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Barriers to the Diagnosis, Care, and Management of Pediatric Patients With Ehlers-Danlos Syndrome in the United States: A Qualitative Analysis

Objectives: Ehlers-Danlos Syndromes (EDS) are a family of heritable connective tissue diseases. Primary practitioners are capable of diagnosing and managing EDS; however, few are knowledgeable and comfortable enough to see patients with EDS, resulting in delays in diagnosis and care. This study expl...

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Detalles Bibliográficos
Autores principales:	Black, William R., Black, Lora L., Jones, Jordan T.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	SAGE Publications 2023
Materias:	Provider Wellness, Training, and Education
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10666714/ https://www.ncbi.nlm.nih.gov/pubmed/38024462 http://dx.doi.org/10.1177/2333794X231212081

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