Priority Outcomes in Sickle Cell Disease Treatment: Co-Creation and Implementation of a Preference Exercise With Patients and Caregivers to Inform Drug Development

Involving patients as co-leaders and co-creators in research is key to reflecting the patient’s voice in decision-making. However, co-creation of patient-centered data to inform decisions is rare, especially in early drug development where patient input is critical to prioritizing patient-relevant o...

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Detalles Bibliográficos
Autores principales: Jalowsky, Maggie, Hauber, Brett, Scott, Mariah Jacqueline, Arkin, Steven, Coulter, Joshua R., Watt, Stephen J, Kelly, L Mariah G, Valentine, Ashley
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2023
Materias:
Research Brief
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10652801/
https://www.ncbi.nlm.nih.gov/pubmed/38026068
http://dx.doi.org/10.1177/23743735231213767

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