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Surfacing undiagnosed disease: consideration, counting and coding
The diagnostic odyssey for people living with rare diseases (PLWRD) is often prolonged for myriad reasons including an initial failure to consider rare disease and challenges to systemically and systematically identifying and tracking undiagnosed diseases across the diagnostic journey. This often re...
Autores principales: | Baxter, Megan F., Hansen, Michele, Gration, Dylan, Groza, Tudor, Baynam, Gareth |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10646190/ https://www.ncbi.nlm.nih.gov/pubmed/38027298 http://dx.doi.org/10.3389/fped.2023.1283880 |
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