Prioritization of research engaged with rare disease stakeholders: a systematic review and thematic analysis

BACKGROUND: Although rare diseases (RD) are increasingly becoming a priority for healthcare activities and services around the world, developing research policy for investigating RD in public settings proves challenging due to the limited nature of existing evidence. Rare conditions require the invo...

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Detalles Bibliográficos
Autores principales: Yoon, Soho, Lee, Minjee, Jung, Hoi-In, Khan, M. Mahmud, Kim, So-Yoon, Kim, Hannah, Wasti, Sophia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10668415/
https://www.ncbi.nlm.nih.gov/pubmed/37996931
http://dx.doi.org/10.1186/s13023-023-02892-2

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10668415/
https://www.ncbi.nlm.nih.gov/pubmed/37996931
http://dx.doi.org/10.1186/s13023-023-02892-2

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