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Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey

BACKGROUND: Rare diseases (RDs) affect millions of people worldwide, and these diseases can severely impact the health-related quality of life (HRQoL) of those affected. Despite this, there is a lack of research measuring HRQoL using the EQ-5D-5L, which is one of the most widely used generic prefere...

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Detalles Bibliográficos
Autores principales:	Xu, Richard Huan, Ng, Shamay S M, Luo, Nan, Dong, Dong, Zhang, Shuyang
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications 2023
Materias:	Original Paper
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10646671/ https://www.ncbi.nlm.nih.gov/pubmed/37906229 http://dx.doi.org/10.2196/50147

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