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Prioritization of research engaged with rare disease stakeholders: a systematic review and thematic analysis
BACKGROUND: Although rare diseases (RD) are increasingly becoming a priority for healthcare activities and services around the world, developing research policy for investigating RD in public settings proves challenging due to the limited nature of existing evidence. Rare conditions require the invo...
| Autores principales: | , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2023
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10668415/ https://www.ncbi.nlm.nih.gov/pubmed/37996931 http://dx.doi.org/10.1186/s13023-023-02892-2 |