Estimating mortality in rare diseases using a population-based registry, 2002 through 2019

BACKGROUND: Rare diseases (RD) are a heterogeneous group of diseases, sharing aspects of complexity. Prognosis is variable, even in individuals with the same disease. Real-world data on RD as a whole are scarce. The aim of this study is to provide data on mortality and survival for a substantial gro...

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Detalles Bibliográficos
Autores principales: Mazzucato, Monica, Visonà Dalla Pozza, Laura, Minichiello, Cinzia, Toto, Ema, Vianello, Andrea, Facchin, Paola
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10655462/
https://www.ncbi.nlm.nih.gov/pubmed/37978388
http://dx.doi.org/10.1186/s13023-023-02944-7

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10655462/
https://www.ncbi.nlm.nih.gov/pubmed/37978388
http://dx.doi.org/10.1186/s13023-023-02944-7

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