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Family Carers’ Experiences of Goals of Care Conversations in Acute Hospital Settings

End-of-life Goals of Care (GoC) discussions aim to support care that is consistent with patients’ preferences and values. This study uses an exploratory qualitative design drawing upon a social constructivist epistemology to examine family carers’ perspectives on GoC within acute Australian hospital...

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Autores principales: Vivekananda, Kitty, Jayawardene, Jayamini S., O’Connor, Moira, Watts, Kaaren J., Leonard, Anton D., Keesing, Sharon, Halkett, Georgia, Shaw, Josephine, Colgan, Valerie, Yuen, Kevin, Jolly, Renate, Towler, Simon C., Chauhan, Anupam, Nicoletti, Margherita, Johnson, Claire E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10666475/
https://www.ncbi.nlm.nih.gov/pubmed/37728282
http://dx.doi.org/10.1177/07334648231198973
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author Vivekananda, Kitty
Jayawardene, Jayamini S.
O’Connor, Moira
Watts, Kaaren J.
Leonard, Anton D.
Keesing, Sharon
Halkett, Georgia
Shaw, Josephine
Colgan, Valerie
Yuen, Kevin
Jolly, Renate
Towler, Simon C.
Chauhan, Anupam
Nicoletti, Margherita
Johnson, Claire E.
author_facet Vivekananda, Kitty
Jayawardene, Jayamini S.
O’Connor, Moira
Watts, Kaaren J.
Leonard, Anton D.
Keesing, Sharon
Halkett, Georgia
Shaw, Josephine
Colgan, Valerie
Yuen, Kevin
Jolly, Renate
Towler, Simon C.
Chauhan, Anupam
Nicoletti, Margherita
Johnson, Claire E.
author_sort Vivekananda, Kitty
collection PubMed
description End-of-life Goals of Care (GoC) discussions aim to support care that is consistent with patients’ preferences and values. This study uses an exploratory qualitative design drawing upon a social constructivist epistemology to examine family carers’ perspectives on GoC within acute Australian hospital settings. Twenty-five family carers of aging inpatients were recruited from six Australian hospitals to participate in recorded, semi-structured interviews. Data were transcribed and analyzed using reflexive thematic analysis. Three main themes were developed. Theme 1 explored carers’ experiences of GoC discussions—identifying varying levels of preparedness and carers' hopes for open, two-way discussions initiated by empathic Health Care Professionals (HCPs). Theme 2 examined carers’ unmet needs for time, space, consistency, and support to make careful decisions. Theme 3 identified carers advocating for patients' needs when they could not do it themselves. Preparing carers and normalizing GoC discussions relating to end-of-life care maximizes benefits for patients, carers, and HCPs involved.
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spelling pubmed-106664752023-11-23 Family Carers’ Experiences of Goals of Care Conversations in Acute Hospital Settings Vivekananda, Kitty Jayawardene, Jayamini S. O’Connor, Moira Watts, Kaaren J. Leonard, Anton D. Keesing, Sharon Halkett, Georgia Shaw, Josephine Colgan, Valerie Yuen, Kevin Jolly, Renate Towler, Simon C. Chauhan, Anupam Nicoletti, Margherita Johnson, Claire E. J Appl Gerontol Advance Care Planning End-of-life Goals of Care (GoC) discussions aim to support care that is consistent with patients’ preferences and values. This study uses an exploratory qualitative design drawing upon a social constructivist epistemology to examine family carers’ perspectives on GoC within acute Australian hospital settings. Twenty-five family carers of aging inpatients were recruited from six Australian hospitals to participate in recorded, semi-structured interviews. Data were transcribed and analyzed using reflexive thematic analysis. Three main themes were developed. Theme 1 explored carers’ experiences of GoC discussions—identifying varying levels of preparedness and carers' hopes for open, two-way discussions initiated by empathic Health Care Professionals (HCPs). Theme 2 examined carers’ unmet needs for time, space, consistency, and support to make careful decisions. Theme 3 identified carers advocating for patients' needs when they could not do it themselves. Preparing carers and normalizing GoC discussions relating to end-of-life care maximizes benefits for patients, carers, and HCPs involved. SAGE Publications 2023-09-20 2023-12 /pmc/articles/PMC10666475/ /pubmed/37728282 http://dx.doi.org/10.1177/07334648231198973 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Advance Care Planning
Vivekananda, Kitty
Jayawardene, Jayamini S.
O’Connor, Moira
Watts, Kaaren J.
Leonard, Anton D.
Keesing, Sharon
Halkett, Georgia
Shaw, Josephine
Colgan, Valerie
Yuen, Kevin
Jolly, Renate
Towler, Simon C.
Chauhan, Anupam
Nicoletti, Margherita
Johnson, Claire E.
Family Carers’ Experiences of Goals of Care Conversations in Acute Hospital Settings
title Family Carers’ Experiences of Goals of Care Conversations in Acute Hospital Settings
title_full Family Carers’ Experiences of Goals of Care Conversations in Acute Hospital Settings
title_fullStr Family Carers’ Experiences of Goals of Care Conversations in Acute Hospital Settings
title_full_unstemmed Family Carers’ Experiences of Goals of Care Conversations in Acute Hospital Settings
title_short Family Carers’ Experiences of Goals of Care Conversations in Acute Hospital Settings
title_sort family carers’ experiences of goals of care conversations in acute hospital settings
topic Advance Care Planning
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10666475/
https://www.ncbi.nlm.nih.gov/pubmed/37728282
http://dx.doi.org/10.1177/07334648231198973
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