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Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives
BACKGROUND: Paediatric precision oncology aims to match therapeutic agents to driver gene targets. We investigated whether parents and patients regret participation in precision medicine trials, particularly when their hopes are unfulfilled. METHODS: Parents and adolescent patients completed questio...
Autores principales: | Wakefield, Claire E., Hetherington, Kate, Robertson, Eden G., Donoghoe, Mark W., Hunter, Jacqueline D., Vetsch, Janine, Marron, Jonathan M., Tucker, Katherine M., Marshall, Glenn M., Broom, Alexander, Haber, Michelle, Tyrrell, Vanessa, Malkin, David, Lau, Loretta, Mateos, Marion K., O’Brien, Tracey A., Ziegler, David S. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Nature Publishing Group UK
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10645918/ https://www.ncbi.nlm.nih.gov/pubmed/37726477 http://dx.doi.org/10.1038/s41416-023-02429-1 |
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