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Indigenous Peoples and research: self-determination in research governance
Indigenous Peoples are reimagining their relationship with research and researchers through greater self-determination and involvement in research governance. The emerging discourse around Indigenous Data Sovereignty has provoked discussions about decolonizing data practices and highlighted the impo...
Autores principales: | , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10685893/ https://www.ncbi.nlm.nih.gov/pubmed/38033627 http://dx.doi.org/10.3389/frma.2023.1272318 |
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author | Garba, Ibrahim Sterling, Rogena Plevel, Rebecca Carson, William Cordova-Marks, Felina M. Cummins, Jewel Curley, Caleigh David-Chavez, Dominique Fernandez, Adam Hiraldo, Danielle Hiratsuka, Vanessa Hudson, Maui Jäger, Mary Beth Jennings, Lydia L. Martinez, Andrew Yracheta, Joseph Garrison, Nanibaa' A. Carroll, Stephanie Russo |
author_facet | Garba, Ibrahim Sterling, Rogena Plevel, Rebecca Carson, William Cordova-Marks, Felina M. Cummins, Jewel Curley, Caleigh David-Chavez, Dominique Fernandez, Adam Hiraldo, Danielle Hiratsuka, Vanessa Hudson, Maui Jäger, Mary Beth Jennings, Lydia L. Martinez, Andrew Yracheta, Joseph Garrison, Nanibaa' A. Carroll, Stephanie Russo |
author_sort | Garba, Ibrahim |
collection | PubMed |
description | Indigenous Peoples are reimagining their relationship with research and researchers through greater self-determination and involvement in research governance. The emerging discourse around Indigenous Data Sovereignty has provoked discussions about decolonizing data practices and highlighted the importance of Indigenous Data Governance to support Indigenous decision-making and control of data. Given that much data are generated from research, Indigenous research governance and Indigenous Data Governance overlap. In this paper, we broaden the concept of Indigenous Data Sovereignty by using the CARE Principles for Indigenous Data Governance to discuss how research legislation and policy adopted by Indigenous Peoples in the US set expectations around recognizing sovereign relationships, acknowledging rights and interests in data, and enabling Indigenous Peoples' participation in research governance. |
format | Online Article Text |
id | pubmed-10685893 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Frontiers Media S.A. |
record_format | MEDLINE/PubMed |
spelling | pubmed-106858932023-11-30 Indigenous Peoples and research: self-determination in research governance Garba, Ibrahim Sterling, Rogena Plevel, Rebecca Carson, William Cordova-Marks, Felina M. Cummins, Jewel Curley, Caleigh David-Chavez, Dominique Fernandez, Adam Hiraldo, Danielle Hiratsuka, Vanessa Hudson, Maui Jäger, Mary Beth Jennings, Lydia L. Martinez, Andrew Yracheta, Joseph Garrison, Nanibaa' A. Carroll, Stephanie Russo Front Res Metr Anal Research Metrics and Analytics Indigenous Peoples are reimagining their relationship with research and researchers through greater self-determination and involvement in research governance. The emerging discourse around Indigenous Data Sovereignty has provoked discussions about decolonizing data practices and highlighted the importance of Indigenous Data Governance to support Indigenous decision-making and control of data. Given that much data are generated from research, Indigenous research governance and Indigenous Data Governance overlap. In this paper, we broaden the concept of Indigenous Data Sovereignty by using the CARE Principles for Indigenous Data Governance to discuss how research legislation and policy adopted by Indigenous Peoples in the US set expectations around recognizing sovereign relationships, acknowledging rights and interests in data, and enabling Indigenous Peoples' participation in research governance. Frontiers Media S.A. 2023-11-15 /pmc/articles/PMC10685893/ /pubmed/38033627 http://dx.doi.org/10.3389/frma.2023.1272318 Text en Copyright © 2023 Garba, Sterling, Plevel, Carson, Cordova-Marks, Cummins, Curley, David-Chavez, Fernandez, Hiraldo, Hiratsuka, Hudson, Jäger, Jennings, Martinez, Yracheta, Garrison and Carroll. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
spellingShingle | Research Metrics and Analytics Garba, Ibrahim Sterling, Rogena Plevel, Rebecca Carson, William Cordova-Marks, Felina M. Cummins, Jewel Curley, Caleigh David-Chavez, Dominique Fernandez, Adam Hiraldo, Danielle Hiratsuka, Vanessa Hudson, Maui Jäger, Mary Beth Jennings, Lydia L. Martinez, Andrew Yracheta, Joseph Garrison, Nanibaa' A. Carroll, Stephanie Russo Indigenous Peoples and research: self-determination in research governance |
title | Indigenous Peoples and research: self-determination in research governance |
title_full | Indigenous Peoples and research: self-determination in research governance |
title_fullStr | Indigenous Peoples and research: self-determination in research governance |
title_full_unstemmed | Indigenous Peoples and research: self-determination in research governance |
title_short | Indigenous Peoples and research: self-determination in research governance |
title_sort | indigenous peoples and research: self-determination in research governance |
topic | Research Metrics and Analytics |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10685893/ https://www.ncbi.nlm.nih.gov/pubmed/38033627 http://dx.doi.org/10.3389/frma.2023.1272318 |
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