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A Mixed-method Approach to Develop an Ambulatory Module of the SMA Independence Scale

BACKGROUND: Limited qualitative data exist on the symptoms and impacts of spinal muscular atrophy (SMA) experienced by ambulant individuals. An ambulant module of the SMA Independence Scale (SMAIS) was developed to quantify the assistance required to perform everyday mobility-related activities. OBJ...

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Detalles Bibliográficos
Autores principales:	Staunton, Hannah, Cleanthous, Sophie, Teodoro, Vanda, Barrett, Louise, Braid, Jessica, Ewens, Bethany, Cano, Stefan, Baranello, Giovanni, Kirschner, Janbernd, Belter, Lisa, Mayhew, Anna
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	IOS Press 2023
Materias:	Research Report
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10657657/ https://www.ncbi.nlm.nih.gov/pubmed/37742658 http://dx.doi.org/10.3233/JND-230096

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