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Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review

Congenital heart disease (CHD) is the leading cause of death from malformations in the first year of life and carries a significant burden to the family when the diagnosis is made in the prenatal period. We recognize the significance of family counseling following a fetal CHD diagnosis. However, we...

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Autores principales: Almeida, Sophia Livas de Morais, Tuda, Luisa Tiemi Souza, Dias, Marcela Bezerra, de Carvalho, Luana Izabela Azevedo, Estevam, Thayla Lais Lima, Novelleto, Ana Luiza Menezes Teles, Araujo Júnior, Edward, da Rocha Amorim, Luciane Alves
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10647570/
https://www.ncbi.nlm.nih.gov/pubmed/37957971
http://dx.doi.org/10.3390/healthcare11212826
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author Almeida, Sophia Livas de Morais
Tuda, Luisa Tiemi Souza
Dias, Marcela Bezerra
de Carvalho, Luana Izabela Azevedo
Estevam, Thayla Lais Lima
Novelleto, Ana Luiza Menezes Teles
Araujo Júnior, Edward
da Rocha Amorim, Luciane Alves
author_facet Almeida, Sophia Livas de Morais
Tuda, Luisa Tiemi Souza
Dias, Marcela Bezerra
de Carvalho, Luana Izabela Azevedo
Estevam, Thayla Lais Lima
Novelleto, Ana Luiza Menezes Teles
Araujo Júnior, Edward
da Rocha Amorim, Luciane Alves
author_sort Almeida, Sophia Livas de Morais
collection PubMed
description Congenital heart disease (CHD) is the leading cause of death from malformations in the first year of life and carries a significant burden to the family when the diagnosis is made in the prenatal period. We recognize the significance of family counseling following a fetal CHD diagnosis. However, we have observed that most research focuses on assessing the emotional state of family members rather than examining the counseling process itself. The objective of this study was to identify and summarize the findings in the literature on family counseling in cases of diagnosis of CHD during pregnancy, demonstrating gaps and suggesting future research on this topic. Eight databases were searched to review the literature on family counseling in cases of CHD diagnosis during pregnancy. A systematic search was conducted from September to October 2022. The descriptors were “congenital heart disease”, “fetal heart”, and “family counseling”. The inclusion criteria were studies on counseling family members who received a diagnosis of CHD in the fetus (family counseling was defined as any health professional who advises mothers and fathers on the diagnosis of CHD during the gestational period), how the news is expressed to family members (including an explanation of CHD and questions about management and prognosis), empirical and qualitative studies, quantitative studies, no publication deadline, and any language. Out of the initial search of 3719 reports, 21 articles were included. Most were cross-sectional (11) and qualitative (9) studies, and all were from developed countries. The findings in the literature address the difficulties in effectively conducting family counseling, the strengths of family counseling to be effective, opportunities to generate effective counseling, and the main challenges in family counseling.
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spelling pubmed-106475702023-10-26 Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review Almeida, Sophia Livas de Morais Tuda, Luisa Tiemi Souza Dias, Marcela Bezerra de Carvalho, Luana Izabela Azevedo Estevam, Thayla Lais Lima Novelleto, Ana Luiza Menezes Teles Araujo Júnior, Edward da Rocha Amorim, Luciane Alves Healthcare (Basel) Review Congenital heart disease (CHD) is the leading cause of death from malformations in the first year of life and carries a significant burden to the family when the diagnosis is made in the prenatal period. We recognize the significance of family counseling following a fetal CHD diagnosis. However, we have observed that most research focuses on assessing the emotional state of family members rather than examining the counseling process itself. The objective of this study was to identify and summarize the findings in the literature on family counseling in cases of diagnosis of CHD during pregnancy, demonstrating gaps and suggesting future research on this topic. Eight databases were searched to review the literature on family counseling in cases of CHD diagnosis during pregnancy. A systematic search was conducted from September to October 2022. The descriptors were “congenital heart disease”, “fetal heart”, and “family counseling”. The inclusion criteria were studies on counseling family members who received a diagnosis of CHD in the fetus (family counseling was defined as any health professional who advises mothers and fathers on the diagnosis of CHD during the gestational period), how the news is expressed to family members (including an explanation of CHD and questions about management and prognosis), empirical and qualitative studies, quantitative studies, no publication deadline, and any language. Out of the initial search of 3719 reports, 21 articles were included. Most were cross-sectional (11) and qualitative (9) studies, and all were from developed countries. The findings in the literature address the difficulties in effectively conducting family counseling, the strengths of family counseling to be effective, opportunities to generate effective counseling, and the main challenges in family counseling. MDPI 2023-10-26 /pmc/articles/PMC10647570/ /pubmed/37957971 http://dx.doi.org/10.3390/healthcare11212826 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Review
Almeida, Sophia Livas de Morais
Tuda, Luisa Tiemi Souza
Dias, Marcela Bezerra
de Carvalho, Luana Izabela Azevedo
Estevam, Thayla Lais Lima
Novelleto, Ana Luiza Menezes Teles
Araujo Júnior, Edward
da Rocha Amorim, Luciane Alves
Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review
title Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review
title_full Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review
title_fullStr Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review
title_full_unstemmed Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review
title_short Family Counseling after the Diagnosis of Congenital Heart Disease in the Fetus: Scoping Review
title_sort family counseling after the diagnosis of congenital heart disease in the fetus: scoping review
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10647570/
https://www.ncbi.nlm.nih.gov/pubmed/37957971
http://dx.doi.org/10.3390/healthcare11212826
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