Cargando…

The Experience of Parental Caregiving for Children With Medical Complexity

Children with medical complexity (CMC) have complex chronic conditions with significant functional impairment, contributing to high caregiving demand. This study seeks to explore impacts of parental caregiving for CMC. Fifteen caregivers of CMC followed at a tertiary care hospital participated in se...

Descripción completa

Detalles Bibliográficos
Autores principales:	Teicher, Jessica, Moore, Clara, Esser, Kayla, Weiser, Natalie, Arje, Danielle, Cohen, Eyal, Orkin, Julia
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	SAGE Publications 2022
Materias:	Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10676025/ https://www.ncbi.nlm.nih.gov/pubmed/36475307 http://dx.doi.org/10.1177/00099228221142102

Ejemplares similares

The parental experience and perceptions of blenderized tube feeding for children with medical complexity
por: Soscia, Joanna, et al.
Publicado: (2021)

Assessment of Bereaved Caregiver Experiences of Advance Care Planning for Children With Medical Complexity
por: Lord, Sarah, et al.
Publicado: (2020)

Caregivers’ Experiences With a Web- and Mobile-Based Platform for Children With Medical Complexity and the Role of a Live Platform Coach: Thematic Analysis
por: Shouldice, Ainslie Claire, et al.
Publicado: (2023)

Perspectives on team communication challenges in caring for children with medical complexity
por: Adams, Sherri, et al.
Publicado: (2021)

Caring for children with new medical technology at home: parental perspectives
por: Pitch, Natalie, et al.
Publicado: (2023)

Acceptance and Commitment Therapy for Children with Special Health Care Needs and Their Parents: A Systematic Review and Meta-Analysis
por: Parmar, Arpita, et al.
Publicado: (2021)

Evaluation of a Secure Messaging System in the Care of Children With Medical Complexity: Mixed Methods Study
por: Parpia, Camilla, et al.
Publicado: (2023)

Genome Sequencing as a Diagnostic Test in Children With Unexplained Medical Complexity
por: Costain, Gregory, et al.
Publicado: (2020)

The impact of the COVID-19 pandemic on children with medical complexity
por: Diskin, Catherine, et al.
Publicado: (2022)

Screening for caregiver psychosocial risk in children with medical complexity: a cross-sectional study
por: Verma, Rahul, et al.
Publicado: (2020)

Decision-making for Parents of Children With Medical Complexities: Activity Theory Analysis
por: Buchanan, Francine, et al.
Publicado: (2022)

Screening for psychosocial risk in caregivers of children with medical complexity during the COVID-19 pandemic: a cross-sectional study
por: Pitch, Natalie, et al.
Publicado: (2023)

Research priorities for children with neurological impairment and medical complexity in high‐income countries
por: Diskin, Catherine, et al.
Publicado: (2021)

Experiences of medical traumatic stress in parents of children with medical complexity
por: Dewan, Tammie, et al.
Publicado: (2022)

Implementing a Care Coordination Strategy for Children with Medical Complexity in Ontario, Canada: A Process Evaluation
por: Quartarone, Samantha, et al.
Publicado: (2022)

Exploring the experience of family caregivers of children with medical complexity during COVID-19: a qualitative study
por: Pitch, Natalie, et al.
Publicado: (2023)

Exploring the experiences of parent caregivers of children with chronic medical complexity during pediatric intensive care unit hospitalization: an interpretive descriptive study
por: Rennick, Janet E., et al.
Publicado: (2019)

Understanding parents’ experiences of care for children with medical complexity in England: a qualitative study
por: McLorie, Emma Victoria, et al.
Publicado: (2023)

Effectiveness of Structured Care Coordination for Children With Medical Complexity: The Complex Care for Kids Ontario (CCKO) Randomized Clinical Trial
por: Cohen, Eyal, et al.
Publicado: (2023)

Pharmacogenetic profiling via genome sequencing in children with medical complexity
por: Pan, Amy, et al.
Publicado: (2022)

Childhood trauma and the enduring consequences of forcibly separating children from parents at the United States border
por: Teicher, Martin H.
Publicado: (2018)

EVALUATION OF QUALITY OF LIFE OF PARENTS AND CAREGIVERS OF ASTHMATIC CHILDREN
por: Roncada, Cristian, et al.
Publicado: (2018)

A qualitative analysis of information sharing for children with medical complexity within and across health care organizations
por: Quigley, Laura, et al.
Publicado: (2014)

MINDFULNESS AND CAREGIVING EXPERIENCE IN ADRD CAREGIVERS
por: Tolea, Magdalena, et al.
Publicado: (2022)

37 Accessible and Specialized COVID-19 Testing for Children and Youth with Medical Complexity
por: Dharmaraj, Blossom, et al.
Publicado: (2022)

Oral Care Experiences of Latino Parents/Caregivers with Children with Autism and with Typically Developing Children
por: Floríndez, Lucía I., et al.
Publicado: (2019)

An assessment of information needs and workflows for emergency service providers and caregivers of children with medical complexity
por: Honcoop, Aubree, et al.
Publicado: (2023)

Process Evaluation of a Hub-and-Spoke Model to Deliver Coordinated Care for Children with Medical Complexity across Ontario: Facilitators, Barriers and Lessons Learned
por: Lin, Jia Lu Lilian, et al.
Publicado: (2021)

Contemporary aetiologies of medical complexity in children: a cohort study
por: Haque, Bushra, et al.
Publicado: (2023)

The Experience of Transitional Care for Non-Medically Complex Older Adults and Their Family Caregivers
por: Georgiadis, Alexandros, et al.
Publicado: (2017)

Maladie de Lyme chez un nouveau-né, compliquée par une réaction de Jarisch–Herxheimer
por: Prodanuk, Michael, et al.
Publicado: (2022)

Lyme disease in a neonate complicated by the Jarisch–Herxheimer reaction
por: Prodanuk, Michael, et al.
Publicado: (2022)

Coached, Coordinated, Enhanced Neonatal Transition (CCENT): protocol for a multicentre pragmatic randomised controlled trial of transition-to-home support for parents of high-risk infants
por: Orkin, Julia, et al.
Publicado: (2021)

Coping and caregiving experience of parents of children and adolescents with type-1 diabetes: An exploratory study
por: Grover, Sandeep, et al.
Publicado: (2016)

Parents’ and caregivers’ experiences and behaviours when eating out with children with a food hypersensitivity
por: Begen, Fiona M., et al.
Publicado: (2017)

Child Welfare System Involvement Among Children With Medical Complexity
por: Azzopardi, Corry, et al.
Publicado: (2021)

Medical cannabis in schools: The experiences of caregivers
por: Mansell, Holly, et al.
Publicado: (2023)

Health system strategies supporting transition to adult care
por: Hepburn, Charlotte Moore, et al.
Publicado: (2015)

“Parenting my parents”: Perspectives of adult children on assuming and remaining in the caregiver's role
por: Charenkova, Jūratė
Publicado: (2023)

Decisional conflict, caregiver mastery, and depression among Chinese parental caregivers of children with leukemia
por: Liu, Mowen, et al.
Publicado: (2023)

Cannot write session to /tmp/vufind_sessions/sess_lh2kluvbsvl76talkgehcv41no