Cargando…

Results of VOICE: a global survey of disease-specific knowledge and perspectives of real-world patients with CLL

The Virtual Opinions poll Independent Centered on CLL patients’ Experience (VOICE) evaluated patients’ knowledge about chronic lymphocytic leukemia (CLL), their perspectives on diagnosis and treatment, and their unmet needs. Clinicians and patient advocacy group representatives developed and distrib...

Descripción completa

Detalles Bibliográficos
Autores principales:	Tam, Constantine, Pinilla-Ibarz, Javier, Castillo, Carolina G., Fenili, Ana Cristina, Huntley, Kathryn, Karakus, Volkan, Mattar, Mervat, Miroli, Miguel A., Moura, Catherine, Pavlovsky, Miguel, Piotrowski, Fernando, Šimkovič, Martin, Stilgenbauer, Stephan
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	The American Society of Hematology 2023
Materias:	Health Services and Outcomes
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10679812/ https://www.ncbi.nlm.nih.gov/pubmed/37722356 http://dx.doi.org/10.1182/bloodadvances.2023010879

Ejemplares similares

PB1945: PATIENT PERSPECTIVES ON CLL TREATMENT SIDE EFFECTS: A SUB-ANALYSIS OF THE VOICE SURVEY
por: Tam, Constantine, et al.
Publicado: (2023)

Health-related quality of life with idecabtagene vicleucel in relapsed and refractory multiple myeloma
por: Delforge, Michel, et al.
Publicado: (2022)

Analysis of disparities in time to allogeneic transplantation in adults with acute myelogenous leukemia
por: Fingrut, Warren B., et al.
Publicado: (2022)

Outcomes of patients with hematologic malignancies and COVID-19: a report from the ASH Research Collaborative Data Hub
por: Wood, William A., et al.
Publicado: (2020)

COVID-19 in individuals with sickle cell disease/trait compared with other Black individuals
por: Singh, Ashima, et al.
Publicado: (2021)

Racial and ethnic enrollment disparities and demographic reporting requirements in acute leukemia clinical trials
por: Hantel, Andrew, et al.
Publicado: (2021)

Core set of patient-reported outcomes for myelodysplastic syndromes: an EUMDS Delphi study involving patients and hematologists
por: Stojkov, Igor, et al.
Publicado: (2021)

How to write a guideline: a proposal for a manuscript template that supports the creation of trustworthy guidelines
por: Nieuwlaat, Robby, et al.
Publicado: (2021)

The economic burden of NIPC and BOS following allogeneic HSCT in patients with commercial insurance in the United States
por: Sacks, Naomi C., et al.
Publicado: (2022)

Portable medical orders and end-of-life measures in acute myeloid leukemia and myelodysplastic syndromes
por: LoCastro, Marissa, et al.
Publicado: (2021)

Precancer and cancer-associated depression and anxiety among older adults with blood cancers in the United States
por: Kuczmarski, Thomas M., et al.
Publicado: (2022)

Indirect comparison of tisagenlecleucel and blinatumomab in pediatric relapsed/refractory acute lymphoblastic leukemia
por: Verneris, Michael R., et al.
Publicado: (2021)

ASH Research Collaborative: a real-world data infrastructure to support real-world evidence development and learning healthcare systems in hematology
por: Wood, William A., et al.
Publicado: (2021)

Code status transitions in patients with high-risk acute myeloid leukemia
por: Abrams, Hannah R., et al.
Publicado: (2022)

Lifetime medical costs attributable to sickle cell disease among nonelderly individuals with commercial insurance
por: Johnson, Kate M., et al.
Publicado: (2022)

Outcomes of breakthrough COVID-19 infections in patients with hematologic malignancies
por: Chien, Kelly S., et al.
Publicado: (2023)

Second malignancies among older patients with classical myeloproliferative neoplasms treated with hydroxyurea
por: Wang, Rong, et al.
Publicado: (2022)

Evaluating the impact of eligibility criteria in first-line clinical trials for follicular lymphoma: a MER/LEO cohort analysis
por: Luan, Danny, et al.
Publicado: (2022)

Quality of life, psychological distress, and prognostic perceptions in caregivers of patients with multiple myeloma
por: O’Donnell, Elizabeth K., et al.
Publicado: (2022)

Coping in caregivers of patients with hematologic malignancies undergoing hematopoietic stem cell transplantation
por: Amonoo, Hermioni L., et al.
Publicado: (2022)

What do patients think about palliative care? A national survey of hematopoietic stem cell transplant recipients
por: Barata, Anna, et al.
Publicado: (2023)

Prevalence of frailty and its association with clinical outcomes in myeloproliferative neoplasms: a population-based study
por: Bankar, Aniket, et al.
Publicado: (2023)

Real-world comparative effectiveness of acalabrutinib and ibrutinib in patients with chronic lymphocytic leukemia
por: Roeker, Lindsey E., et al.
Publicado: (2023)

Current clinical practices and challenges in molecular testing: a GOAL Consortium Hematopathology Working Group report
por: Lee, Thomas D., et al.
Publicado: (2023)

Consensus recommendations on peripheral blood smear review: defining curricular standards and fellow competency
por: Chase, Matthew L., et al.
Publicado: (2023)

Older patients with chronic myeloid leukemia face suboptimal molecular testing and tyrosine kinase inhibitor adherence
por: Shallis, Rory M., et al.
Publicado: (2023)

Most adults with severe HbSC disease are not treated with hydroxyurea
por: Ghunney, William Kwesi, et al.
Publicado: (2023)

Preliminary construct validity of patient-reported outcomes to assess chronic pain in adults with sickle cell disease
por: Mucalo, Lana, et al.
Publicado: (2023)

Health following recovery from immune thrombotic thrombocytopenic purpura: the patient’s perspective
por: Kelley, Rachel A., et al.
Publicado: (2022)

Outcomes before and after providing interdisciplinary hematology and pulmonary care for children with sickle cell disease
por: Zeno, Rachel N., et al.
Publicado: (2022)

Burnout in US hematologists and oncologists: impact of compensation models and advanced practice provider support
por: Lee, Alfred Ian, et al.
Publicado: (2022)

Longitudinal patient-reported outcomes in patients receiving chimeric antigen receptor T-cell therapy
por: Johnson, P. Connor, et al.
Publicado: (2023)

Influence of participant and reviewer characteristics in application scores for a hematology research training program
por: Vesely, Sara K., et al.
Publicado: (2023)

Creating an automated contemporaneous cohort in sickle cell anemia to predict survival after disease-modifying therapy
por: Cronin, Robert M., et al.
Publicado: (2022)

Estimated mortality rates of individuals with sickle cell disease in Brazil: real-world evidence
por: Cançado, Rodolfo Delfini, et al.
Publicado: (2023)

Current Treatment Options in CLL
por: Bewarder, Moritz, et al.
Publicado: (2021)

Targeted therapy in CLL: changing the treatment paradigm
por: Schneider, Christof, et al.
Publicado: (2019)

Loss of AID exacerbates the malignant progression of CLL
por: Lee, Avery C., et al.
Publicado: (2022)

From Biology to Therapy: The CLL Success Story
por: Yosifov, Deyan Y., et al.
Publicado: (2019)

Melanoma and CLL co-occurrence and survival: role of KC history
por: Zhao, Yayi, et al.
Publicado: (2023)

Cannot write session to /tmp/vufind_sessions/sess_6gcspc3ccdraoo8255q54cleq0