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Family support in adults with epilepsy

Background  The perception of family support in chronic disease can be relevant. Objective  To assess the perception of family support in adult patients with epilepsy (PWEs) and relate it to quality of life (QoL) and clinical aspects. Methods  Data from the Perceived Family Support Inventory (IPFS)...

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Autores principales: Tedrus, Gloria M. A. S., Leandro-Merhi, Vania Aparecida, Etchegaray, Augusto, Randi, Yara Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Thieme Revinter Publicações Ltda. 2023
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10689106/
https://www.ncbi.nlm.nih.gov/pubmed/38035580
http://dx.doi.org/10.1055/s-0043-1777004
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author Tedrus, Gloria M. A. S.
Leandro-Merhi, Vania Aparecida
Etchegaray, Augusto
Randi, Yara Maria
author_facet Tedrus, Gloria M. A. S.
Leandro-Merhi, Vania Aparecida
Etchegaray, Augusto
Randi, Yara Maria
author_sort Tedrus, Gloria M. A. S.
collection PubMed
description Background  The perception of family support in chronic disease can be relevant. Objective  To assess the perception of family support in adult patients with epilepsy (PWEs) and relate it to quality of life (QoL) and clinical aspects. Methods  Data from the Perceived Family Support Inventory (IPFS) of 130 PWEs were related to the clinical variables, QOLIE-31 scores, and the Neurological Disorders Depression Inventory for Epilepsy (NDDI-E) with statistical tests, with p  < 0.05. Results  The mean age was 49.9 ± 17.2 years, and the duration of epilepsy was 20.8 ± 15.4 years. The presence of depression (scores ≥ 15) was associated with lower family support. Being married and non-occurrence of depression were the variables associated with a higher IPFS score (R = 0.2112), in the multiple linear regression. Conclusion  The perception of greater family support was associated with demographic aspects, the absence of depression, and better QoL. Family relationships may play an essential role in health adjustment behaviors and QoL in epilepsy.
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spelling pubmed-106891062023-12-01 Family support in adults with epilepsy Tedrus, Gloria M. A. S. Leandro-Merhi, Vania Aparecida Etchegaray, Augusto Randi, Yara Maria Arq Neuropsiquiatr Background  The perception of family support in chronic disease can be relevant. Objective  To assess the perception of family support in adult patients with epilepsy (PWEs) and relate it to quality of life (QoL) and clinical aspects. Methods  Data from the Perceived Family Support Inventory (IPFS) of 130 PWEs were related to the clinical variables, QOLIE-31 scores, and the Neurological Disorders Depression Inventory for Epilepsy (NDDI-E) with statistical tests, with p  < 0.05. Results  The mean age was 49.9 ± 17.2 years, and the duration of epilepsy was 20.8 ± 15.4 years. The presence of depression (scores ≥ 15) was associated with lower family support. Being married and non-occurrence of depression were the variables associated with a higher IPFS score (R = 0.2112), in the multiple linear regression. Conclusion  The perception of greater family support was associated with demographic aspects, the absence of depression, and better QoL. Family relationships may play an essential role in health adjustment behaviors and QoL in epilepsy. Thieme Revinter Publicações Ltda. 2023-11-30 /pmc/articles/PMC10689106/ /pubmed/38035580 http://dx.doi.org/10.1055/s-0043-1777004 Text en The Author(s). This is an open access article published by Thieme under the terms of the Creative Commons Attribution 4.0 International License, permitting copying and reproduction so long as the original work is given appropriate credit ( https://creativecommons.org/licenses/by/4.0/ ) https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Tedrus, Gloria M. A. S.
Leandro-Merhi, Vania Aparecida
Etchegaray, Augusto
Randi, Yara Maria
Family support in adults with epilepsy
title Family support in adults with epilepsy
title_full Family support in adults with epilepsy
title_fullStr Family support in adults with epilepsy
title_full_unstemmed Family support in adults with epilepsy
title_short Family support in adults with epilepsy
title_sort family support in adults with epilepsy
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10689106/
https://www.ncbi.nlm.nih.gov/pubmed/38035580
http://dx.doi.org/10.1055/s-0043-1777004
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