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A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil
INTRODUCTION: Coproduction of mental health research and interventions involving researchers and young people is increasingly common. However, this model raises challenges, related, for instance, to communication, power and control. This paper narrates—from a collective first-person perspective—the...
Autores principales: | , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10649399/ https://www.ncbi.nlm.nih.gov/pubmed/37949502 http://dx.doi.org/10.1136/bmjgh-2023-012443 |
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author | Siston, Felipe Rodrigues Murta, Sheila Giardini Mendes, Josimar Antônio de Alcântara Ferreira, Julyana Alves Santos, Victor Hugo de Lima Seabra, Brenda Thallys Rocha de Souza, Rafa Ribeiro Alves da Cunha, Rafaela de Oliveira Pavarini, Gabriela |
author_facet | Siston, Felipe Rodrigues Murta, Sheila Giardini Mendes, Josimar Antônio de Alcântara Ferreira, Julyana Alves Santos, Victor Hugo de Lima Seabra, Brenda Thallys Rocha de Souza, Rafa Ribeiro Alves da Cunha, Rafaela de Oliveira Pavarini, Gabriela |
author_sort | Siston, Felipe Rodrigues |
collection | PubMed |
description | INTRODUCTION: Coproduction of mental health research and interventions involving researchers and young people is increasingly common. However, this model raises challenges, related, for instance, to communication, power and control. This paper narrates—from a collective first-person perspective—the lived experience of coproduction of a digital intervention by institutional researchers and young citizen researchers in Brazil. METHOD: This study employed a collaborative autoethnographic methodology, utilising autobiographical data such as meeting recordings, individual notes and collective guided reflections on the coproduction process. Our analysis focused on challenges and solutions that arose during the process. RESULTS: Throughout the project, we created formal and informal mechanisms for accountability, transparency and fair inclusion of multiple voices. We engaged in mutual capacity-building, invested in building interpersonal knowledge, and implemented practices to reduce overload and promote equitable participation. Through ongoing reflection and readjustment in response to challenges, we progressively embraced more democratic and egalitarian values. The collective care invested in the process fostered synergy, trust, and intergroup friendship. CONCLUSION: Our experience points to the value of creating a space for multiple research identities: the citizen young person and the institutional researcher, both of whom critically reflect on their roles in the research process. Our focus on coproduced care calls into question participation metaphors that represent the process via a single axis—young people—who linearly progress from minimal participation to full autonomy. Instead, our analysis highlights the importance of a social and caring bond that supports the radical co-production of innovative health solutions in contexts of vulnerability. |
format | Online Article Text |
id | pubmed-10649399 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | BMJ Publishing Group |
record_format | MEDLINE/PubMed |
spelling | pubmed-106493992023-11-10 A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil Siston, Felipe Rodrigues Murta, Sheila Giardini Mendes, Josimar Antônio de Alcântara Ferreira, Julyana Alves Santos, Victor Hugo de Lima Seabra, Brenda Thallys Rocha de Souza, Rafa Ribeiro Alves da Cunha, Rafaela de Oliveira Pavarini, Gabriela BMJ Glob Health Original Research INTRODUCTION: Coproduction of mental health research and interventions involving researchers and young people is increasingly common. However, this model raises challenges, related, for instance, to communication, power and control. This paper narrates—from a collective first-person perspective—the lived experience of coproduction of a digital intervention by institutional researchers and young citizen researchers in Brazil. METHOD: This study employed a collaborative autoethnographic methodology, utilising autobiographical data such as meeting recordings, individual notes and collective guided reflections on the coproduction process. Our analysis focused on challenges and solutions that arose during the process. RESULTS: Throughout the project, we created formal and informal mechanisms for accountability, transparency and fair inclusion of multiple voices. We engaged in mutual capacity-building, invested in building interpersonal knowledge, and implemented practices to reduce overload and promote equitable participation. Through ongoing reflection and readjustment in response to challenges, we progressively embraced more democratic and egalitarian values. The collective care invested in the process fostered synergy, trust, and intergroup friendship. CONCLUSION: Our experience points to the value of creating a space for multiple research identities: the citizen young person and the institutional researcher, both of whom critically reflect on their roles in the research process. Our focus on coproduced care calls into question participation metaphors that represent the process via a single axis—young people—who linearly progress from minimal participation to full autonomy. Instead, our analysis highlights the importance of a social and caring bond that supports the radical co-production of innovative health solutions in contexts of vulnerability. BMJ Publishing Group 2023-11-10 /pmc/articles/PMC10649399/ /pubmed/37949502 http://dx.doi.org/10.1136/bmjgh-2023-012443 Text en © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) . |
spellingShingle | Original Research Siston, Felipe Rodrigues Murta, Sheila Giardini Mendes, Josimar Antônio de Alcântara Ferreira, Julyana Alves Santos, Victor Hugo de Lima Seabra, Brenda Thallys Rocha de Souza, Rafa Ribeiro Alves da Cunha, Rafaela de Oliveira Pavarini, Gabriela A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil |
title | A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil |
title_full | A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil |
title_fullStr | A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil |
title_full_unstemmed | A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil |
title_short | A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil |
title_sort | collective autoethnography of coproduction in mental health research by academic researchers and young people in brazil |
topic | Original Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10649399/ https://www.ncbi.nlm.nih.gov/pubmed/37949502 http://dx.doi.org/10.1136/bmjgh-2023-012443 |
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