‘It’s a nightmare’: informed consent in paediatric genome-wide sequencing. A qualitative expert interview study from Germany and Switzerland

The use of genome-wide sequencing (GWS) in paediatrics has added complexity to informed consent (IC) and pretest counselling because of the vast number and interpretation of potential findings, and their implications. However, empirical data from continental Europe on these issues remains limited. T...

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Detalles Bibliográficos
Autores principales: Eichinger, Johanna, Zimmermann, Bettina, Elger, Bernice, McLennan, Stuart, Filges, Isabel, Koné, Insa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10689462/
https://www.ncbi.nlm.nih.gov/pubmed/37773517
http://dx.doi.org/10.1038/s41431-023-01468-9

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10689462/
https://www.ncbi.nlm.nih.gov/pubmed/37773517
http://dx.doi.org/10.1038/s41431-023-01468-9

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