Impact of neurofibromatosis type 1 with plexiform neurofibromas on the health-related quality of life and work productivity of adult patients and caregivers in the UK: a cross-sectional survey

BACKGROUND: Plexiform neurofibromas (PN) are complex, benign nerve-sheath tumours that occur in 30–50% of patients with neurofibromatosis type 1 (NF1), a rare, genetic disorder. PN are associated with substantial, heterogeneous morbidities that impact health-related quality of life (HRQoL), includin...

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Detalles Bibliográficos
Autores principales: Yoo, Hyun Kyoo, Porteous, Alex, Ng, Alvin, Haria, Keval, Griffiths, Annabel, Lloyd, Andrew, Yang, Xiaoqin, Kazeem, Gbenga, Barut, Volkan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10666383/
https://www.ncbi.nlm.nih.gov/pubmed/37996843
http://dx.doi.org/10.1186/s12883-023-03429-7

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