Knowledge, attitudes and decision regret: a longitudinal survey study of participants offered genome sequencing in the 100,000 Genomes Project

We used cross-sectional surveys to compare the knowledge, attitudes, and decision regret of participants who had consented for genome sequencing (GS) for rare disease diagnosis in the 100,000 Genomes Project (100kGP) across two timepoints (at the time of consenting for GS (T1) and 12–18 months later...

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Detalles Bibliográficos
Autores principales: Peter, Michelle, Hammond, Jennifer, Sanderson, Saskia C., Gurasashvili, Jana, Hunter, Amy, Searle, Beverly, Patch, Christine, Chitty, Lyn S., Hill, Melissa, Lewis, Celine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10689827/
https://www.ncbi.nlm.nih.gov/pubmed/37789083
http://dx.doi.org/10.1038/s41431-023-01470-1

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