Cargando…
Estimating mortality in rare diseases using a population-based registry, 2002 through 2019
BACKGROUND: Rare diseases (RD) are a heterogeneous group of diseases, sharing aspects of complexity. Prognosis is variable, even in individuals with the same disease. Real-world data on RD as a whole are scarce. The aim of this study is to provide data on mortality and survival for a substantial gro...
| Autores principales: | , , , , , |
|---|---|
| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2023
|
| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10655462/ https://www.ncbi.nlm.nih.gov/pubmed/37978388 http://dx.doi.org/10.1186/s13023-023-02944-7 |