is an evolving process, with regular updates implementing new and revised European and International recommendations and classifications.
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spelling pubmed-106413912023-11-14 The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS) Giusti, Francesco Martos, Carmen Adriani, Stefano Flego, Manuela Carvalho, Raquel Negrão Bettio, Manola Ben, Enrico Front Oncol Oncology The core activity of population-based cancer registries (PBCRs) is to gather information from all new cancer cases in a defined geographic area, in order to measure the magnitude of cancer burden and to provide a basis for cancer research. The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS) is a Java standalone desktop application, under development since 2015, created to support PBCRs in the validation of the collected data. The JRC-ENCR QCS performs internal consistency checks on the cancer registry dataset, to detect impossible or unlikely codes or combination of codes, and is thereby an important tool to support the validation efforts by registries and improve data quality and European-wide harmonisation. The software package also includes the JRC CSV Data layout converter, a complementary tool for transforming PBCR incidence files into a format compatible with the JRC-ENCR QCS. This paper gives an overview of the JRC-ENCR QCS, describing the role of the software in processing data files submitted by PBCRs contributing to the European Cancer Information System (ECIS) as well as its functionalities. The development of the JRC-ENCR QCS is an evolving process, with regular updates implementing new and revised European and International recommendations and classifications. Frontiers Media S.A. 2023-10-26 /pmc/articles/PMC10641391/ /pubmed/37965471 http://dx.doi.org/10.3389/fonc.2023.1250195 Text en Copyright © 2023 Giusti, Martos, Adriani, Flego, Carvalho, Bettio and Ben https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Oncology
Giusti, Francesco
Martos, Carmen
Adriani, Stefano
Flego, Manuela
Carvalho, Raquel Negrão
Bettio, Manola
Ben, Enrico
The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS)
title The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS)
title_full The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS)
title_fullStr The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS)
title_full_unstemmed The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS)
title_short The Joint Research Centre-European Network of Cancer Registries Quality Check Software (JRC-ENCR QCS)
title_sort joint research centre-european network of cancer registries quality check software (jrc-encr qcs)
topic Oncology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10641391/
https://www.ncbi.nlm.nih.gov/pubmed/37965471
http://dx.doi.org/10.3389/fonc.2023.1250195
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