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Variability of Psychosocial Services Within the ImproveCareNow Learning Health System: Opportunities for Optimization

Care for youth with pediatric inflammatory bowel disease (IBD) is the focus of ImproveCareNow (ICN), an international learning health system devoted to quality care and improved outcomes through collaboration, data sharing, and research. Known to be significantly disruptive to normative social devel...

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Detalles Bibliográficos
Autores principales: Winnick, Joel B., Jacobs, Noel, David, Jennie G., Moua, Mai Ku, Saeed, Shehzad A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Lippincott Williams & Wilkins, Inc. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10684172/
https://www.ncbi.nlm.nih.gov/pubmed/38034461
http://dx.doi.org/10.1097/PG9.0000000000000349
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author Winnick, Joel B.
Jacobs, Noel
David, Jennie G.
Moua, Mai Ku
Saeed, Shehzad A.
author_facet Winnick, Joel B.
Jacobs, Noel
David, Jennie G.
Moua, Mai Ku
Saeed, Shehzad A.
author_sort Winnick, Joel B.
collection PubMed
description Care for youth with pediatric inflammatory bowel disease (IBD) is the focus of ImproveCareNow (ICN), an international learning health system devoted to quality care and improved outcomes through collaboration, data sharing, and research. Known to be significantly disruptive to normative social development and quality of life, pediatric IBD significantly increases the risk of internalizing distress and secondary developmental sequelae. While multidisciplinary support including psychosocial care (from social workers and pediatric psychologists) is growing, this evidence-based and beneficial set of services is not universally available to youth with IBD. In a survey sent to the more than 100 established ICN centers, psychosocial providers attempted to identify the coverage and practice scope of psychosocial providers within the network. Results indicated that support varies widely by service type and availability of providers. Recommendations for further research and considerations for centers seeking to expand supports are considered.
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spelling pubmed-106841722023-11-30 Variability of Psychosocial Services Within the ImproveCareNow Learning Health System: Opportunities for Optimization Winnick, Joel B. Jacobs, Noel David, Jennie G. Moua, Mai Ku Saeed, Shehzad A. JPGN Rep Brief Report Care for youth with pediatric inflammatory bowel disease (IBD) is the focus of ImproveCareNow (ICN), an international learning health system devoted to quality care and improved outcomes through collaboration, data sharing, and research. Known to be significantly disruptive to normative social development and quality of life, pediatric IBD significantly increases the risk of internalizing distress and secondary developmental sequelae. While multidisciplinary support including psychosocial care (from social workers and pediatric psychologists) is growing, this evidence-based and beneficial set of services is not universally available to youth with IBD. In a survey sent to the more than 100 established ICN centers, psychosocial providers attempted to identify the coverage and practice scope of psychosocial providers within the network. Results indicated that support varies widely by service type and availability of providers. Recommendations for further research and considerations for centers seeking to expand supports are considered. Lippincott Williams & Wilkins, Inc. 2023-08-16 /pmc/articles/PMC10684172/ /pubmed/38034461 http://dx.doi.org/10.1097/PG9.0000000000000349 Text en Copyright © 2023 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of the European Society for Pediatric Gastroenterology, Hepatology, and Nutrition and the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the Creative Commons Attribution License 4.0 (CCBY (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Brief Report
Winnick, Joel B.
Jacobs, Noel
David, Jennie G.
Moua, Mai Ku
Saeed, Shehzad A.
Variability of Psychosocial Services Within the ImproveCareNow Learning Health System: Opportunities for Optimization
title Variability of Psychosocial Services Within the ImproveCareNow Learning Health System: Opportunities for Optimization
title_full Variability of Psychosocial Services Within the ImproveCareNow Learning Health System: Opportunities for Optimization
title_fullStr Variability of Psychosocial Services Within the ImproveCareNow Learning Health System: Opportunities for Optimization
title_full_unstemmed Variability of Psychosocial Services Within the ImproveCareNow Learning Health System: Opportunities for Optimization
title_short Variability of Psychosocial Services Within the ImproveCareNow Learning Health System: Opportunities for Optimization
title_sort variability of psychosocial services within the improvecarenow learning health system: opportunities for optimization
topic Brief Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10684172/
https://www.ncbi.nlm.nih.gov/pubmed/38034461
http://dx.doi.org/10.1097/PG9.0000000000000349
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