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Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives

BACKGROUND: Paediatric precision oncology aims to match therapeutic agents to driver gene targets. We investigated whether parents and patients regret participation in precision medicine trials, particularly when their hopes are unfulfilled. METHODS: Parents and adolescent patients completed questio...

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Detalles Bibliográficos
Autores principales: Wakefield, Claire E., Hetherington, Kate, Robertson, Eden G., Donoghoe, Mark W., Hunter, Jacqueline D., Vetsch, Janine, Marron, Jonathan M., Tucker, Katherine M., Marshall, Glenn M., Broom, Alexander, Haber, Michelle, Tyrrell, Vanessa, Malkin, David, Lau, Loretta, Mateos, Marion K., O’Brien, Tracey A., Ziegler, David S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group UK 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10645918/
https://www.ncbi.nlm.nih.gov/pubmed/37726477
http://dx.doi.org/10.1038/s41416-023-02429-1