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Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review
Congenital heart disease (CHD) is the leading cause of death from malformations in the first year of life and carries a significant burden to the family when the diagnosis is made in the prenatal period. We recognize the significance of family counseling following a fetal CHD diagnosis. However, we...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10647570/ https://www.ncbi.nlm.nih.gov/pubmed/37957971 http://dx.doi.org/10.3390/healthcare11212826 |
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author | Almeida, Sophia Livas de Morais Tuda, Luisa Tiemi Souza Dias, Marcela Bezerra de Carvalho, Luana Izabela Azevedo Estevam, Thayla Lais Lima Novelleto, Ana Luiza Menezes Teles Araujo Júnior, Edward da Rocha Amorim, Luciane Alves |
author_facet | Almeida, Sophia Livas de Morais Tuda, Luisa Tiemi Souza Dias, Marcela Bezerra de Carvalho, Luana Izabela Azevedo Estevam, Thayla Lais Lima Novelleto, Ana Luiza Menezes Teles Araujo Júnior, Edward da Rocha Amorim, Luciane Alves |
author_sort | Almeida, Sophia Livas de Morais |
collection | PubMed |
description | Congenital heart disease (CHD) is the leading cause of death from malformations in the first year of life and carries a significant burden to the family when the diagnosis is made in the prenatal period. We recognize the significance of family counseling following a fetal CHD diagnosis. However, we have observed that most research focuses on assessing the emotional state of family members rather than examining the counseling process itself. The objective of this study was to identify and summarize the findings in the literature on family counseling in cases of diagnosis of CHD during pregnancy, demonstrating gaps and suggesting future research on this topic. Eight databases were searched to review the literature on family counseling in cases of CHD diagnosis during pregnancy. A systematic search was conducted from September to October 2022. The descriptors were “congenital heart disease”, “fetal heart”, and “family counseling”. The inclusion criteria were studies on counseling family members who received a diagnosis of CHD in the fetus (family counseling was defined as any health professional who advises mothers and fathers on the diagnosis of CHD during the gestational period), how the news is expressed to family members (including an explanation of CHD and questions about management and prognosis), empirical and qualitative studies, quantitative studies, no publication deadline, and any language. Out of the initial search of 3719 reports, 21 articles were included. Most were cross-sectional (11) and qualitative (9) studies, and all were from developed countries. The findings in the literature address the difficulties in effectively conducting family counseling, the strengths of family counseling to be effective, opportunities to generate effective counseling, and the main challenges in family counseling. |
format | Online Article Text |
id | pubmed-10647570 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-106475702023-10-26 Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review Almeida, Sophia Livas de Morais Tuda, Luisa Tiemi Souza Dias, Marcela Bezerra de Carvalho, Luana Izabela Azevedo Estevam, Thayla Lais Lima Novelleto, Ana Luiza Menezes Teles Araujo Júnior, Edward da Rocha Amorim, Luciane Alves Healthcare (Basel) Review Congenital heart disease (CHD) is the leading cause of death from malformations in the first year of life and carries a significant burden to the family when the diagnosis is made in the prenatal period. We recognize the significance of family counseling following a fetal CHD diagnosis. However, we have observed that most research focuses on assessing the emotional state of family members rather than examining the counseling process itself. The objective of this study was to identify and summarize the findings in the literature on family counseling in cases of diagnosis of CHD during pregnancy, demonstrating gaps and suggesting future research on this topic. Eight databases were searched to review the literature on family counseling in cases of CHD diagnosis during pregnancy. A systematic search was conducted from September to October 2022. The descriptors were “congenital heart disease”, “fetal heart”, and “family counseling”. The inclusion criteria were studies on counseling family members who received a diagnosis of CHD in the fetus (family counseling was defined as any health professional who advises mothers and fathers on the diagnosis of CHD during the gestational period), how the news is expressed to family members (including an explanation of CHD and questions about management and prognosis), empirical and qualitative studies, quantitative studies, no publication deadline, and any language. Out of the initial search of 3719 reports, 21 articles were included. Most were cross-sectional (11) and qualitative (9) studies, and all were from developed countries. The findings in the literature address the difficulties in effectively conducting family counseling, the strengths of family counseling to be effective, opportunities to generate effective counseling, and the main challenges in family counseling. MDPI 2023-10-26 /pmc/articles/PMC10647570/ /pubmed/37957971 http://dx.doi.org/10.3390/healthcare11212826 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Review Almeida, Sophia Livas de Morais Tuda, Luisa Tiemi Souza Dias, Marcela Bezerra de Carvalho, Luana Izabela Azevedo Estevam, Thayla Lais Lima Novelleto, Ana Luiza Menezes Teles Araujo Júnior, Edward da Rocha Amorim, Luciane Alves Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review |
title | Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review |
title_full | Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review |
title_fullStr | Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review |
title_full_unstemmed | Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review |
title_short | Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review |
title_sort | family counseling after the diagnosis of congenital heart disease in the fetus: scoping review |
topic | Review |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10647570/ https://www.ncbi.nlm.nih.gov/pubmed/37957971 http://dx.doi.org/10.3390/healthcare11212826 |
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