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A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil

INTRODUCTION: Coproduction of mental health research and interventions involving researchers and young people is increasingly common. However, this model raises challenges, related, for instance, to communication, power and control. This paper narrates—from a collective first-person perspective—the...

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Autores principales: Siston, Felipe Rodrigues, Murta, Sheila Giardini, Mendes, Josimar Antônio de Alcântara, Ferreira, Julyana Alves, Santos, Victor Hugo de Lima, Seabra, Brenda Thallys Rocha, de Souza, Rafa Ribeiro Alves, da Cunha, Rafaela de Oliveira, Pavarini, Gabriela
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10649399/
https://www.ncbi.nlm.nih.gov/pubmed/37949502
http://dx.doi.org/10.1136/bmjgh-2023-012443
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author Siston, Felipe Rodrigues
Murta, Sheila Giardini
Mendes, Josimar Antônio de Alcântara
Ferreira, Julyana Alves
Santos, Victor Hugo de Lima
Seabra, Brenda Thallys Rocha
de Souza, Rafa Ribeiro Alves
da Cunha, Rafaela de Oliveira
Pavarini, Gabriela
author_facet Siston, Felipe Rodrigues
Murta, Sheila Giardini
Mendes, Josimar Antônio de Alcântara
Ferreira, Julyana Alves
Santos, Victor Hugo de Lima
Seabra, Brenda Thallys Rocha
de Souza, Rafa Ribeiro Alves
da Cunha, Rafaela de Oliveira
Pavarini, Gabriela
author_sort Siston, Felipe Rodrigues
collection PubMed
description INTRODUCTION: Coproduction of mental health research and interventions involving researchers and young people is increasingly common. However, this model raises challenges, related, for instance, to communication, power and control. This paper narrates—from a collective first-person perspective—the lived experience of coproduction of a digital intervention by institutional researchers and young citizen researchers in Brazil. METHOD: This study employed a collaborative autoethnographic methodology, utilising autobiographical data such as meeting recordings, individual notes and collective guided reflections on the coproduction process. Our analysis focused on challenges and solutions that arose during the process. RESULTS: Throughout the project, we created formal and informal mechanisms for accountability, transparency and fair inclusion of multiple voices. We engaged in mutual capacity-building, invested in building interpersonal knowledge, and implemented practices to reduce overload and promote equitable participation. Through ongoing reflection and readjustment in response to challenges, we progressively embraced more democratic and egalitarian values. The collective care invested in the process fostered synergy, trust, and intergroup friendship. CONCLUSION: Our experience points to the value of creating a space for multiple research identities: the citizen young person and the institutional researcher, both of whom critically reflect on their roles in the research process. Our focus on coproduced care calls into question participation metaphors that represent the process via a single axis—young people—who linearly progress from minimal participation to full autonomy. Instead, our analysis highlights the importance of a social and caring bond that supports the radical co-production of innovative health solutions in contexts of vulnerability.
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spelling pubmed-106493992023-11-10 A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil Siston, Felipe Rodrigues Murta, Sheila Giardini Mendes, Josimar Antônio de Alcântara Ferreira, Julyana Alves Santos, Victor Hugo de Lima Seabra, Brenda Thallys Rocha de Souza, Rafa Ribeiro Alves da Cunha, Rafaela de Oliveira Pavarini, Gabriela BMJ Glob Health Original Research INTRODUCTION: Coproduction of mental health research and interventions involving researchers and young people is increasingly common. However, this model raises challenges, related, for instance, to communication, power and control. This paper narrates—from a collective first-person perspective—the lived experience of coproduction of a digital intervention by institutional researchers and young citizen researchers in Brazil. METHOD: This study employed a collaborative autoethnographic methodology, utilising autobiographical data such as meeting recordings, individual notes and collective guided reflections on the coproduction process. Our analysis focused on challenges and solutions that arose during the process. RESULTS: Throughout the project, we created formal and informal mechanisms for accountability, transparency and fair inclusion of multiple voices. We engaged in mutual capacity-building, invested in building interpersonal knowledge, and implemented practices to reduce overload and promote equitable participation. Through ongoing reflection and readjustment in response to challenges, we progressively embraced more democratic and egalitarian values. The collective care invested in the process fostered synergy, trust, and intergroup friendship. CONCLUSION: Our experience points to the value of creating a space for multiple research identities: the citizen young person and the institutional researcher, both of whom critically reflect on their roles in the research process. Our focus on coproduced care calls into question participation metaphors that represent the process via a single axis—young people—who linearly progress from minimal participation to full autonomy. Instead, our analysis highlights the importance of a social and caring bond that supports the radical co-production of innovative health solutions in contexts of vulnerability. BMJ Publishing Group 2023-11-10 /pmc/articles/PMC10649399/ /pubmed/37949502 http://dx.doi.org/10.1136/bmjgh-2023-012443 Text en © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) .
spellingShingle Original Research
Siston, Felipe Rodrigues
Murta, Sheila Giardini
Mendes, Josimar Antônio de Alcântara
Ferreira, Julyana Alves
Santos, Victor Hugo de Lima
Seabra, Brenda Thallys Rocha
de Souza, Rafa Ribeiro Alves
da Cunha, Rafaela de Oliveira
Pavarini, Gabriela
A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil
title A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil
title_full A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil
title_fullStr A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil
title_full_unstemmed A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil
title_short A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil
title_sort collective autoethnography of coproduction in mental health research by academic researchers and young people in brazil
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10649399/
https://www.ncbi.nlm.nih.gov/pubmed/37949502
http://dx.doi.org/10.1136/bmjgh-2023-012443
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