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Educational needs of patients, families, and healthcare professionals to support the patient journey in haemophilia gene therapy in the UK
With the first gene therapies for haemophilia approved by the European Commission, the US Food and Drug Administration, and the Medicines and Healthcare products Regulatory Agency, it is important to consider the remaining unmet needs and challenges that may arise throughout patients’ treatment jour...
Autores principales: | Boyce, Sara, Fletcher, Simon, Jones, April, Kohli, Ruchika, Mangles, Sarah, Ong, Min, Pollard, Debra, Sivasubramaniyam, Sujan, Stephensen, David, Stoner, Nicola, Kazmi, Rashid |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10676600/ https://www.ncbi.nlm.nih.gov/pubmed/38007560 http://dx.doi.org/10.1186/s13023-023-02977-y |
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