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Indigenous Peoples and research: self-determination in research governance

Indigenous Peoples are reimagining their relationship with research and researchers through greater self-determination and involvement in research governance. The emerging discourse around Indigenous Data Sovereignty has provoked discussions about decolonizing data practices and highlighted the impo...

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Autores principales: Garba, Ibrahim, Sterling, Rogena, Plevel, Rebecca, Carson, William, Cordova-Marks, Felina M., Cummins, Jewel, Curley, Caleigh, David-Chavez, Dominique, Fernandez, Adam, Hiraldo, Danielle, Hiratsuka, Vanessa, Hudson, Maui, Jäger, Mary Beth, Jennings, Lydia L., Martinez, Andrew, Yracheta, Joseph, Garrison, Nanibaa' A., Carroll, Stephanie Russo
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10685893/
https://www.ncbi.nlm.nih.gov/pubmed/38033627
http://dx.doi.org/10.3389/frma.2023.1272318
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author Garba, Ibrahim
Sterling, Rogena
Plevel, Rebecca
Carson, William
Cordova-Marks, Felina M.
Cummins, Jewel
Curley, Caleigh
David-Chavez, Dominique
Fernandez, Adam
Hiraldo, Danielle
Hiratsuka, Vanessa
Hudson, Maui
Jäger, Mary Beth
Jennings, Lydia L.
Martinez, Andrew
Yracheta, Joseph
Garrison, Nanibaa' A.
Carroll, Stephanie Russo
author_facet Garba, Ibrahim
Sterling, Rogena
Plevel, Rebecca
Carson, William
Cordova-Marks, Felina M.
Cummins, Jewel
Curley, Caleigh
David-Chavez, Dominique
Fernandez, Adam
Hiraldo, Danielle
Hiratsuka, Vanessa
Hudson, Maui
Jäger, Mary Beth
Jennings, Lydia L.
Martinez, Andrew
Yracheta, Joseph
Garrison, Nanibaa' A.
Carroll, Stephanie Russo
author_sort Garba, Ibrahim
collection PubMed
description Indigenous Peoples are reimagining their relationship with research and researchers through greater self-determination and involvement in research governance. The emerging discourse around Indigenous Data Sovereignty has provoked discussions about decolonizing data practices and highlighted the importance of Indigenous Data Governance to support Indigenous decision-making and control of data. Given that much data are generated from research, Indigenous research governance and Indigenous Data Governance overlap. In this paper, we broaden the concept of Indigenous Data Sovereignty by using the CARE Principles for Indigenous Data Governance to discuss how research legislation and policy adopted by Indigenous Peoples in the US set expectations around recognizing sovereign relationships, acknowledging rights and interests in data, and enabling Indigenous Peoples' participation in research governance.
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spelling pubmed-106858932023-11-30 Indigenous Peoples and research: self-determination in research governance Garba, Ibrahim Sterling, Rogena Plevel, Rebecca Carson, William Cordova-Marks, Felina M. Cummins, Jewel Curley, Caleigh David-Chavez, Dominique Fernandez, Adam Hiraldo, Danielle Hiratsuka, Vanessa Hudson, Maui Jäger, Mary Beth Jennings, Lydia L. Martinez, Andrew Yracheta, Joseph Garrison, Nanibaa' A. Carroll, Stephanie Russo Front Res Metr Anal Research Metrics and Analytics Indigenous Peoples are reimagining their relationship with research and researchers through greater self-determination and involvement in research governance. The emerging discourse around Indigenous Data Sovereignty has provoked discussions about decolonizing data practices and highlighted the importance of Indigenous Data Governance to support Indigenous decision-making and control of data. Given that much data are generated from research, Indigenous research governance and Indigenous Data Governance overlap. In this paper, we broaden the concept of Indigenous Data Sovereignty by using the CARE Principles for Indigenous Data Governance to discuss how research legislation and policy adopted by Indigenous Peoples in the US set expectations around recognizing sovereign relationships, acknowledging rights and interests in data, and enabling Indigenous Peoples' participation in research governance. Frontiers Media S.A. 2023-11-15 /pmc/articles/PMC10685893/ /pubmed/38033627 http://dx.doi.org/10.3389/frma.2023.1272318 Text en Copyright © 2023 Garba, Sterling, Plevel, Carson, Cordova-Marks, Cummins, Curley, David-Chavez, Fernandez, Hiraldo, Hiratsuka, Hudson, Jäger, Jennings, Martinez, Yracheta, Garrison and Carroll. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Research Metrics and Analytics
Garba, Ibrahim
Sterling, Rogena
Plevel, Rebecca
Carson, William
Cordova-Marks, Felina M.
Cummins, Jewel
Curley, Caleigh
David-Chavez, Dominique
Fernandez, Adam
Hiraldo, Danielle
Hiratsuka, Vanessa
Hudson, Maui
Jäger, Mary Beth
Jennings, Lydia L.
Martinez, Andrew
Yracheta, Joseph
Garrison, Nanibaa' A.
Carroll, Stephanie Russo
Indigenous Peoples and research: self-determination in research governance
title Indigenous Peoples and research: self-determination in research governance
title_full Indigenous Peoples and research: self-determination in research governance
title_fullStr Indigenous Peoples and research: self-determination in research governance
title_full_unstemmed Indigenous Peoples and research: self-determination in research governance
title_short Indigenous Peoples and research: self-determination in research governance
title_sort indigenous peoples and research: self-determination in research governance
topic Research Metrics and Analytics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10685893/
https://www.ncbi.nlm.nih.gov/pubmed/38033627
http://dx.doi.org/10.3389/frma.2023.1272318
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