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Family Carers’ Experiences of Goals of Care Conversations in Acute Hospital Settings

End-of-life Goals of Care (GoC) discussions aim to support care that is consistent with patients’ preferences and values. This study uses an exploratory qualitative design drawing upon a social constructivist epistemology to examine family carers’ perspectives on GoC within acute Australian hospital...

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Detalles Bibliográficos
Autores principales: Vivekananda, Kitty, Jayawardene, Jayamini S., O’Connor, Moira, Watts, Kaaren J., Leonard, Anton D., Keesing, Sharon, Halkett, Georgia, Shaw, Josephine, Colgan, Valerie, Yuen, Kevin, Jolly, Renate, Towler, Simon C., Chauhan, Anupam, Nicoletti, Margherita, Johnson, Claire E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10666475/
https://www.ncbi.nlm.nih.gov/pubmed/37728282
http://dx.doi.org/10.1177/07334648231198973
Descripción
Sumario:End-of-life Goals of Care (GoC) discussions aim to support care that is consistent with patients’ preferences and values. This study uses an exploratory qualitative design drawing upon a social constructivist epistemology to examine family carers’ perspectives on GoC within acute Australian hospital settings. Twenty-five family carers of aging inpatients were recruited from six Australian hospitals to participate in recorded, semi-structured interviews. Data were transcribed and analyzed using reflexive thematic analysis. Three main themes were developed. Theme 1 explored carers’ experiences of GoC discussions—identifying varying levels of preparedness and carers' hopes for open, two-way discussions initiated by empathic Health Care Professionals (HCPs). Theme 2 examined carers’ unmet needs for time, space, consistency, and support to make careful decisions. Theme 3 identified carers advocating for patients' needs when they could not do it themselves. Preparing carers and normalizing GoC discussions relating to end-of-life care maximizes benefits for patients, carers, and HCPs involved.