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Feasibility of Using Research Electronic Data Capture (REDCap) to Collect Daily Experiences of Parent-Child Dyads: Ecological Momentary Assessment Study

BACKGROUND: Intensive longitudinal data collection, including ecological momentary assessment (EMA), has the potential to reduce recall biases, collect more ecologically valid data, and increase our understanding of dynamic associations between variables. EMA is typically administered using an appli...

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Autores principales: El Dahr, Yola, Perquier, Florence, Moloney, Madison, Woo, Guyyunge, Dobrin-De Grace, Roksana, Carvalho, Daniela, Addario, Nicole, Cameron, Emily E, Roos, Leslie E, Szatmari, Peter, Aitken, Madison
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10667976/
https://www.ncbi.nlm.nih.gov/pubmed/37943593
http://dx.doi.org/10.2196/42916
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author El Dahr, Yola
Perquier, Florence
Moloney, Madison
Woo, Guyyunge
Dobrin-De Grace, Roksana
Carvalho, Daniela
Addario, Nicole
Cameron, Emily E
Roos, Leslie E
Szatmari, Peter
Aitken, Madison
author_facet El Dahr, Yola
Perquier, Florence
Moloney, Madison
Woo, Guyyunge
Dobrin-De Grace, Roksana
Carvalho, Daniela
Addario, Nicole
Cameron, Emily E
Roos, Leslie E
Szatmari, Peter
Aitken, Madison
author_sort El Dahr, Yola
collection PubMed
description BACKGROUND: Intensive longitudinal data collection, including ecological momentary assessment (EMA), has the potential to reduce recall biases, collect more ecologically valid data, and increase our understanding of dynamic associations between variables. EMA is typically administered using an application that is downloaded on participants’ devices, which presents cost and privacy concerns that may limit its use. Research Electronic Data Capture (REDCap), a web-based survey application freely available to nonprofit organizations, may allow researchers to overcome these barriers; however, at present, little guidance is available to researchers regarding the setup of EMA in REDCap, especially for those who are new to using REDCap or lack advanced programming expertise. OBJECTIVE: We provide an example of a simplified EMA setup in REDCap. This study aims to demonstrate the feasibility of this approach. We provide information on survey completion and user behavior in a sample of parents and children recruited across Canada. METHODS: We recruited 66 parents and their children (aged 9-13 years old) from an existing longitudinal cohort study to participate in a study on risk and protective factors for children’s mental health. Parents received survey prompts (morning and evening) by email or SMS text message for 14 days, twice daily. Each survey prompt contained 2 sections, one for parents and one for children to complete. RESULTS: The completion rates were good (mean 82%, SD 8%) and significantly higher on weekdays than weekends and in dyads with girls than dyads with boys. Children were available to respond to their own survey questions most of the time (in 1134/1498, 75.7% of surveys submitted). The number of assessments submitted was significantly higher, and response times were significantly faster among participants who selected SMS text message survey notifications compared to email survey notifications. The average response time was 47.0 minutes after the initial survey notification, and the use of reminder messages increased survey completion. CONCLUSIONS: Our results support the feasibility of using REDCap for EMA studies with parents and children. REDCap also has features that can accommodate EMA studies by recruiting participants across multiple time zones and providing different survey delivery methods. Offering the option of SMS text message survey notifications and reminders may be an important way to increase completion rates and the timeliness of responses. REDCap is a potentially useful tool for researchers wishing to implement EMA in settings in which cost or privacy are current barriers. Researchers should weigh these benefits with the potential limitations of REDCap and this design, including staff time to set up, monitor, and clean the data outputs of the project.
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spelling pubmed-106679762023-11-09 Feasibility of Using Research Electronic Data Capture (REDCap) to Collect Daily Experiences of Parent-Child Dyads: Ecological Momentary Assessment Study El Dahr, Yola Perquier, Florence Moloney, Madison Woo, Guyyunge Dobrin-De Grace, Roksana Carvalho, Daniela Addario, Nicole Cameron, Emily E Roos, Leslie E Szatmari, Peter Aitken, Madison JMIR Form Res Original Paper BACKGROUND: Intensive longitudinal data collection, including ecological momentary assessment (EMA), has the potential to reduce recall biases, collect more ecologically valid data, and increase our understanding of dynamic associations between variables. EMA is typically administered using an application that is downloaded on participants’ devices, which presents cost and privacy concerns that may limit its use. Research Electronic Data Capture (REDCap), a web-based survey application freely available to nonprofit organizations, may allow researchers to overcome these barriers; however, at present, little guidance is available to researchers regarding the setup of EMA in REDCap, especially for those who are new to using REDCap or lack advanced programming expertise. OBJECTIVE: We provide an example of a simplified EMA setup in REDCap. This study aims to demonstrate the feasibility of this approach. We provide information on survey completion and user behavior in a sample of parents and children recruited across Canada. METHODS: We recruited 66 parents and their children (aged 9-13 years old) from an existing longitudinal cohort study to participate in a study on risk and protective factors for children’s mental health. Parents received survey prompts (morning and evening) by email or SMS text message for 14 days, twice daily. Each survey prompt contained 2 sections, one for parents and one for children to complete. RESULTS: The completion rates were good (mean 82%, SD 8%) and significantly higher on weekdays than weekends and in dyads with girls than dyads with boys. Children were available to respond to their own survey questions most of the time (in 1134/1498, 75.7% of surveys submitted). The number of assessments submitted was significantly higher, and response times were significantly faster among participants who selected SMS text message survey notifications compared to email survey notifications. The average response time was 47.0 minutes after the initial survey notification, and the use of reminder messages increased survey completion. CONCLUSIONS: Our results support the feasibility of using REDCap for EMA studies with parents and children. REDCap also has features that can accommodate EMA studies by recruiting participants across multiple time zones and providing different survey delivery methods. Offering the option of SMS text message survey notifications and reminders may be an important way to increase completion rates and the timeliness of responses. REDCap is a potentially useful tool for researchers wishing to implement EMA in settings in which cost or privacy are current barriers. Researchers should weigh these benefits with the potential limitations of REDCap and this design, including staff time to set up, monitor, and clean the data outputs of the project. JMIR Publications 2023-11-09 /pmc/articles/PMC10667976/ /pubmed/37943593 http://dx.doi.org/10.2196/42916 Text en ©Yola El Dahr, Florence Perquier, Madison Moloney, Guyyunge Woo, Roksana Dobrin-De Grace, Daniela Carvalho, Nicole Addario, Emily E Cameron, Leslie E Roos, Peter Szatmari, Madison Aitken. Originally published in JMIR Formative Research (https://formative.jmir.org), 09.11.2023. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on https://formative.jmir.org, as well as this copyright and license information must be included.
spellingShingle Original Paper
El Dahr, Yola
Perquier, Florence
Moloney, Madison
Woo, Guyyunge
Dobrin-De Grace, Roksana
Carvalho, Daniela
Addario, Nicole
Cameron, Emily E
Roos, Leslie E
Szatmari, Peter
Aitken, Madison
Feasibility of Using Research Electronic Data Capture (REDCap) to Collect Daily Experiences of Parent-Child Dyads: Ecological Momentary Assessment Study
title Feasibility of Using Research Electronic Data Capture (REDCap) to Collect Daily Experiences of Parent-Child Dyads: Ecological Momentary Assessment Study
title_full Feasibility of Using Research Electronic Data Capture (REDCap) to Collect Daily Experiences of Parent-Child Dyads: Ecological Momentary Assessment Study
title_fullStr Feasibility of Using Research Electronic Data Capture (REDCap) to Collect Daily Experiences of Parent-Child Dyads: Ecological Momentary Assessment Study
title_full_unstemmed Feasibility of Using Research Electronic Data Capture (REDCap) to Collect Daily Experiences of Parent-Child Dyads: Ecological Momentary Assessment Study
title_short Feasibility of Using Research Electronic Data Capture (REDCap) to Collect Daily Experiences of Parent-Child Dyads: Ecological Momentary Assessment Study
title_sort feasibility of using research electronic data capture (redcap) to collect daily experiences of parent-child dyads: ecological momentary assessment study
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10667976/
https://www.ncbi.nlm.nih.gov/pubmed/37943593
http://dx.doi.org/10.2196/42916
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